Update 😊

Oh Michelle I feel for you please feel able to privacy message me.your cyst aw as found by ultrasound ? Have you had an Mrs road my ultrasound showed complex cysts and Mri was the thing that showed up endometriosis.i also have a lesion on bladder that needs to be looked at that mri showed up.my cysts on ultrasound showed solid parts mural nodules septations all a concern but ultra sound cannot pick it up the definite cause as I even asked the sonographer could this be an endometrioma and she she said definitely not.michelle please please do not worry until you see the oncologist he will really look after you.your ca is lower than mine it's such a good sign.i have worried myself sick and apart from the lesion on bladder I'm so happy that even tho endo is painful it's not what I thought it was. please private message me anytime lots of love Michelle xxxx

Hey Michelle,

I was originally diagnosed with an 8cm dermoid cyst on my left ovary but a recent mri has revealed that I have an endometrioma, was a bit of a surprise as like you ice not really had any typical symptoms. I have a mirena coil so haven't had a period in a while although I do get a brown sticky discharge occasionally which apparently can be a sign. I occasionally get a pulling/sharp pain which I'm now assuming is the endo. I'm waiting on a date to go for surgery either for a clean up and removal of cyst/ovary or hysterectomy xx

See Michelle bryony and I both were told we had different things on our ovaries,mine was a huge concern they had a mte meeting on me last week and urgent Mri and oncologist two days later,and bryony they thought a dermoid but also found to be an endometrioma.and only mri picked this up not ultrasound and it's more definitive.my ultrasound had concerning features all over it as you know. please Michelle listen the oncologist told me wed I was a concern as there was solid parts and septations and also mural nodules but he said there was still only a 2% chance of it being ovarian cancer and a much higher chance of it being borderline and an even much higher chance of it being benign with all the solid parts. please please be reassured many of us have and are going through this and as you say you have no other lesions anywhere so whatever it is I assure you it is contained within the ovary 😊I now think I have deep endo as ultrasound doesn't pick it up but mri showed deep endo on ovary ligaments and there's a lesion on my bladder,and all the symptoms I have had is heavy periods and frequently weeing.not much period pain at all.yours could even be a serious cyst as a lot of them have solid parts and as you can see from myself and bryony ultrasound showed different things to the mri.when you go to oncologist ask for an mri,explain it would make you feel better to just see if it can be diagnosed from this.im still worried about this lesion on bladder being picked up but if I have endo elsewhere it's bound to be another on there now and all the symptoms I have is going for a wee frequently especially at night . I really hope this helps you Michelle as I was panic stricken too and your scan showed nothing except what is in your ovary so come on think positive and I'm sure it's all going to be ok 😊😊😊

Hello Tracey 😊no they didn't tell me anything but my story is very different to yours,remember I have been followed by ultrasounds since November and march scan showed concerning features,so they rushed me through with urgent mri on Monday and gyn wed. I am

Not sure Tracey as I've only ever had this experience,does anyone else have any experience on this so we can help Tracy please? Xxx

Hi Tracey

I had an mri and no I want told anything at the time, I think I was about 10 days before the nurse phoned me to give me any results. I think the scan pictures need to be analysed and then a report written and typed into their system. Not sure but I think they would maybe contact you sooner if you're mri looked suspicious but I couldn't say for sure xx

Just realised autocorrect spelt your name wrong. Sorry Tracy 😊 xx

Hello Bryony, thank you so much for your reply. I have an appointment booked with my consultant for 10 days after my MRI to get my results. I am just still a little bit confused about my ultra scan results, as she said she could not see an cysts on my ovaries but I still have the pain in my side. Hope fully the MRI will get better pictures.

Take care xx

Thank you michelle for your reply. Xx hope you are looking after yourself xxx

It could be that you 'just' have endometriosis without any cysts. Either way hopefully you'll get answers soon 😊 xx

Tracy feel relieved there is no cyst there now 😊I had months and months of unnecessary scans to finally know by mri I have endometriosis .and the only symptom I got was heavy periods and frequent weeing.the pain you are having could be anything and not even related now to cyst but I can assure you Mri will diagnose you.i would never have known about my endo otherwise.but I can now sit and think all these years with these heavy prolonged periods there was my answer.i have to have a cystoscopy to check bladder and hysteroscopy to check. Womb lining all things picked up by mri that I knew nothing about.do you have pain every day or intermittently Tracy? Xx

Cyst found in my womb and fibroids. Pain every day now. My ca125 came back at 140, I think because of history with my parents. I have since found out as well that my nan from my mums side had cervical cancer and my dads mum had stomach cancer. I am a bit worried because of what happened to my parents. But so glad that they are making sure that everything is ok x

Thank you so much Bryony. What can they do for endometriosis? I have never had anything like this before. X

Yes that's the main thing as I would never have known I had endometriosis but wish I never had it !!! Fibroids can cause pain in themselves how many do you have ? How are your periods ? Mine are horrendous 8-9 days heavy clots and brown discharge inbetween but niño know all endo symptoms wow !!!!ive suffered 30 odd years and going to think seriously about a hysterectomy to get rid once and for all. ca can be raised for absolutely nothing Tracey even fibroids raise it !! and as u have no cysts in ovaries please worry no more xxx

Do you wee a lot Bryony x

Can't say I do lol, my husband calls me 'iron bladder' 😂 I'm terrible for drinking diet cola though maybe if I drank more water I would wee more xx

I'm not sure what they can do, I know there isn't a cure it's really about alleviating the symptoms/pain. I'm still in 2 mins whether to go for the hysterectomy, I've been doing a bit of reading and it seems that you can still suffer with endo even after hysterectomy...I think it can grow back again somehow...well in some people I guess not everyone xx

So have I beyond and it's all a bout pain relief endo diet and reducing symptoms.i also read after a hysterectomy it still can return.is your endo only on ur ovaries ? Even if they do a laparoscopy it can come back.im not in pain only wee a lot so I'm

Going to see how I go xx

Sorry I meant to say so have I been reading x

Really that's a good thing as it's not on your bladder was it anywhere else in mri showing up ? X

I think it must be on womb and tubes as well as ovaries as they are recommending the hysterectomy but obviously they won't know how bad it is till they do the laparoscopy. I told the gynae to only remove the cyst and/or ovary if the rest doesn't look too badly infected but I'm now wondering if I should just have it all removed if the endo is likely to grow back again such a tough decision to make. I know I definitely don't want to suffer torsion of the ovary again as that was horrific...would rather be in labour again!! Xx

It's a personal choice Bryony,mine must be quite bad if it's been spotted in a few places but my left ovary is normal xx

Well that's good that it's only one ovary, unfortunately they told me after my mri I have smaller cysts on my right ovary. In my heart I think I know I'll probably need to have the hysterectomy...gutted but my health is obviously more important xx