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Unexplained Chronic Nausea

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sue303
sue303

Hi all

I am writing in the hope that someone can relate to what I am going though and maybe offer some support or advice.

Seven weeks ago I woke up feeling extremely nauseous. I also had bad muscle pains, joint pains, a headache every day (now gone), and felt extremely fatigued; so fatigued that some days I find it hard to walk around as my legs feel like paper on bad days. I have been like this every single day for weeks. I have actually had similar symptoms on other occasions in the past. On those occasions, it has usually lasted about six weeks and then disappeared. This time it is showing no signs of abating. I lay on my bed most days feeling too sick to move around.

Because this has happened before, my GP thinks it might be M.E and I am waiting to go to a clinic to see someone about it. Meanwhile, each day is like torture to me.

I wake up very nauseous as soon as I open my eyes. I can not bear to eat until around midday but usually feel slightly better for eating something....if it does not give me bad wind and I end up burping for hours. I am just eating tiny amounts often. I have acid reflux but my throat isn't sore with acid. I also have a hiatus hernia though it's very small. I am on PPIs for this.

I can not take anti sickness meds as I react badly to them. No doctor will give me them so I have to brave this without any help. I cut out caffiene, I don't drink alcohol, and I eat a healthy diet...I have to because I have chronic kidney disease, my cholesterol has suddenly gone up, and I am high end of normal for blood sugar. In fact, I am on so many restrictions it seems sometimes like there is only veg left!

I am waiting to see a gastroenterologist as my GP is hoping he will do a colonoscopy to rule out bowel disease. I don't want it. I have to have CT scans every six months because I had kidney cancer two years ago, and I get so anxious beforehand and go to pieces. I have one due in two weeks that is causing me a huge amount of stress. I have to have the dye this time too and I am scared of it. I have claustrophobia.

I have been to the doctor about five times in seven weeks. It has been deduced that I am depressed to boot...who wouldn't be? Otherwise all blood tests have been fine and physical exam doesn't point to anything. I have just done a stool test and awaiting results. My GP really doesn't know what's wrong with me. I ended up in casualty one day as I collapsed on my stairs. I had been in a bad way for about five weeks. My sats were okay, blood test fine, chest x-ray fine..sent home.

I am starting to go out of my mind methinks! I am worried and sometimes it feels like I can't breathe through such stress. I get light headed, feel almost depersonalized, and sweat with fear at times.

Has anyone suffered in this way and for so long without diagnosis? I would welcome any kind of response.

Thanks smile

4 likes, 111 replies

111 Replies

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  • Missliss88
    Missliss88 sue303

    Posted

    Hi sue, have you ever heard of CVS? also known as Cyclic Vomiting Syndrome? It's unexplained episodes of nausea that can last a short time to several weeks..with periods of feeling fine inbetween...headaches are apart of this as well as anxiety in the morning before I even open my eyes...it's a debilitating illness...they compare it to what chemo patients go through... there is also another one like this caused by ingesting Marijuana. My episodes are usually in the morning and only in the morning..after about 4 hours I'm back to normal and cam start my day...but throwing up like that for hours on end every day for weeks takes a toll on you...it's become weak. It's really awful. I've been seeing a GI Dr for several years...had my gallbladder out, which is "what the problem was" but since that gallbladder and umbilical hernia surgery I've gotten severely worse...I feel like I have to fond a new job every few months cause people get p*ssed when I have to call out...I end up in the ER at least twice a month. Or more..
  • SunRae
    SunRae sue303

    Posted

    Hi Sue! I've been having almost the exact same problems and this is been happening for many years since I've had mononucleosis. It has gotten worse within the past 4 years since I recovered and has been affecting my lifestyle and my education to a point where I don't know what to do. I've gone to doctors went to the ER so many times and they still cannot Truly find anything wrong. He even did all the blood work and said everything was healthy, which I took with a grain of salt since I've heard that many times every time I would go over. Obviously something was not right since I was in such discomfort in the nausea would build up within months of having these fits. Just like you this would go on for a good couple days sometimes months, even losing up to 20 pounds in a week and then would dissipate and not come back again until maybe six months Max later. If you have any advice from the Past Experiences, and he won don't be shy.
    • amy51444
      amy51444 SunRae

      Posted

      After researching tirelessly to try and help diagnose my 8 year old daughter, one thing that caught my attention was when you said you had mono. Ive read in my researching that very commonly after people have had mono, it develops into POTS. I don't know how to really explain what it is other than a rapid increase in blood flow.  It has a pretty simple test that you could even do at home.

      I dont know if that helps, but I figured it was worth a shot.

  • Rose96338
    Rose96338 sue303

    Posted

    Hi your problem sounds very familiar, I have had something similar for years. It can last for weeks at a time. I can nearly tell when it's coming on as I feel quite full when I should be hungry and then maybe the next day I get pain like colic in my chest, terrible nausea, headache and a feeling like "De Ja Vous" my head just floating and feeling really sick. I was on acid melds for years but I have given them all up after reading an article on line saying how bad they are for you because your body needs some acid and they just kill it all. Apple cider vinegar Betaine and Probi 20 Billion, all available at the health store. It's definitely related to your medication or certain foods you are eating but it will clear up. Hope this helps.

    Ella

    • renie508
      renie508 Rose96338

      Posted

      I also take probiotics. I will try the apple cider vinegar. I have been on Cymbalta for fibro for about two years now. I tried getting off so went from the 60mg to the 30 and seemed to start with the nausea at that time. I should maybe try to stop it by tapering off the 30 mg. However it helped the fibro pain but read all the side effects so tried coming off. I take pain meds for the fibro and back pain. I should probably find a nutritionist. I was also thinking gluton. I also get bad pains in my chest BP goes way up been in the ER for that too. I also have edema so I am on a diuretic. Norvasc for BP seemed to make it worse. Took me off forget that put me back on but at low dose 2.5mg. Now I have one foot and up my leg as the day goes by extremely swollen. ER sonogram, no blot blockages and a chest exray and home I went. So I continue to have a very swollen right foot. No answer for that yet. Can't get most shoes on. I don't wear closed shoes so my open sandles or flip flops that I've worn for years. Only 2 pairs of shows I can get on because of the right foot. And everyone notices and asks what happened"I don't know" is my response. I've looked it up and seems to get many complicated issues so I AM SO VERY FED UP. I feel like walking medical crisis waiting to happen. Sorry for the lengthy auto biography!
  • Nita1955
    Nita1955 sue303

    Posted

    Hello Sue303,

    I am the mother of a 17 yr. old daughter, who has PCOS(Polycystic Ovarian Syndrome). The doctors still do tests on her, to try to figure out, what they can, but from my own knowledge, I think her symptoms mainly come from PCOS. She stays feeling ill all the time & all over. More sensitive to certain foods, that she wasn't before. Her life is being ruined because of this & not been attending school, but will try this week. Her P.A. to her Endocrine Dr. said she could get rid of a lot of problems if lost a lot of weight, which has been unsuccessful & I agree, but it is hard to lose if she is insulin resistant, but forget if it ever goes away, but I know it can be helped. Her testosterone has been higher, at her 2 week ago check up, which both insulin resistant & it, made her lose her hair on top, 2 1/2 yrs. ago, but doing fine now. I have read, that your health starts with your gut & have been giving her Probiotics & her Dietician said that for her to take a cheaper one called Culturelle Probiotics, than the Probiotic America, that I came across online, that sounds very good, to change someones life. It costs more that I can really afford, since I am applying for SSD & my husband is disabled. I told her Dietician, recently, that I was wanting to give her Garcinia Cambogia, for weight loss, that Dr. Oz on U.S. TV, endorses. Ophra Winfree, Kim Kardashion & the actor, John Goodman, have lost on it. I also asked my daughter's Gasterenologist about doing the Revolutionary Cleanse for her Colon, that Dr. Oz endorses & suggests to take it along with the G.C. Her dr. said to wait to see the outcome of her colon xray, to see if she needs cleaned out. You might see a OB/GYN or someone to check for PCOS. I hope this has helped a little & I hope to hear you will be feeling better soon. You might read up on Fibromyalgia, that my husband has, Metabolic Syndrome, my daughter probably has, that also effects blood pressure, but symptoms like PCOS. He has more side effects of Fibro, than we knew there could be & the same with her PCOS. Her Therapist will be good support, since she recently told my daughter, that she has had it for 10 yrs. & goes to a specialist & they still are trying to find out the mystery, on how women get it & how to treat it. She explained how their body works, better than any dr. has. Nita1955

  • renie508
    renie508 sue303

    Posted

    Hi Sue303, I am also having nausea everyday. So far no explanation as to why. I've been to my gastro Dr. Last summer when this first started. Have had my gall bladder removed over two years now so not that. Had ct abdominal scan last year, seemed normal. Blood tests were normal except for my creation level because of my kidney, I have a stent in my right ureta because of a blockage, I should have surgery for this however I declined because it's quiet lengthy 3 1/2 - 4 hours so I have been continued with stent replacements for about 5 years now.. Many different health conditions, fibromayglia, IBS, High BP, to name a few. A dermatologist for weird break out of Skin lesions that turn into sores that look like cigarette burns. This ointment that ointment cortisone ointments biopsies cultures. One recent sore culture came up mxsa. Put me on Doxy. Anti biotic 2 times now went to infectious dead. Dr. He did 3 blood tests for some kind of bacteria infections all negative. And on a sulpha antibiotic now off. That made nausea the worst. Been off them noe for 4 days still very nausea. I can't understand how these Drs can't figure this out. Have you had any results since you wrote this medical problem? Are you still on this site?
    • lynne69494
      lynne69494 renie508

      Posted

      l had nausea every day from waking to bedtime, worse with movement, couldnt eat, lived off tea and oat biscuits, tried chemist meds, then sript anti nausea, no change, saw gastro after months of it, he did see a bit of inflammation but not enough to explain severe nausea, but put on omprazole after 2wks settled it 90percent, months later still on them and double origonal dose, as always underlying and flares up easily, despite also changing diet to small plain meals. no lactose. l had taken one anti b daily kefalex for 2yrs as preventative to intersticial cystitus flare up, stopped them when nausea started. also got hbp ibs, but had fatigue pain and other symptoms increasing over last year, including a skin problem on my face, forhead and cheek, feels a bit dry an scaly if i rib it feels like skins coming away, and gets sore, dont kn ow if it all fits fibromyalgia gp agrees and waiting to see rheumy. Gastro told me straight he didnt know, bizarre, dissapointoing to say the least, horrible feeling. l send my best wishes to all the people of this site who are suffering severe symptoms long lasting of whatever type who are still trying to get a diagnoses. seems to be many good luck to all
  • barnabas65162
    barnabas65162 sue303

    Posted

    Hi, I'm in hospital and I have something like that, it's called functenal vommiting syndrome.

  • brandon16592
    brandon16592 sue303

    Posted

    Hello everyone.  I had an episode of this as well and still do considerably.  Your GI tract is fine and im speaking to most of you and myself and this is going by all the negative test results everyone receives.

    Two explanations for these nauseated occurances are;

    Anxiety, the pressure of todays society can cause many individuals too feel nauseated.  Why in the morning?  Well your at your weakest state in the morning, your pain thresolds are at a low and your energy levels as well.

    Sleep apnea, this is a possibility as many people don't know what goes on at night.  Lack of oxygen to the cells can cause low energy and nausaution as well.

    Heart condition?? doubt it

    Keep up with a good diet and exercise.  

    After nauseation subsides, eat a small meal, wait an hour and go for a light jog.  The light jog will encourage oxygen to the cells.

    Take up mediation, It places yourself in the present moment, keeping your brain strong and focused helps regulate how you cope with issues.

     

  • Hellsbells33
    Hellsbells33 sue303

    Posted

    I too suffer from similar symptoms.  I have bad stomach ache/nausea daily until around 2pm though I never feel good overall and my upper part of my stomach also swells terribly quite frequently.  I always have a full feeling in my gut (that seems to be worse on left side of my gut even when I am not constipated or full from eating.  I have pain on left side of my abdomen but can't tell if it's the bottom part of my stomach, or part of my intestines.   I also have been looking into kidney/bladder problems etc.  I have passed out 3 times in past 2 mos when my  nausea and pain was exceptionally bad.   I randomly experience odd bouts where I will be overcome out of the blue, with a severe bout of hard to describe dizziness that causes me to suddenly list to the right.  It lasts a few seconds and then I am fine.  

    BUT my big question to many of you is re: the fear of a colonoscopy/  THat makes no sense to me because I have had 3 (starting at just age 35) and it's hand's down the easiest test I have ever had.  You are not even conscious for it so what exactly is there to be afraid of?

  • katie37955
    katie37955 sue303

    Posted

    Hi Sue I know how you feel as I have had problems with feeling sick and being sick for awhile just feeling sick for 2 months first then a little while later that in the last 2 weeks been feeling really sick and throwing up 5 times in 2 weeks then last Wednesday started having sharp pains in my belly and belly button and a little bit of pain in my pelvis that is gradually a little bit more sore than usual and the pain in my belly is getting worse and I,ve been to the doctor about it but at the moment haven't done much about it except a blood test which was normal and then I tried to explain that I have had this sickness problem for ages and all they gave me was Gavascon for the pain but it made me throw up been given it because of chest pain that is just heart burn but when I phoned a out of hours nurse she said said if it,s chest pain that that gets bad it,s not heart burn it,s chest pain. After my appointment during the night I felt worse and wanted to be seen by a doctor straight away if possible but they said no because I was seen the day before and just thought I had a stomach bug when I haven't a bug do,nt go on this long. So instead a nurse spoke to me and she said she would put me as a emergency but not until around November but then she said I,ll get you in as soon as I can and she ordered me some Paracetamol for the pain for now it,s not in yet but has been ordered so for now for the pain I,ve only got Germaline cream to put over my belly when it's bad enough and when I,m sleeping as I,m not sleeping much so tried that and a hot water. I got so fed up of my serve belly pain that I phoned a Nhs number for advice and they but me through to a doctor that took too long so instead I felt worse serve stomach pain and bad sickness so risked it and phoned a ambulance yesterday because I was desperate because of the pain but even though it wasn't that serious just serve I wouldn't of done it otherwise they were very understanding and just advised me to talk to a nurse and a emergency gp but still wasn't serious for one so will have to put up with it till Tuesday and if the doctor's say I can't have a earlier emergency appointment at my doctors surgery than I will go to A and E instead and be seen I just can't cope with this pain anymore I have had it for 4 days the stomach pains now and it feels worse than Ibs which I have literally crying because I want to be seen so I sort of know what might be wrong from me apart from the ibs. Been retching a lot too without really being sick in the week and today and eating food makes it worse. Katie x

  • rick81277
    rick81277 sue303

    Posted

    Hi sue303. I'm so sorry to hear about your medical issue. I promise I can relate. I have cancer went through surgery, chemotherapy and, radiation treatment. After I was finally a year. Now out of blue I'm nauseous every day and it's gone on every day for over a year straight now. I need help ASAP !!!

    • rick81277
      rick81277

      Posted

      A quick correction from my earlier reply to you. I meant to say after a year went by from my treatment of Cancer is when all of the every day nausea started. I'm miserable because of it and yes it's as if I'm being tortured every day of my life. It's absolutely terrible.

  • terry08396
    terry08396 sue303

    Posted

    Sue.

    Did you ever get fixed. Been going through the same thing for almost 2 years. Every kind of doctor i can think of has seen me. Plenty of scopes through front and rear. Still nothing. Also have lost weight even though I have always been thin. Miss my bus driver job but my digestive system with dizziness and sometimes chest pain has me confined to the couch. So sick of this.

    Terry

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