Underactive for 32 years now going other way????

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Hi everyone. Can I have some advice please. I have had a underactive thyroid for 32 years. Over time i've gone from 50mg to 175mg.

I went for a blood test Wednesday as I have lost half a stone in less than 2 weeks. ( never been over weight always around 9/10 stone) My dr rang this afternoon as the results are showing it that its going overactive now. I have reduce my meds by 25mg then blood test in 8 weeks.

Does any one know why it goes from underactive to overactive.

Thank you P

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  • Posted

    Hi Paula. I was under active for 8 years and have been fluctuating between under and over for 3 years now! 

    Was prescribed Carbimazole and have blood tests every 4-6 weeks. Depending on the results my dosage changes. At present I haven’t had any meds for 4 weeks as TSH was 10.74 and T4 was 9.4.

    In July my endocrinologist said I was clinically euthyroid but I was still experiencing symptoms . 

    No doubt I will be started on Carbimazole once results of latest blood test are known. 

    Very frustrating this yo-yo ing from hyper to hypo. 

    Do hope you get some answers from your endo/GP. Some knowledgeable people on this forum who have experience of this. Good luck!

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    • Posted

      Hi. Thanks for reply. Through out the years I have had an underactive thyroid I have always had to up my thyroxine. This is a first to reduce meds. And Ive never been to a specialist about my thyroid.

      Thanks P

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  • Posted

    I'm not familiar with going to hyper after being hypo for 32 years, but perhaps it's caused by changes in your body as your getting older, such as hormone levels?  Not sure though..  do you mind if I ask how old you are?  Also.. foods we eat can change our levels.. have you started eating more fermented foods or raised your salt intake lately?  Stress can also cause changes in our thyroid levels.  Starting new vitamin, supplements and medications is another cause....

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  • Posted

    I too have been under active for 30 years. About 3 years ago it started to go the other way, I think mine is the menopause that changes things. I was on 125 mcg for all those years, dropped to 100 mcg and have started feeling over medicated again. I am doing alternate 75 mcg and 100 mcg. 

    I will go for a blood test in about 8 weeks to see how things are going.

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    • Posted

      Hi. Thanks for reply. I was on 175 now down to 150mg blood test in 8 weeks to check. Been told because of depo injection I wont or shouldnt go through the menopause. But I suppose age could have something to do with it

      Thanks P

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    • Posted

      That is much the same as me I was on 125mg thyroxine started getting fluttery heart missing beats had to reduce to 100mg fine for a while then same symptoms had blood test and had to reduce to 75mg am still on that and so far so good. I took a fruit and veg supplement for about three months and it really upset my hypothyroidism so always best to check what we eat. I feel the 75mg is too low doctor seems to think it's not am waiting another month to see what happens - achey joints and would sleep easily when I sit down always yawning and have busy life with our son who has worst form of MS could do without being tired all the time. 

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    • Posted

      Yeap the same here. Palpitions skipping a beat ect. Then dr said it's your fibro flare up. But no I was right it is thyroid playing up yet again. I haven't noticed any food causing problems to be honest.

      Its not easy looking after family when you dont have the energy but we find it

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    • Posted

      One last reply on this issue - I can't remember the supplement I took it cost £50 for 60 capsules and it really upset my thyroxine eventually had to go to doctor because my heart was skipping beats and I had symptoms of taking too much thyroxine.  It was a nightmare and I tried to forget about it and carry on but then it felt as though I didn't have enough thyroxine. Eventually had blood test and doctor said my tests were fine, I couldn't believe it. I thought I would be increasing it by at least 10. I then stopped the supplement and eventually I got back to normal. My doctor said any active ingredient will upset your thyroxine and until then I don't remember anything else upsetting me. Seemingly aloe Vera is another thing we can't take.  

      Oh well suppose we just get on with it no other option. My grandmother, mother, one of my daughters, one of my granddaughters, the other one is borderline and of course myself all have hypothyroidism and my son has MS and now I am told thyroid and autoimmune diseases such as MS are all connected. 

      Hope everyone feels good soon 

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    • Posted

      Glad you mentioned the aleo vera I was going to start to have it as adrink once in awhile but not now. Yes it seems to run in the family there is 5 generations in my family who have thyroid problems.
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  • Posted

    Depo injection? Not sure what this is. I am 54 and have been underactive since birth. Was on 200 mcg for many years but it was recently reduced to 175 mcg. Waiting fòr blood test result now but GP surprised me by saying that he wants to reduce it further depending on result. Haven't had any weight loss. Periods stopped nearly 4 years ago.

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    • Posted

      I have endometriosis and the depo stops my periods which make my endo dormant. By the look at replys it seems that us ladys of a certain age then the thyroid plays up. Must be something to do with the menopause
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  • Posted

    There seems to be a pattern emerging here.  Going from underactive to hyperactive for no apparent reason.  It happened to me too, 20 years taking 100mg Levothyroxine and suddenly within 2 months of being within range according to regular blood tests, I'm hyperactive and way out of kilter (and also prescribed beta blockers for high blood pressure). 

    6 months later in only 75mg (and down to a quarter of  beta blocker), now I'm ok.  I was Repeatedly asked, have you lost weight?  Changed diet? Stressed?

    It has to be the bloody menopause!  Wish theses endos knew as much as we do, by sharing our stories we can reassure ourselves we're not going barmy and help others be aware of what might happen to them.  

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