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Unexplained Chronic Nausea

Posted , 78 users are following.

sue303
sue303

Hi all

I am writing in the hope that someone can relate to what I am going though and maybe offer some support or advice.

Seven weeks ago I woke up feeling extremely nauseous. I also had bad muscle pains, joint pains, a headache every day (now gone), and felt extremely fatigued; so fatigued that some days I find it hard to walk around as my legs feel like paper on bad days. I have been like this every single day for weeks. I have actually had similar symptoms on other occasions in the past. On those occasions, it has usually lasted about six weeks and then disappeared. This time it is showing no signs of abating. I lay on my bed most days feeling too sick to move around.

Because this has happened before, my GP thinks it might be M.E and I am waiting to go to a clinic to see someone about it. Meanwhile, each day is like torture to me.

I wake up very nauseous as soon as I open my eyes. I can not bear to eat until around midday but usually feel slightly better for eating something....if it does not give me bad wind and I end up burping for hours. I am just eating tiny amounts often. I have acid reflux but my throat isn't sore with acid. I also have a hiatus hernia though it's very small. I am on PPIs for this.

I can not take anti sickness meds as I react badly to them. No doctor will give me them so I have to brave this without any help. I cut out caffiene, I don't drink alcohol, and I eat a healthy diet...I have to because I have chronic kidney disease, my cholesterol has suddenly gone up, and I am high end of normal for blood sugar. In fact, I am on so many restrictions it seems sometimes like there is only veg left!

I am waiting to see a gastroenterologist as my GP is hoping he will do a colonoscopy to rule out bowel disease. I don't want it. I have to have CT scans every six months because I had kidney cancer two years ago, and I get so anxious beforehand and go to pieces. I have one due in two weeks that is causing me a huge amount of stress. I have to have the dye this time too and I am scared of it. I have claustrophobia.

I have been to the doctor about five times in seven weeks. It has been deduced that I am depressed to boot...who wouldn't be? Otherwise all blood tests have been fine and physical exam doesn't point to anything. I have just done a stool test and awaiting results. My GP really doesn't know what's wrong with me. I ended up in casualty one day as I collapsed on my stairs. I had been in a bad way for about five weeks. My sats were okay, blood test fine, chest x-ray fine..sent home.

I am starting to go out of my mind methinks! I am worried and sometimes it feels like I can't breathe through such stress. I get light headed, feel almost depersonalized, and sweat with fear at times.

Has anyone suffered in this way and for so long without diagnosis? I would welcome any kind of response.

Thanks smile

4 likes, 111 replies

111 Replies

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  • CAJUNBEE
    CAJUNBEE sue303

    Posted

    I ha e been very ill for over 6 weeks with5 diagnosis that have nothing to do with what's wrong with me last ultra sound showed my pankris is not normal waiting for appointment for GI doctor. Sounds like to me your pankris is not work Google pankrintitis u can get malnourished and week and very sick u can even die. I am 5 weeks of nothing from damn doctors I also have thyroid issues left thyroid is inlarged waiting for biopsy now going on 5 weeks. I pray for u because the pain is worst then child birth x2. If I dont make much since I just woke up trying to drink coffee and cant because it feels stuck in my throat. I will respond if u reply.

  • Charmomster
    Charmomster sue303

    Posted

    I too, have had chronic nausea for 18months. It started following an upper respiratory virus. It starts as soon as i wake up along with sweats, fast heart rate and a tremor. Also have weight loss and can't gain any weight.I have been to so many Drs. and I finally have a diagnosis of hyperthyroid. I also have a high insulin like growth factor, low vitamin D and high calcium. I have had every test you can imagine. The 1st endo I went to to told me to go home and reduce stress. Because my numbers were slightly within normal range they wouldn't do anything. Thyroid can upset every system in your body. Drs. 1st reaction when tests come back normal is that it's anxiety. I spent 5mo. treating that and I just got sicker. i was tested for infectious disease, gastro, neuro, cardio...they checked everything. I'm the healthiest sick person I know. I refused to give up. I'm a 64 year old grandmother who loves life and this has disabled me. I truly know the additional stress of feeling sick all the time and the despair of not knowing what it's from and if it will ever go away. I am unable to tolerate any anti amedics, so just have to endure. It lasts a minimum of 7 hours a day and I rarely vomit. I found an endo at the Cleveland Clinic who treats the patient and not the numbers. There is a small hot nodule. I've started on Methimazole and will schedule a partial thyroidectony this week. No guarantees, but I have to take the risk cause this is not quality of life. My message is DON'T GIVE UP and you're not crazy!

  • jennifer25092
    jennifer25092 sue303

    Posted

    i know this is really old thread how are you doing now? i have been dealing with constant nausea for over a yr

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