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It's been a while...now ready to face a bit of reality. Last post was seeing the GP for referal to Reumatology. This didn't happen...'you are a work in progress' says doc. Next stage before being referred is more blood tests and Xray, and a low dose of Prednisolone ( which made me feel ill and more symptoms than I already have, so stopped them) Results...moderate OA of hips, and bloods 'normal. Doc still thinking it is more likely to be PolyMyalgiaRheumatica...so this time he gave me a mega 20mg dose of soluble Pred.once daily. One dose was enough to prove I absolutely cannot take these steroids. Symptoms went into overdrive with extra heart pain/headach/nausia/ insomnia (was up the entire night in a state if anxiety and mild hallucination), plus the usual, swollen lega, breathlessness and no relief from muscle pain at all. Am not sure whether depression was from the drug, or because it is all getting me down...especially after attending Epsom hospital orthopaedic clinic, where I stood for a couple of hours in a hot portacabin (OPD). Had to go home without being seen as I couldn't physically stand any longer and there were no seats available. What a waste of time and misery making!
Sorry to rant on, but am now of the opinion that I'd be better of easing myself along with the dis-ease than making things worse.taking the pill route. To be totally honest, I stopped reading posts on this site because it made me feel bad hearing how you are all suffering without much hope or help, but have to admit it is a relief to vent with fellow sufferers...so hope this is not making you feel bad as well???
Am praying for you all for better days ahead.
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