Posted , 62 users are following.
I had a TVT op five years ago, and had no idea of the problems some women had with this, until I read about them on here.
Could the women who have had this operation successfully please stop by and tell us how you are, and how long ago you had your TVT.
Thanks in advance.
2 likes, 197 replies
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Djhovs VauxhallGirl
Posted
Been suffering with back pain, can hardly walk or climb the stairs, constant pain in stomach, had the tvt fitted about 8 years ago and was OK at first, but then started getting really bad pains, I drive a mobility scooter and it hurts when I go over a bump, I literally feel the pain, my GP keeps telling meveryone it's my false legs, but it's not it's this tape, I didn't have a follow up, nothing at all, no checks, it's made my life a misery, my sex life is over, I'm 51. I want this thing out and have made another appointment with GP to go through all the complications this has caused, I don't think they have any knowledge of the amount of women who are suffering because of this tvt, it's disgusting, we again were guinea pigs for something that wasn't properly tested, I am fuming.
jackiedee Djhovs
Posted
Lowfield31 jackiedee
Posted
It's very difficult to remove the mesh as your own tissue grows through the mesh.
ive never met a surgeon in the u.k that would remove one. I have been told it can cause major problems and you could be left worse off than before .
its major surgery too!
jackiedee Lowfield31
Posted
There are a few surgeons in Scotland and England who remove TVT mesh day in day out. I know several women who have had a good outcome post removal and some who haven't depending on who did the surgery. Sohier Elneil in Harley St is very experienced, Natalia Price also very proficient in Oxford and James Moore in Eastbourne. I believe Karen Ward in Manchester also has good experience. I have constituted with 2 of these surgeons and am fairly confident that my removal should result in an improvement. I haven't gone into this with my eyes shut.
Lowfield31 jackiedee
Posted
That sounds very promising! Hope you get a good out come!
I only managed to get a portion of my mesh removed where it had eroded through.
This was on the nhs and the surgeon was really dismissive when I said I'd like all of the mesh out.
But what amazes me it the number of women still having this procedure when there are other options which many of us weren't made aware of.
good luck and please keep us posted x
jackiedee Lowfield31
Posted
That's why I'm travelling to Oxford from Northern Ireland. I can't get a surgeon to listen to me and I am only one of (at the moment) a small group of women from
NI who are now having to consider paying to travel over to England as they have been treated appallingly by some surgeons here. I have proof that my TVT is in the wrong place and is causing my pain (I had a specialist scan in Croydon) but no one wants to know. They would rather protect their precious mesh than listen to women in pain. We are all left on the scrap heap. I hope your partial removal helped you but unfortunately for many women it makes things worse. X
Lowfield31 jackiedee
Posted
I'm still having problems!
jackiedee Lowfield31
Posted
That's not good. Do you know that there 16 Multi disciplinary teams being set up round england to deal with mesh complications? Depending where you live you could get a referral to one of these centres on NHS. I do know many women have been able to get referred to the 4 surgeons I mentioned above so you could consider that although they are now inundated with women seeking help.
Re the procedure itself In Scotland over 400 women have launched a class action law suit against the NHS, and Johnson &a Johnson the makers of most of the mesh products used in the UK. The local Scottish govt recommended suspension of the pelvic mesh surgery in 2014 which most hospitals heeded.
In Israel 60,000 women are pursuing litigation and over 100,000 in the USA. Australia have 20,000 at the mo but this will grow as the word gets out and all these women who have been fobbed off by their surgeons and doctors for years finally realise they have been lied to and that it is the mesh causing their problems and it is not all in their head. I hope you are able to get the help you need but I would strongly recommend you join Sling the Mesh Facebook group as there are 1200 women in a similar position to you on that group xxx
Lowfield31 jackiedee
Posted
monica43472 Djhovs
Posted
I had my unsuccessful tvt surgery sept 2016. I'm still leaking. Recently had a cyctsopy with the surgeon who performed and he had me push after filling no my stomach with water and...no leakage. His conclusion, the issue is not the mesh but my bladder being overactive. He said I had two problems. Had I known that I never would have had surgery. So he prescribed two meds to help. I started having terrible lower back pain and hoping it has no relation. I have frozen shoulder and neck issues so hoping it's just a part of my alignment and NOT a result of the mesh. Curious if any of you had pain in your back or pelvis months after the surgery?
Lowfield31 VauxhallGirl
Posted
jackiedee VauxhallGirl
Posted
If any of you who have difficulties with mesh and are on Facebook you should join Sling the Mesh. If you are from Northern Ireland you can join Northern Irish TVT group. This is becoming a huge issue. Glad that some people have no issues with mesh so far and hope it stays that way.
I had very few issues until a couple of years ago. Mine in 12 years now. Some women are ok and some aren't. Some people can eat peanuts and some people can't. Some people can wear nickel earrings and some people get a reaction. Some people are allergic to polypropylene mesh and some people aren't. Too late to find that out when it's embedded deep in your tissues
cin0619 VauxhallGirl
Posted
HI
i had hysterectomy with ovaries removed and figured if I was going to go through that I would finally take care of incontinence problem. I leaked with coughing sneezing and exercise. First thing I asked doctor was this mesh people suiing for. He assured me this was "new mesh". Found out there is no new mesh. Surgery was 13 months ago. Have leaked since post op. Initially told that was normal then told it was bladder infections. Had a total of 7 antibiotics. Still leaking. Now leak all day not just sneezing and coughing. I leak less with coughing but now Leak all day. Had cystoscope done supposedly shows urethra not closing tightly. Did several weeks of pelvic floor therapy. No improvement. I had a lot of repair work done with hysterectomy and tvt and a lot of endometriosis removed. Asked dr why leaking all the time now. He tried to tell me prolapse was preventing all the leaking. (Really?!)now he recommends Macroplastique injections to cure me. I'm waiting for second opinion and opinion on ThermaVi laser that physical therapist
recommended. That procedure 3500 and not covered by insurance. Uro gyno says that won't work. Honestly I don't know who to believe. Don't really believe anything uro gyno says anymore. I wish I knew I could of done this with my own tissue I would of gone that route. Put on vagifem and mybetriq ;yes developed urge incontinence after surgury I never had before too) I've developed swollen hands and feet which uro gyno and primary tried to tell me they weren't but rings don't fit some of my shoes don't fit feet hurt but guess I don't know my own body. Also have joint pain in every joint. Just saw primary. She stated its "old age, Arthritis'. I'm 52. I have arthritis in hip but can't understand how within a month of surgery literally every single joint in body developed arthritis all on same day. Asked if side effect of surgical menopause or meds, nope just laughed saying old age. Tested me for RA. Test for body inflammation came back very high. Sent me for hand X-ray to check for inflammation even tho ultra sound or MRI would show that much better. Haven't gotten X ray result yet.
Sorry I sound so bitter. Tired of being lied too. Wish I never had surgery and worried I may develop all the other horrors I've read about. They need to take mesh off of the market.
jackiedee cin0619
Posted
I had my TVT mesh fully removed in Oxford last week. Feel loads better already. Unfortunately I had to pay for it myself as no one believed me except this wonderful experienced surgeon. I hope you can get sorted. Mesh is toxic crap and needs to be banned. I had mine in 12 years and it was only after 7 that it started giving me bother so don't think it can't happen down the road
pam10675 VauxhallGirl
Posted
I had TVT along with robotic laparoscopic hysterectomy, sacrocolpopexy and bilateral saplings tommy/oophorectomy. Had in Feb 2015. Have had UTIs recurring the past year (had them on and off my whole life) but seem to be more painful and now resistant to penicillin. Debilitating at times. Wondering if it could be the TVT eroding? I'm at a loss. MD just gives me a diet to follow (bladder friendly, no acid) which is very restrictive and hard to follow.