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Using Clobetasol (Dermavate) with no symptoms

Posted , 12 users are following.

samantha1970
samantha1970

Hi,

Currently I have no symptoms of LS (in the past I was diagnosed by biopsy and used a variety of different potions and treatments). I've had some fusing but seem to be stable at the moment.

I'd like to ask the experience ladies with LS what is your protocol on using Clobetasol (Dermavate) long term when you have no symptoms (itching, burning, white plaques, lesions)?

Appreciate your input.

 

0 likes, 41 replies

41 Replies

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  • AnneMarie4321
    AnneMarie4321 samantha1970

    Posted

    I'm very new here (6 days ago!) and watched/listened to Dr. Goldstein's very informative presentation on the "New Here" thread. He is emphatic that it should not be stopped completely ~~ so that's his view on the subject.
    • deborah82032
      deborah82032 AnneMarie4321

      Posted

      I called the Clinic in DC and asked about an appointment with Dr. Goldstein. Your first appointment is $ 1,400.00. No insurance taken.
    • samantha1970
      samantha1970 deborah82032

      Posted

      Seems strange a doctor would not take insurance.... Any reason offered? Thanks 
    • Morrell1951
      Morrell1951 deborah82032

      Posted

      He's doing that clinical trial, but why would you have to pay to be part of his research. As a Canadian I have to say I'm appalled.
    • Morrell1951
      Morrell1951 deborah82032

      Posted

      One thing about Dr. G. Bothers me is that he makes his 1200 LS patients sound like a world record. My gynae has 1000 and it's a regional rural practice.
    • Morrell1951
      Morrell1951 deborah82032

      Posted

      I sent you a private message with a link to a doctor who says he can unbury a clitoris.
    • hanny32508
      hanny32508

      Posted

      It is with great discomfort that I see what some medics dare to ask for a first appointment.  
    • Okpeeps
      Okpeeps hanny32508

      Posted

      I shall never complain about NHS in Scotland ever again. We do have private medical insurance however if certain conditions are not covered we can go to NHS for treatment. Our only downside really is the waiting time. If we are not happy with the consultant we can ask for someone else.

      That truly is a lot of money !!!!

    • Guppy007
      Guppy007 AnneMarie4321

      Posted

      I have read Dr Goldsteins presentation, and much of what he says does sound like good sense, but it does not mean he has all the answers.   I always thought there was a slight arrogance there  as he talks as though he alone is an authority on LS, which is not the case, and what he is charging his patients is disappointing and just confirms my view of him to be honest.
    • hanny32508
      hanny32508 Guppy007

      Posted

      Quick rich scheme over the suffering of others less fortunate - it is not the way I see humanity would function at its best.  
    • AnneMarie4321
      AnneMarie4321 hanny32508

      Posted

      I was just letting a new member know what the video on the "new here" thread -- which we are directed to -- I wasn't advocating him. Merely shared his view.
    • Morrell1951
      Morrell1951 deborah82032

      Posted

      Click on your name right here and that will take you to your profile, then click on Messages. I have my account set up so I get an email if I have a message, but not all the notifications of discussions, which can stuff your mailbox.
    • Morrell1951
      Morrell1951 AnneMarie4321

      Posted

      Dr. G's video is still a great LS 101, but I wouldn't be rushing down to Washington DC to see him. I think most gynaecologists and dermatologists can diagnose LS and write the usual prescriptions and check for cancer annually. Once you start looking into some of the experimental treatments, it's big bucks.
    • AnneMarie4321
      AnneMarie4321 Morrell1951

      Posted

      Just to clarify, I wasn't the one who was considering going there. We have excellent medical care here.
    • Guppy007
      Guppy007 hanny32508

      Posted

      I totally agree.   I pay $110 to see my Gyno which is the norm in the Country I live.  
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