Update after hospital yesterday but upset

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Went to physio pelvic floor and she was a lovely lady says I have all three prolapse vaginal wall ,rectocele and cystocele ibwas devastated . feel really bad told no heavy lifting and no long walks and if shopping to sit down as much as I can . feel as though I have been kicked in the teeth , I'm sore after physio but now given the exercises to do . how do you cope day to day with walking and feeling the bulge there all the time will this mrean surgery she never said but did say, that its a 2and 1\2 if gets to a 3 1\2 that would be surgery is that right x so very very down today

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  • Posted

    Is it a vaginal vault prolapse Weesue? Because the vaginal wall prolapsed anyway with a rectocele and cystocele? Unfortunately the physio won't help the prolapse but will hopefully strengthen the other pelvic muscles. 

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    • Posted

      Both of the above and the vaginal wall its sdo uncomfy and gets sore can't do my normal stuff but hopefully physio will help s but x but if not I presume it will be surgery but that will be long time away till physio has sorted out all of me the best they can xgoing to start swimming since can't walk to far without pain x

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    • Posted

      If you have 3 prolapse then to be honest I think you would be better off having surgery but remember that is entirely up to you, nobody can insist. I've known some ladies live with prolapse even without a pessary but it does affect the quality of life. You need time to think about it obviously and if your physio is experienced then see what she says. Doing pelvic floor exercises correctly will prepare you well should you decide surgery is for you. It could be that you decide on one repair, the prolapse that causes you the most problems first. All consultants are now told to be patient focused meaning that they give you the information and you then decide what is best for you. 

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    • Posted

      Just to add Weesue, there's a lady called Stephanie who regularly posts on this forum. Her speciality is pelvic floor exercises so hopefully she will see your post and give you some advice. You may find some previous posts of hers. She really is the expert in this and is extremely knowledgeable x

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  • Posted

    I'm thinking of you weesue.. Physio is a great thing as it will build up your muscles if yuou do decide to have repair. Xx

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  • Posted

    So sorry to hear your news weesue,

    Physio does help to strengthen muscles in pelvic floor and physiotherapists trained in urogynicology are very good at explaining what is going on down below.

    I found in the short time using a pessary, once you get the right size can help you to lead a fairly normal life but sooner or later my prolapse became more advanced and had to opt for surgery. It became so painful to be on my feet and the pessary kept coming out.

    The whole situation made me feel like I was being robed of my lifestyle. Had to give up my very heavy job and could no-longer go to the gym. Just going shopping was too much. I still tried to go fir long walks to kept my weight din and to stay fit but woukd end up in pain for days.

    They didn't take me seriously when I said it was really bad because I refused to take painkillers. However after my surgery my consultant admitted that they didn't realize how bad it was.

    Anyway take care, I hope you find a solution that is suitable for you, it's not easy living with prolapse.

    Phyl x💖

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    • Posted

      You have brought up an excellent point phyl and that is the importance of having a physiotherapist trained in urogynaecology. Too many women (and I include myself) are probably doing pelvic floor exercises all wrong which is a waste of time and I also admit that I left exercising too late. I think unless we start early as young women following a pregnancy we aren't going to see much improvement. 

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    • Posted

      Definitely agree with you on that point Matron; we should get the chance after pregnancy to see a physio trained in urogynicology and be educated on what can go wrong when we don't do our exercises properly. We need to be shocked into taking it all seriously.

      Been on the my eldest daughter who had three little boys one after another - 2, 3, and 4, she us back at work full time doing 12 hour shifts on her feet, she will be 36 on her next birthday at has started already having incontinence issues. Have tried my best to impress on her the importance of doing those pelvic floor exercises. She dud have a chance to work in the office but found it boring she prefers out on the floor interacting with customers but it is heavy work working in coffee house.

      I think when we are young we are not all good at listening and we think it won't happen to us!

      Phyl x💖

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    • Posted

      I can remember when I was a student midwife (early 1970's) when women stayed in hospital for 7-10 days following the birth the physiotherapist came on the ward every day to help women with their exercises. Obviously she wasn't urogynaecology trained because there was no such thing in those days but at least they got some information. Now you give birth and home anything from 6 hours so there's no chance of any physio involvement. 

      You should try and get your daughter to join the forum, I suggested it to mine (40 in June) but she wasn't interested. 

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    • Posted

      They really don't want to know about any of the detailed history of prolapse. Second eldest will be 34 this year. She has 2 kids, one at 15, the other 5; she is fine but gave herself plenty time to recover properly between them. She never does anything heavy and worked within administration.

      She does tend to keep up with pelvic floor exercises.

      The only time I didn't see physio was after my last child ( now 13 ) , she had a problem high up on the back of her spine where the tissues and skin had not formed right over the spine. They said she would be a mild spina bifida and was rushed/transfered to Yorkhill children's hospital and I went with her.

      So I didn't see anyone else till my 6 week check and in the end Rachael''s back was closed up and the swab showed no sign of any spinal fluid leakage, report that was accidently left at bedside said it was only surface which they didn't admit. Anyway she has never shown any problems so far in fact has been a little monkey and a bit of tomboy.

      I did end up back at GP that time thinking I had this golf ball sized tumor sticking out of my vag... ; she refered me to physio and I was hooked up to monitor to check I was doing my PF exercises strong enough. Despite being 43 at that point and by the time I went back to work the prolapse had pulled back up inside the vag... area but think there still a mild prolapse there it just didn't bother me till I changed jobs and was carrying heavy dishes. Just didn't understand the seriousness of situation or that I could do serious damage if I wasn't carefully.

      Damage is done before you realize sometimes.

      Was told Rachael could have problems when her spine stretches as she grows and if is worrying when she complains of growing pains. But so far no problems and she is 5feet 5inch now.

      Phyl x?

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    • Posted

      Thanks phyl I'm just upset as I have had a real bad time the last four years loosing parents and brother in law then diagnosed with osteoporosis then this happening after I was getting myself fitter now I'm back to square one . and yeah if I walk I get so uncomfy will go with physio till I find what's really going on down there x was just so upset that its all of them I've got x

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    • Posted

      Sorry for your loss, its never easy and takes a bit of getting use to someone no longer being there.

      We always seem to get hit with all of these things at the same time.

      Physiotherapist should be able to explain what is actually happening, mine had a diagram thing and showed me what happened as the prolapse came down, and once I realize I needed the surgery she kept on at my consultant to push to get it done quickly.

      Healing hugs x💖

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    • Posted

      Hi Weesue, sorry to hear your news but to be honest with what you had posted it was a no brainer what was wrong. At least you now have a couple of answers. Are you going to ring and get an appointment to see the GP and to get him to refer you to a specialist? The least you need to have done chick is getting a pessary ring fitted as it may help give you some quality of life. There is nothing worse than trying to walk and feeling part of your lady bits falling out as it gets so sore as you know. My gyn doctor told me no heavy lifting from now on and 5kgs is the max

      ​sorry to hear you are unhappy and yes life can throw some real curve balls at us but remember it can be fixed and you will be ok at least we dont live in the early 1900,s. thoughts and prayers are with you xxxx Kath

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    • Posted

      Hi matron I'm wondering if you can help me. I had a hystorectomy December 2015 and anterior pelvic floor repair left saplpingo oopherectomy and SSF this month I had more surgery for vaginal vault prolapse and bladder prolapse I'm at my wits end because I think I may have prolapsed again I think I can feel a slight bulge again I'm so distressed about it I'm just 5weeks post op just now. Thanks matron in advance.

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