Update On My 2 Days Appointment With 2 Different Urologist

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On Monday I went to see my HOLEP urologist for a rectal echo, doctor said that my prostate is 100 gram and that I need the operation to remove 80% of the prostate, I also asked him about going the medication route, he told me that combo med will take up to one year to work.

On Tuesday I went to see the Green Light Urologist, he had me do a cystoscopy again, I had one done by the first TURP urologist last March. Turns out that he aslo said that my prostate is large but the bladder looks fine and strong. He then filled my bladder with liquid and told me to go urinate. Well I just couldn't, I stayed about 15 min in the washroom trying and trying and trying but nothing came out. I finally asked the staff to give me some time to relax since they kept knocking on the bathroom door to see what I was doing, they told me to take my time and come back and see them later on during the day so I did. Took a nice lunch and drank a coffee, took a long walk, all this time I could feel my bladder full and the urge to urinate. So again I tried and I tried and nothing came out not a single drop, I tried many other times and finally, 4 hours later I decided to go back to the urology department. They had to re-install a catheter again, I did talk about CIC and asked them to be trained by a staff of the department, so I took an appointment for that but have to wait some weeks, now I have another infection so back on Cypro and also very sore from the cystoscopy which is not too pleasant. I also was given the choice of medication, so I have now Tamsulosin and Avodart but this Urologist told me it takes about 3 months to work and to shrink 30% of the prostate. So not sure if I want to start taking them to mess up something else in my body.

So I did ask the urologist why I could urinate before the first event of cystoscopy 3 months ago with the TURP doctor, he didn't really knew what to say other than the prostate is big and blocking the urethra and according to the cystoscopy everything else was normal with strong bladder so he couldn't see any other reasons why I could not urinate at all.

So now I have the HOLEP operation option with a tentative date in the end of July (not convinced they will keep the date, got this date because of my pressure I put on the departement). With the Green Light doctors, he has no date for me nothing for the next 6 months or he could refer me to TURP doctors and get it done within the next 2 weeks or so. Of course if I decide on an operation, it will be the HOLEP one.

My next option is CIC which is blocking me but I'll do everything in my power to try it with a trained nurse in a few weeks or so.

All comments are appreciated

Thanks and God bless you all

John

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  • Posted

    John I should have read this one before I answered you in the other. At least the second doctor give you some things to think about. I hope you can do the CIC with the meds so this will shrink the prostate and you may not need the surgery. Which would be a good thing. The doctor is not going to say anything about the other doctor but the first one messed you up. Do what you fell is right for you. But I would try med and CIC first before any surgery.. Just relax please Ken
    • Posted

      Hi Ken thanks for the message. Yes your right I felt that the second urologist is much more easier to talk too I was talking to him while while we were inserting to a catheter and gave me all the time I need it if I compare it to the HOLEP urologist . In any case once heal from the cystoscopy soreness and infection I will take the appointment for the self catheterization I will start my med as soon as I finish with cypro I'll keep your posted hope you're doing okay thanks Ken.

      John

    • Posted

      Good luck with the CIC. It is important to use the right size. Hopefully you can find someone that is knowledgeable and has experience in educating males about CIC use. I've used Speedicath for more than six months. The Cleveland Clinic has a female RN assigned to catheter sizing and education, this includes watching a video. The nurse has probably seen hundreds of patients and can determine the correct size w/o any hands on. Another issue of mine is I prefer female RNs performing as many procedures as possible.At the CC I've never seen a male nurse or PA in the urology dept. Male urologists don't trouble me.
    • Posted

      Hi David, thanks for the message and vote of confidence, I did ordered from coloplast the speedicath lubricated with a coude 14fr and 16fr, I'm waiting to get rid of my infection first and some soreness from my last cystoscopy, I also have another rectal echo next friday and will also find out about PAE to see who practise this method in the Montreal area where I live. 

      Thanks for the tips

      John

    • Posted

      I've used Speedicath for some time. Get price quotes from at least two suppliers. The advantage of Speedicath is that it is prelubricated and designed for time use. The sheath can be folded in two and carried in a pocket.

      I'm fortunate in that I've never experienced any pain during a cystoscopy or from the lidocane injection.

       One risk, with all catheters CIC or Foly,is UTIs. It takes two or three days to obtain the results of the lab culture, as the sample has to be observed overnight. The test identifies the antibiotic likely to be most effective, although some MDs will prescribe an antibiotic on the basis of the dip stick test, awaiting the lab report.

      The TRUS is a good idea.It is painless and when used in conjunction with the cystoscope provides a more thorough view of the prostate.

    • Posted

      Your experience with folding the Speedicath is different from most. While Speedicath is my favorite catheter, I find they cannot be folded for more than a couple of hours before becoming kinked, twisted, and difficult to use. Even more so with a Coude (bent) tip which has to be oriented properly. For that reason, I carry Speedicath's in a back pack, inside a card board tube. Keeps them straight. 

      As to UTI's, only symptomatic UTI's should be treated when you are self cathing. Even a positive cuture is not an indication because asymptomatic UTI's (colonization) is normal and harmless. Unfortunately, most non-specialists (and some specialists even) do not understand this. For example, every time I walk into a "doc in the box" and get a urinalysis they always give me antibiotics because my leucocytes and sometimes my nitrites are positive. I try to explain to them that I don't have a symptomatic UTI but they don't get it. Sometimes they literally force the Rx on me so I have learned to take it gracefully and then toss it. 

      Jim

      Jim

    • Posted

      Somehow I missed your message. I'm attempting to phase out the CICs after the Rezum, but still need them to assure that the Rezum is working. PVRs have been in the 150ml. range since the procedure in May, which for me is a dramatic instrument. I don't even carry the Speedicaths in my pocket, I leave a few in the car.

      My urologist prescribed Nitrofuran, for use as a prophylatic if I feel I need them. However the last two urine cultures were negative so I don't take them. I have a mild issue with GERD and might have mistaken the abdominal discomfort for a UTI. Never any fever, visible blood, or painful urinating, so I feel I'm safe.

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