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twitching

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sorelin
sorelin

Hi all. This last week I have noticed that I am getting involuntary twitching in my hands. I probably have been getting that for a while as I have become very clumsy and keep dropping things  but I have just realised today that my hands and fingers keep jerking on their own. I am recently diagnosed with fibro and am on prebabalin and co-codomol. I don't know if this is part of the fibro or effects of the meds. Does anyone else experience this. It's very annoying when I am on my laptop as my fingers keep jerking and I hit the wrong letter button. In the morning my fingers are sore and stiff and I can't make a fist for the pain butafter a while and after taking my pills ...they are much better. I hope I don't have another problem on top of having the fibro. Kind regards to all. x

2 likes, 28 replies

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  • doris7
    doris7 sorelin

    Posted

    Hi Sorelin,

    Similar problem here: my legs twitch violently, especially at night, which wakes me up a lot. I've discovered avoiding caffeine and sugar helps (not completely but living with fibro is all about small comforts). No meds really helped me with the twitching (but can't say if any induced it either), and currently I'm only taking Tramadol for pain (pregabalin and other psychoactive drugs have too many side effects in my case). For soreness and stiffness (arms, hands and legs) I try to stretch regularly, though it doesn't always help.

    Hope you'll find your own way to deal with the symptoms (and share it here so we can also have a try smile ).

    Gentle hugs,

    Doris

    • sorelin
      sorelin doris7

      Posted

      Hi Doris. Thanks for your reply. I was wondering what side sffects you got from pregabilin as I have only been on it for a short time and my consultant doubled my dose last week. I am a bit worried about putting weight on as I am already overweight and i have been cursed with very thin hair now for years so can't afford to lose anymore. Were these the kind of symptoms you experienced....or different ones?  

      take care

      Lin

    • doris7
      doris7 sorelin

      Posted

      I experienced the ones reported by many patients: sleepiness and problems with concentration, increased appetite and putting on weight, digestion problems (constipation and reflux). I decided not to take any of this type of drugs because I felt like my intellect was evaporating with each dose and couldn't do my job properly ( ESL teacher). Now I focus on healthy lifestyle, some exercise, reducing stress and other negative factors and take tramadol from time to time - it's better to feel pain than to be to drowsy and distracted to enjoy your life.
  • shelagh6
    shelagh6 sorelin

    Posted

    Hi Linn,

    i have that too, it is annoying! I've also started falling over, five times in four weeks, it's probably time to go to the doc with that I suppose. I don't have the same meds as you so I'm guessing the twitches are part of the fibro. I don't have any caffeine after midday so I guess it isn't the cause of my twitches for me.

    luv Shelagh

  • tiswas24537
    tiswas24537 sorelin

    Posted

    its tough condition has so many symptoms ,

    that mimike other CONDITIONS , my right eye started twitching years before any other symptoms came a long , it stoped after a few months on its own, mind you i had to where tinted glasses ,because after several weeks it started to hurt.and you got funny looks from people. thinking that you were winking at them.

    as i keep saying lack of magneisum causes muscle problems so by replacing it topicaly will help stop spasms and twitching,

    appling to the skin is a gentlier way ,some people find oral magneisum even if they use the plant based one to harsh on the stomach

    .as for the other symptoms

    the last time i looked on a help forum , theres up to 26 other symptoms, you just take them as they come,and find your way, destress symptoms are always much worse when under stress. use a good self help relaxation cd 1 or twice a day daily

    it really does help, the less stress the less the symptoms flare up.

    • sorelin
      sorelin tiswas24537

      Posted

      Thanks for your reply Tina. I also have the flickering eyelid as well....very annoying. My husband is going first thing tomorrow to get me the magnesium you spoke of so fingers crossed it helps me too. I do try to avoid stress but in this day and age it's a tad difficult to not get any at all. But I am workig on it. Take care as always.
    • tiswas24537
      tiswas24537 sorelin

      Posted

      iv not heard of topical[ applied to skin ]magneisum availble in shops unless you have a good health shop, that is the best sort, if you take the plant based tablet take the smallest dose at first see how you get on. you can buy

      magneisum liquid and flakes if you can get into a bath with with either and soak your be surprized just how relaxed you feel, if your in the uk

      i know about stress i was born worring ,i worry about everything.

      i have a son with aspergers syndrome as i also do, and a daughter who suffers with depression, along with my eldest daughter who developed

      R A at 27..

      mind you iv found one way of  greatly reducing my stress iv given up the tv my stress levals have  dropped greatly , the adds drove me mad,along with really poor quality of shows such as reality shows , sorry if your a fan but they drive me mad.

  • airyfairy85
    airyfairy85 sorelin

    Posted

    Hi Sorelin,

    I also get twitching from fibromyalgia. I am not yet taking any medications for it, so I for me at least the twitching seems to be due to fibro. It was much worse a few months ago because I was tired and stressed (just before I got my diagnosis). Now that I'm managing my symptoms a bit better it has definitely improved. Worrying about twitching makes you twitch more I think. 

    I do yoga, go for walks and swim at least once a week and find this helps with my symptoms. I know everyone is different but this helps me. Sleep is my biggest factor - if I have a bad night's sleep my symptoms are much worse.

    Can I ask, I'm not on any medication yet - wondering how you are getting on with the treatment -has it helped?

    Take care :-)

    • sorelin
      sorelin airyfairy85

      Posted

      Hi love. I have been on amitripyline, co-codomol (for the pain ) and pregabilin for four months now and consultant has just increased the dosage from 300 mg pregabilin to 600mg and from 20mg amitriptyline to 50mg. Now I go to bed and conk out almost immediatley and sleep a good 6 to 7 hours a night which for me is great. I also think they have helped with the pain a little as well. I have this new symptom of twitching but apart from that I think the meds are helping at last. Go to your doctor and get some meds to help with the symptoms. Hope they work as good for you. Take care.
  • dobie2
    dobie2 sorelin

    Posted

    hi there,

    i have noticed over the last few months that i have involantry twitches to both legs and arms. i will ask the rheumatologist on monday when i attend my first appointment. will let you know what they say.

    kind regards

    janet

    • sorelin
      sorelin dobie2

      Posted

      Thanks Janet, I would appreciate that. Hope all goes well. regards Lin                                                                                                                                                       
  • pamela91491
    pamela91491 sorelin

    Posted

    Hi I was diagnosed with fibro 4 yrs ago but I think I had it longer than that. For me I have the same problems with my hands that you do. I am not on the medication that you are and I drop things, have eye hand coordination problems, fingers jerking for no reason and trying to type is now a joke for me (I used to be an excellant typist) and the not able to make a fist or move my hands very well first thing in the morning.. You should let your doctor know about all of your symptoms and I have kept a log of activity, medications (dosage changes) and physical reactions. I also write down if I am having a good day or bad and physical activity even things like house work and your reactions from the activity. This has helped my doctor and I manage my fibro especially since I have a severe case of "fibro fog". Fibro is a condition that you have to learn to live with and to try and make to the best out of each day. Try to keep a positive attitude and your stress to a minium and try to get a good nite sleep (which is easier said then done sometimes wink ). Hope this helps and remember you are not alone smile
    • sorelin
      sorelin pamela91491

      Posted

      Thank you Pamela. I found your letter very uplifting and positive. That's what I struggle with most at the moment...being positive. I sometimes get into a ' poor me ' mood and I know it does me no favours. My husband is always telling me to look on the bright side and count my blessings for the things I can do and not dwell on what I can't. But it is hard sometimes as I am sure you know. I too drop things constantly now and I even fell over yesterday while doing a little hoovering. I did't trip or anything ...I just went over.The doctor that I am under at the hospital was wonderful at the beginning but now that I am on the meds he prescribed he doesn't seem to want to listen anymore and only ups the dosage when I tell him I am still having a lot of pain. I think the worst times for me are getting out of bed in the morning...agony, and when I stand from sitting. The pain in my buttocks is awful and I walk like a duck. But I am going to follow your example and try to be more positive from now on ( I was diagnosed four months ago so I haven't had time to make friends with it yet)

      Wishing you well

      Lin

  • Pinkgin64
    Pinkgin64 sorelin

    Posted

    Hi Sorelin,

    My hands are very sore, especially first thing in the morning. I too have become very twitchy and can be very clumsy. I hasten to add that I was not clumsy prior to Fibro. As I type my legs and buttocks are twitching like mad, it's like an Irish Dancer has taken up residence on the sofa! I have, to the amusement of my family, thrown the book I was reading straight into my face. Fibro is so difficult to manage but I recommend the previously mentioned positive attitude and aviodance of stress but also look for the fun in life and laugh a lot, it's great for releasing your endorphins :-)

    • dobie2
      dobie2 Pinkgin64

      Posted

      hi there,

      i know the feelings of this twitching.  my grand daughetrs find it so funny when grandma is trying to have a cupper but it ends up all over me. it find it so funny when i am trying to type and my arms go in all direction.  i to suffer from painful stiff fingers in the morning but also the soles of my feet are so tender and painful if i have been sat for a while and i hobble around like some one 100 years old.  like you i find humer and laughter are the best medicines we cant always been full of doom and gloom have a good laugh it does help.

      kind regards

      janet

    • sorelin
      sorelin Pinkgin64

      Posted

      Hi there. I too was never clumsy before fibro. I have burnt myself a couple of times by a sudden jerk at the cooker. I know what you mean about laughter....it is such a mood lifter. The other evening my husband and I were sat on the couch watching TV as usual and he asked me to remove a hair that he couldnt quite get on his lip somewhere....yes you have probably guessed what happened...my hand gave one violent jerk hitting him smack on the nose! After his eyes stopped watering we laughed on and off for most of the evening. Keep laughing

      Stay well

      Lin

    • Pinkgin64
      Pinkgin64 dobie2

      Posted

      Hi Janet,

      It's good to keep the troups entertained, the laughter from your grandaughters must be so uplifting. I have recently completed a very comprehensive pain management course and part of the physio's advice is to move every 15 - 20 mins. as well as performing stretches. I have increased my flexibility considerably in the space of six weeks. It's not easy as it does hurt but the theory is that increased quality of tissues (muscle, tendons, ligaments) will result in less pain. I'm not to sure about that but I do feel marginally better which is a plus. If I forget to move I too get a hobble on when attempting to  move from a to b. I sometimes find myself giggling as I picture what I must look like, as I am some way off the century yet! Keep that laughter coming, it's the best medicine lol

      Kind regards,

      Ginny

    • Pinkgin64
      Pinkgin64 sorelin

      Posted

      Hi Lin,

      Sorry to hear that you've burnt yourself jerking at the cooker, I appreciate how dangerous these twitches can be. I have changed the way I roast potatoes as I have thrown hot oil straight at my torso in the past when a particularly violent twitch struck as I was spooning said oil over potatoes. Fortunately I was able to dodge the oil and it did no harm but there could have been serious burns and untold pain for a Fibro patient like me. 

      You have given me a good laugh, I bet your husbands face was a picture. I too have caused pain followed by hysterical laughter when pointing at something on my son's eye...yes I poked him right in the eye. All I can say is that I am thankful that the blink reflex is faster than my twitch or I would have not been laughing. He still teases me about it now and will back off slightly with a cheeky grin tickling the corners of his mouth if I even begin to point.

      Keep on laughing and be well,

      Ginny

    • heidi02380
      heidi02380 dobie2

      Posted

      I know this is old so you may not see this, but you're the first person I've heard say your feet hurt from fibro (like the bottoms) I've had fibromyalgia for years now, but lately I've had new symptoms (I didn't know it could get worse! Yikes ): ) and it's not my soles, but my heels! They've been hurting so bad lately out of nowhere, in the mornings in bed... I don't know why. It sucks sad
    • tiswas24537
      tiswas24537 heidi02380

      Posted

      you know why its the fibro inflamation caused by fibro makes ligaments tendons and muscles tight , i get it in the whole foot and its like walking on broken glass or a hard pebble beach ,

      all i can say is walk as much as poss even thou it hurts or other wise it will get tighter. soak your feet in a bowl of magneisuim flakes this will help greatly or soak your whole body in a bath with magneisum flakes .and rub magneisum oil on your worst bits rub it in well , the oil does sting a bit but it soon wares of.this also helps with cramp and restless legs.smile and try those gel inner soles they help a bit.

       

    • Flowerlady
      Flowerlady heidi02380

      Posted

      Hello Heidi

      I too get very sore feet.They throb and tingle. I also have been getting twitching in the right eyebrow area for about a month now. Anyone else have this? Regards...Anne..

    • tiswas24537
      tiswas24537 Flowerlady

      Posted

      yes funny enough its my right eyebrow as well ,i just dab on magneisum oil careful to avoid getting in the eye .stops twitching in a couple of days . its works for any part of the body.
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