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Type of Pain Comparison for AS?

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paige38820
paige38820

Hi. I was unofficially diagnosed with AS by my gp but he sent me to the specialist to get it confirmed and I've been sent home twice now with nothing but "you don't fit the criteria" and "don't let the pain stop you live your life". 

I believe it's because I don't have severe back pain that they are dismissing me. Now I do have the back pain but it's not as bad as the pains in my joints and arms and legs and hands. 

The point of this is I was just wondering if anyone has had similar pains. Like it feels like my arms, legs and hands are broken and need to be put back into place and my whole body just constantly throbs in pain. I also am very tired and I try to exercise but I can't even walk around the shops for an hour without having the pains get worse and feeling extremely tired. The pain in my back is in the lower back and it's when I'm standing for ages that it hurts and in bed and I constantly have to move to get comfortable. 

Just wondering if anyone has experienced the same thing because I have no one else to ask questions to and I'm just sick of being told no by doctors. They didn't even do scans to rule it out they just said because the pain was throughout my whole body and not just my back it wasn't AS. 

Sorry for the long post 

0 likes, 16 replies

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  • loretta59598
    loretta59598 paige38820

    Posted

    Please don’t let the Dr discourage you. Mine was the same and you can definitely have peripheral arthritis worse than back pain with disease. Sometimes the joint and hands can flare worse than the back pain. It comes and goes. I am on Humira and Methotrexate after 1 yr on remicade. This pain can be minimized with proper treatment I am actually doing so much better with this treatment. pls check w your rhumetologist and don’t give up fighting no one deserves this and there are treatments out there. Everyone’s symptoms and treatments are different I wish you all the best on your road to recovery. 
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