Uncommon costo symptoms
Posted , 57 users are following.
Costochondritis is unfortunately, not widely known or discussed and I've got more information from here than my gp.
Although I'm lucky to say I'm 80-90% healed, I've reached a plateau.
I wanted to share some of the less common symptoms I've experienced in my healing process for those who may be scared/confused:
Dizziness
Head pressure on the side of inflammation
(possibly led to a slowing down of the movement in left eye, I now wear glasses to refocus, never had eye issues before)
Headaches
Swollen neck
Tightness in neck
Swollen shoulder muscles
Back pain in the middle of back
Inability to eat
Feeling physically full after half a meal but still hungry
Stomach pain
Burning sensation in muscles
Tingling sensation in muscles
Strange sinking feeling when breathing, comparable to the stomach drop you get in fear/on a rollercoaster or similar but it's more muscular/physical
Sensation of muscles suddenly "deflating" when falling asleep - possibly anxiety related as well
Constant palpitations
Fatigue
Tiredness
Generally weak
Arm pain on side of inflammation
Feeling like I can't breathe
Difficulty walking at speed - who knew swaying arms could be so painful?!
Feeling fine all day but swelling up when you lie down to sleep
Sinus pressure
BONUS: For those who have overcome the majority of the pain
general discomfort/awareness/heaviness/tightness of the affected areas
Feel free to share your uncommon/less discussed symptoms
10 likes, 172 replies
ray63269 shekme10120
Edited
grace28398 ray63269
Posted
ray63269 grace28398
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I'm sorry to hear that . How are you today . I'm suffering today . Sternum very tender along with ribs and collarbone . Middle of back very sore and tender too
Even affecting my neck lately . Don't know if it's related to it for sure but seems a bit of a coinsidenc. I seem to get some sort of symptoms everyday
.
lachastity04089 ray63269
Edited
The back pain to me is by far the worst. Mine is dead centered of my back seems like along the spine... today feels like the left side of my shoulder and arm are extremely heavy.. my sternum also hurts to touch. And I had really bad heartburn with it lastnight that made my anxiety go through the roof because of course I thought that maybe I was having a heart attack, even though I've been told on numerous occasions that my heart is mine, but with the left arm, shoulder and back pain you can't help but wonder. I just wish it will all go away 😣
ray63269 lachastity04089
Edited
Hi I know how you feel . I feel the same too . Wish it would go but it doesn't . Every day I'm suffering in some way . Middle of back and ribs were painful yesterday and so far today it's shoulder and collarbone . So fed up with it
grace28398 ray63269
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simone_40974 grace28398
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QueenMo grace28398
Posted
My Dr also has Costro and his seems to be in a long term remission. I can't take Motrin but he now prescribes Prednisone when I have a flare up and it is like a miracle ... I agree that there has to be research done on this condition. When you talk about it very few people know what it is! I have looked for a study somewhere here in the States, but doesn't seem to be any! I wish I knew of anyone in the medical profession that would give this some serious thought! In the meantime, I will take the Prednisone (even though I don't like some of the side effects)!
shekme10120 ray63269
Posted
deirdrie31680 lachastity04089
Posted
Yes, yes, and yes to the indigestion this evening. As it eased so did the pain.
toria_07298 deirdrie31680
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this was my first symptom of perimenopause x
deirdrie31680 toria_07298
Posted
Hope it eases soon, sadly I am well past menopause
simone_40974 shekme10120
Edited
Hello again . With
The palpitations did it ever feel like a brief pause in the heart beat? I have this at times and so many others form my
Intense research Havd had this as well . will say the symptoms are so darn weird . They go and come ! Also anxiety and panic makes this so much worse which also can cause the heart palp as well so it's a vicious cycle .
ray63269 simone_40974
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I have had them too . It's dreadful . And anxiety makes things far worse . So fed up as there never seems a light at the end of the tunnel
simone_40974 ray63269
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Could this be auto immune ? Have you had any test from rheumatologist? I have an apparently my test for sjroans was positive . Not sure if the two are related ? Most ppl have ruled out the heart ok great but has everyone tested for other immune disorders ? Lastly , ppl say it's mechanical meaning the rib hinges are frozen due to injury or some sort of mishap . I can believe that theory as I use to sleep in s dreadful position when my daughter use to sleep in my bed as a toddler . We have to get to the cause .
grace28398 simone_40974
Posted
simone_40974 grace28398
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Think ta muscular . My ribs are inflamed, when I turn certain ways they move
Out of place. My next step in addition the the backpod is an osteopathic doctor.
grace28398 simone_40974
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shekme10120 simone_40974
Edited
Yes! Which triggers my anxiety like no other. I genuinely believe my heart has stopped/skipped a beat whenit happens. It's awful but I found managing my anxiety makes the costo seem less bad because I'm not fretting over the symptoms as much.
shekme10120 simone_40974
Posted
Yes, I agree. It seems the majority of costo sufferers have no cardio issues - they are very unrelated if anything. But I'd like to know if there was a reason some get it while others don't. That may help with a better cure.
simone_40974 shekme10120
Posted
Tests done?
Over
The course
Of this Costo thing ?
shekme10120 simone_40974
Posted
Only a few ECGs on account of anxiety but no general tests. I haven't been back to the docs since diagnosis despite urges from family.
She seemed to know what it was right away (good) but merely prescribed ibuprofen (bad). I'm a little anti-pharmaceuticals and it didn't decrease the pain, just stopped me from feeling it.
I'm considering asking for physio as it helped with a sprained ankle so it may work for this.
Or maybe get referred to a chronic pain clinic as this has been going on for a year now.
simone_40974 shekme10120
Posted
Were doctors able to
Discern anxiety from
Any cardiac issues on
ECG? Like it's hard to be
Calm taking that exam with these Costo feelings ?