Two months for my 13 yr old with HSP. Going crazy!!
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Hi everyone. I'm writing from the U.S. This is the only discussion group that I've found on HSP. There have to be more people suffering from this but they haven't found where to vent yet!
My daughter, 13, was diagnosed with HSP on Feb. 3rd. Previous to that, she had the flu and a respiratory infection and was given an antibiotic. The rash showed up first on her palms. They were like little cuts covering the whole palm on both hands. Later that day, her legs, ankles and butt were covered as well. It kept coming and coming. The rash on her legs lasted about 2 weeks, with just a handful here and there on her legs and ankles. The rash on her hands still come and go.
In addition to the rash, she had severe joint pain in her knees, ankles, elbows, and hip, as well as nausea, headaches and abdominal pain. The joint pain is better but she does still experience it frequently in her knees and ankles mostly. She is still having headaches too. Nausea is the biggest complaint now. It’s been two months and she is still miserable. She hasn’t done a full day of school for over two months. At this point, the rash keeps showing up in her hands and it bothers her to hold a pencil!
I feel awful for her and wish I could help her. Ibuprofen and Tylenol does not help but she does sometimes get some relief from Alleve. Sometimes I wonder if a lot of it is nerves or her reacting to the stress of it. If I mention this, she thinks that I think she’s faking. I know she’s frustrated. I’m frustrated too. The nurses at her school are losing patience with her showing up there every day even though we have a doctor’s note. They don’t get it. When is this going to go away??
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Im curious when you say his rash is gone. Does that mean totally or the majority of it? The first few weeks my daughter's rash was at its worse but she does still have it in certain places. It continues to come in on her palms all the time. She just got some new spots on her legs today and more showed up tonight. It hasn't been there in awhile. It's also on the bottom of her feet and in between her toes. She can actually feel them coming in. It's awful. She keeps asking me why it keeps coming back and I have no answers for her.
Was as your son nauseous?
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