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I am at a crossroads and need some advice. I have been to a neurogolist for the past year. I started out seeing my PCP for numbness and tingling in my feet. My PCP sent me to Neurologist who perfromed a EMG/NCS which showed moderate peripheral polyneuropathy. I went to a larger Neurology group in my area. The Neurologist performed anothe EMG/NCS. The latest showed that the only mild peripheral neuropathy. All of my blood worked has come back normal. I recently had a spinal tap performed which the glucose was normal but the protein was mildly elevated at 54.6 mg/dl. I still have numbeness and tingling but the main symptoms are now fasciculations(twitching) in the calves, feet, right knee, left eyelid and somtimes hand and muscle cramps. I have noticed that my grip is weaker and I get tired of holding items especially in a pinch grip. I have notcied some slight atrophy in my legs and I get tired from walking my dog a mile or two. My neurologists wants me to go to major research facility like Duke, Johns Hopkins for testing. I am hestitant because right now all of my symptoms are annoying but not debilitating. I don't know if this will get worse and this is something I need to take care of. Or something I just suck up. Looking for advice and help.
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