1. Community
  2. Women's health
  3. Lichen Sclerosus

Uh Oh... some fusing and I didn't know it- HELP!

Posted , 13 users are following.

Nancy_K_B
Nancy_K_B

OH gosh gals - I have to admit i didn't now what you all meant by fusing for these last months - oh duh... my labia weren't stuck together and I don't have a partner, so... ugh well now I just realized that this "fusing" extends upwards from the perineum - ouch. 

dang this LS is a tricky thing - just when you think you've got it handled... hanging head...

So can some of you please retell the tale of how you got the fusing to stop and reverse - natural methods/food/supplements etc... not ready to think surgery. Please and thank you so much.  

0 likes, 30 replies

30 Replies

Prev
  • frances87895
    frances87895 Nancy_K_B

    Posted

    Urethral orifice and fusing.  On visit to specialist a year ago, I was asked whether I could still urinate as there is some fusing.  This year different specialist who didn't enquire; however, nothing has changed.   I did do some reading that surgical unfusing doesn't work for the long term as it just returns. 

    • karen23320
      karen23320 frances87895

      Posted

      I watched Dr Goldstein’s Webinare last night and today ( over an hour) and he talked about the steroids helping to help “  Unfuse” labia, clitoral hood, etc. he also showed surgery that can be done in severe cases. After surgery steroid is used to prevent refusing. If you have not seen webinare, I highly recommend it. 
    • susan43705
      susan43705 karen23320

      Posted

      I"m going to watch it.  Has anybody had the unfusing surgery?  Sounds like it could be very painful after.

       

    • susan99000
      susan99000 frances87895

      Posted

      hi Frances,i`ve been dagnosed for about 4 years now and when last saw my gyny(in may) he said the architecture had changed! explained i had trouble wee ing and he did tests,nothing sinister ,because the fusing has caused the hood to cover the clitoris and wee hole,my wee goes up hits the hood then comes down! sorry to be graphic but at least i know its sort of normal.my gyny is great he does a smear test when i see him every 12 months so its reassuring.

       

    • karen23320
      karen23320 susan99000

      Posted

      Hi Susan- I’m only 13 days diagnosed and fo not hv a Dr appt until July 24, but this is another thing to discuss with my Dr. My pee seems to “ splatter” so I think there jv been some architectual changes there as well. One thing I hv noticed- since I was diagnosed and hv been going frequently and drinking tons of water and spreading creams, etc. I have not had any stress incontinence? Seems to just be gone? Of course I’m lowering my stress too to control the LS- maybe I’ll just stay at the summer house and NEVER go home to 4 jobs, 3 kids, hubby and dog- hmmmm😜😜🤣🤣🤣🤣🙄🙄🙄🙄

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.