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update with fellow sufferers.

Posted , 10 users are following.

chickabee
chickabee

Hi all,

It's been a while...now ready to face a bit of reality.  Last post was seeing the GP for referal to Reumatology.  This didn't happen...'you are a work in progress' says doc.  Next stage before being referred is more blood tests and Xray, and a low dose of Prednisolone ( which made me feel ill and more symptoms than I already have, so stopped them)  Results...moderate OA of hips, and bloods 'normal.  Doc still thinking it is more likely to be PolyMyalgiaRheumatica...so this time he gave me a mega 20mg dose of soluble Pred.once daily.  One dose was enough to prove I absolutely cannot take these steroids.  Symptoms went into overdrive with extra heart pain/headach/nausia/ insomnia (was up the entire night in a state if anxiety and mild hallucination), plus the usual, swollen lega, breathlessness and no relief from muscle pain at all.  Am not sure whether depression was from the drug, or because it is all getting me down...especially after attending Epsom hospital orthopaedic clinic, where I stood for a couple of hours in a hot portacabin (OPD).  Had to go home without being seen as I couldn't physically stand any longer and there were no seats available.  What a waste of time and misery making!

Sorry to rant on, but am now of the opinion that I'd be better of easing myself along with the dis-ease than making things worse.taking the pill route.  To be totally honest, I stopped reading posts on this site because it made me feel bad hearing how you are all suffering without much hope or help, but have to admit it is a relief to vent with fellow sufferers...so hope this is not making you feel bad as well???

Am praying for you all for better days ahead.

Shalom

Chickabee

 

0 likes, 43 replies

43 Replies

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  • kaz_40
    kaz_40 chickabee

    Posted

    fibro can cause depression, Ive had depression for a while but having fibro has worsened the depression. push to get a referal to see a rheumatologist keep battling dont give up you will get their. gentle hugs
  • PiliPalaB4ch
    PiliPalaB4ch chickabee

    Posted

    Hi chickabee I am in the early stages of diagnosis too. I feel like a pin cushion with all the blood tests and referrals I have had, x rays that tell me me I have O A in my spine, specialists that tell me 

    I have hypermobility syndrome etc, but no one has yet said I have Fibro properly! I am lucky I have a sympathetic GP who believes I have Fibro and referred me to rheumatology - but they have referred me to CMAT, and I am still waiting. There are days I despair, but here I have found lovely people who understand my pain, who keep me positive and really help me get through the bad days. Keep going, keep pushing to see the right professionals, share your problems here because guaranteed someone will have an useful suggestion for you! You are not alone, that is what I have learnt here! Onwards and upwards!! Gentle hugs! 

  • kaz_40
    kaz_40 chickabee

    Posted

    chin up we are all here for you? through good days and bad? we all have bad days thinking of you gentle hugs xsmile
  • jemini
    jemini chickabee

    Posted

    Don't ever give up. We're here and all fighting alongside you. My doctor got annoyed at me when i mentioned a rheumatologist, told me they can only tell you what i have, that you've probably got fibromyalgia and there's no cure or effective treatment. I told her that i insisted on being referred as i've had a few years of them telling me i'm depressed or have a recurring virus or endless blood tests. My appointment is in 2 weeks smile small victories worth fighting for. Good luck Chickabee, gentle hugs xx

     

    • kaz_40
      kaz_40 jemini

      Posted

      smile well done you for insisting on seeing a rheummy and getting an apppointment a small victory but an important one gentle hugs
  • chrissie2015
    chrissie2015 chickabee

    Posted

    New to the forum and only diagnosed with Fibromyalgia today (17th July).

    hugs to you all wink

    • Bee70
      Bee70 chrissie2015

      Posted

      Welcome to the Forum Chrissie !

      You will get support here from all.

      Gentle Hugs wink x

    • kaz_40
      kaz_40 chrissie2015

      Posted

      welcome to the forum chrissie, anything you need to know just ask, we will help if we can. we are all in the same boat we all support each other dont feel your ever alone your not on here. take care gentle hugs smile
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