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UTI's, kidney infection..glucose intolerance?

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alison06837
alison06837

Hi, I have a history of frequent UTI's and in October I was admitted to hospital with a kidney infection and a systemic blood infection. I was in hospital for 8 days, treated with iv antibiotics and fluids. I have been housebound ever since with all encompassing fatigue. Some days I can't get out of bed and struggle to lift my arms. Other days I can make it downstairs for a few hours, but can't do daily tasks. My ongoing symptoms along with the fatigue are episodes of shaking, dizziness, thirst and frequent urination. The last time this happened I had 3+ glucose in my urine and a non fasting blood glucose level of 11.7. My GP suspected diabetes and did a blood test which came back negative. Yesterday, I had a bowel of cornflakes with sugar and 2 hours later I was shaking in bed, so dizzy I could not stand or walk on my own or speak due to feeling so ill. It gradually subsided over several hours. My remaining symptoms seem to flare up and the fatigue gets extreme after eating sugar or unrefined carbohydrates. Given I've been tested negative for diabetes but continue to have terrible fatigue and these shaking episodes, im wondering whether my frequent UTI's, debilitating fatigue and recent kidney infection are somehow related to glucose intolerance. Any advice or similar experiences appreciated.

Thank you

0 likes, 23 replies

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  • Sus28
    Sus28 alison06837

    Posted

    Oh dear bless you and these terrible symptoms. I have had riggers with UTI and was not able to get warm but that is the only similar symptom.

    think you have to keep going back for medical help till you get to the bottom of the problem. Good Luck

  • Ploddingon
    Ploddingon alison06837

    Posted

    Hi Alison

    I'm so sorry to hear you're in such a bad way. Does your doctor know how unwell you are feeling? Sounds like you need to be seen again....

    Maybe you need to get checked to see if you still have a UTI or perhaps a kidney infection... I'm not a medic of any kind but maybe check if you have a fever?

    John mentioned antibiotics.....what have you taken so far?

    Are you in the UK?

    Plodding on

     

  • alison06837
    alison06837

    Posted

    Thank you both for your replies. Very kind of you.

    I had two weeks of antibiotics before ending up in hospital. They were both for the uti. One was something like nutrifanton and the other was trimethorprim. Then in hospital I was initially given an iv one called something like jintomyacin then after that, several days of ciprofloxacin via iv then another 7 days of it orally. Quite a lot of antibiotics I suppose! In the 3 years before, I have the two uti antibiotics for one or two weeks at a time on 11 separate occasions too. 

    • Ploddingon
      Ploddingon alison06837

      Posted

      Alison....I really didn't want to hear you'd bern given Ciprofloxacin! Please do not take any more of this.....you are very likely to be suffering from Quinoline Toxicity ....there are very many terrible Adverse reactions to antibiotics in this class and unless you were failing to respond to every other possible antibiotic and it was a life or death situation, you shouldn't have been prescribed a Quinolone. They were designed to fight anthrax and other pandemics, not simple UTIs. Unfortunately doctors are ignorantly unaware of when they are supposed to prescribe these and also unaware of the devastating effects of them. Here is a link to the forum here Fluoroquinolone Antibiotic Toxicity Syndrome. There are many discussions about these antibiotics, so take a good look around and read..try not to panic! If you are living in the UK, we can offer you support within a group.

      https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

      Keep in touch...John and I can catch up with you in the Fluoroquinoline group too.

      Plodding on

  • alison06837
    alison06837

    Posted

    Sorry, forgot to say my white cell count and temperature are now normal and I'm on the UK
    • Ploddingon
      Ploddingon alison06837

      Posted

      Alison. I'm going to send you a PM. In the meantime.....please don't take any more Cipro and look at the discussions in the FQ antibiotic group.

      Plodding on

  • alison06837
    alison06837

    Posted

    Wow. Thanks for the link. I don't know what to think now. I've had a look at the link and some of the comments sound very similar to how I am. Bed bound with so much fatigue that some days I can't even use my fingers to type. Before all of this started in mid September, I did a 15 mile walk and worked full time and was totally fit and well. I will read more as so far, apart from vitamin d deficiency they haven't found anything further in my blood test results to explain my ongoing symptoms, Thanks for your advice x
    • Ploddingon
      Ploddingon alison06837

      Posted

      It's very unlikely that they will find anything unusual in your bloods or any other tests, to show you have Quinolone Toxicity...also your GP will probably (not always) deny any involvement of Cipro. Most GPs are not aware of the damage they are causing! Then they cause further harm by putting their patients under massive stress by refusing to believe them. However, there is lots of evidence from (I know of thousands) many suffering dreadful damage due to Cipro, Levofloxacin and others in this class of antibiotic, often adverse reactions can be delayed and not manifest for months or longer, after the antibiotics have been stopped. Sometimes people can take a few courses of a Quin and feel fine. Then it might just take literally one (not joking) tablet of Cipro, or other Quin, to produce a severe reaction, or as is often the case, many at once. The damage is being done without people necessarily being aware. 

      I am am so sorry to bring you this bad news....I should say that we have found many people (mainly women) on this UTI forum, who have been poisoned (Floxed) in this way, 

      i wish someone with some authority here (EMIS moderator or doctor) would realise what's happening and do something about it. So many people are having their lives wrecked. There are special warnings attached to these antibiotics, like risk of tendon damage, in particular to  Achilles and also risk of Peripheral Neuropathy (nerve damage and pain) which may be permanent.

      The irony is that this info is written in the patient info packet inserts but written in tiny font and unclear, plus incorrect. Many reactions are listed as rare or very rare....they are not; they are common but docs and us too, tend to dismiss things listed as rare...we seem to think that means it can't happen.

      Sorry, I'm banging on...my anger is coming through...

      Please check your private messages here, as I've sent you one,

      I hope more on this UTI forum read these posts and responses 

      Plodding on

    • Sus28
      Sus28 Ploddingon

      Posted

      Oh dearloddington. I was prescribed one week of Ciprofloxacin for a UTI in September. It did the trick very quickly and the infection cleared. Are you saying that months after the course you can suffer adverse effects?
    • Ploddingon
      Ploddingon Sus28

      Posted

      Yes Sus. I am....you may not....but the Cipro will be in your system now and any further Quinolones could take you to your own personal/unique threshold, where you notice the damage.

      I hope you'll be Ok...if you're not, then follow that link I gave to Alison and post in the Fluoroquinolone forum.

      Plodding on

    • miriam65408
      miriam65408 Sus28

      Posted

      Just to add a pennyworth - my husband took a weeks course of cipro for a uti - it cleared the infection and we never thought anything about it.  A year later he was given cipro again for a uti, and after 5 tablets (not quite 2 days) he BEGGED me not to give him any more!  He said he was in agony.  I had a look on the interent and found that, like Ploddingon says, thousands of people are hurt by it. I've been on the forum page https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

      It's very useful.

    • Sus28
      Sus28 miriam65408

      Posted

      Oh blimey sounds like my body is a time bomb!

      how is your hubby now..?

    • john616
      john616 Sus28

      Posted

      i was given cipro, i  asked dr about side effects, he said you should be ok. Three and a half yrs later i am crippled. housebound most of the time cept 30 mins on my electric bike daily, Head,eyes, tinnitis,muscle loss, thyroid and much more. Yet i was super fit befor cipro. Dr says it is not cipro. Draw your own conclusions. Sadly something wrong here.
    • john616
      john616 Sus28

      Posted

      It was 7 days, 2 tablets a day. Each one was 750mg a very large dose. I had never taken a pill in my life and assumed it was Peniciillin. The young dr gave no warning or advice. I asked him about the tendon warning but he said, "you should be ok"........Of course the worst happened, but when i went back crippled he did not want to know. He sent me a letter saying 3 times, cipro is not responsible for the devastation of your body. It must be true because the dr knows best.
    • Sus28
      Sus28 john616

      Posted

      How long was it before you had a reaction to the drug?
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