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Hi. I was unofficially diagnosed with AS by my gp but he sent me to the specialist to get it confirmed and I've been sent home twice now with nothing but "you don't fit the criteria" and "don't let the pain stop you live your life".
I believe it's because I don't have severe back pain that they are dismissing me. Now I do have the back pain but it's not as bad as the pains in my joints and arms and legs and hands.
The point of this is I was just wondering if anyone has had similar pains. Like it feels like my arms, legs and hands are broken and need to be put back into place and my whole body just constantly throbs in pain. I also am very tired and I try to exercise but I can't even walk around the shops for an hour without having the pains get worse and feeling extremely tired. The pain in my back is in the lower back and it's when I'm standing for ages that it hurts and in bed and I constantly have to move to get comfortable.
Just wondering if anyone has experienced the same thing because I have no one else to ask questions to and I'm just sick of being told no by doctors. They didn't even do scans to rule it out they just said because the pain was throughout my whole body and not just my back it wasn't AS.
Sorry for the long post
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