Posted , 11 users are following.
Just wondering how others are dealing with this excessive heat?!
I've been having way more headaches and eye issues as well as basically feeling like I'm melting! I've spent the day in bed waiting for rain to come that the weather forecasts said was due. How are other people managing/not managing with this extra element to deal with?
0 likes, 20 replies
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Sadly Beverley_01
Posted
Hello Beverley- I’m struggling enormously too, I’ve been too hot most of the time since I was cursed ME but this is just beyond despairing! I’m wandering around with an ice pack down the back of my bra and one at the back of my neck, a cool and soothe strip on my forehead, I’m wearing pj shorts with a vest at most every day (I’m housebound but if I could go out I’d have to go dressed like this🤪
iI have a fan beside me constantly, all the windows open and ice water to sip in a flask - nonetheless my temperature sits around 38 degrees and I feel just awful... everything aches, My pallor is an off White/yellowish tint, I’m tired, extremely lethargic, I’ve a constant headache behind my dry, sore eyes and my feet are throbbing and swollen! I rest my case......
‘I hope you/we all get some respite soon 💟
Beverley_01 Sadly
Posted
Hi Sadly,
Sorry to hear you are suffering so much too with this heat. Do you find winter gives any respite? There was someone else on here quite a while ago who was permanently cold and had to wear several layers all the time even in summer. It's such a bizarre condition and so unique to us all.
The rain we had here yesterday did cool things down a little at least. Hope you had something similar.
Beverley
Sadly Beverley_01
Posted
Hello again Beverley
We had rain here yesterday toy yet it was still very muggy so I didn’t feel much impact but certainly a little less time with my head in the freezer 😉
Winter is definitely better for me, I still struggle to keep equilibrium temperature wise but it’s definitely better.
I can’t believe the complexities of this illness and how far reaching their impact on a once very fit and healthy body... I know it’s a common theme but I still lie awake at night with unanswered questions driving my mind to turmoil. It’s a cruel opponent.
i hope you enjoy some relief over the coming few cooler days. 💟
Beverley_01 Sadly
Posted
Hi Sadly,
It's such a strange condition, yes! I too was fit and healthy once. I always preferred winter seasonally but, this summer has been exceptionally hot and i feel more symptom causing because of it.
Some cool days will hopefully come!
Beverley