UTI symptoms for 3 months, but NO UTI! HELP :(

Amitrip as in amitriptilyne? (Don't know if I spelled that correctly) but yes, basically the ER nurse just told me to watch what I eat and sent me off to a urologist who won't do any tests on me because he wants to do things a "natural" way. So frustrating

Get a different urologist,you are the one in pain. You meed a pro active doctor. Fire him. Xx

Seems every condition i get takes doctors at least 4 apts just to know whats going on

Sigh xx

I've been to the doctors every two weeks for 5 months! Wasting my life, and I'm a senior citizen, so can't afford the time! 😂 😱

I know,ive basically not done anything fun since mid march. Very depressing,not only that its expensive. (Im in the states)So sorry you are going through so much,hope you get to feeling better soon.

I don't take any blood thinners. I'll take ibuprofen sometimes because every nurse or doctor I've seen say that it's good if the bladder is inflamed and it might help with the discomfort a little. I've never noticed a difference. I'm 23 years old. Never had problems with UTI's or anything along these lines until a couple of months ago, now it's completely ruining my life. Don't really know where else to turn!

Hi, I think you must go back to the doctors and keep pressing on, my doctor admitted this morning finally that it could be the tablets I'm on! I have one more test to rule out Interstitial Cystitus, but it's a long waiting list I'm told! Meanwhile I try to carry on as normal but it's hard some days. Good luck, don't give up, keep asking until they listen to you. X

I try to carry on as normal a life as I possibly can. I've had appointments upon appointments and I work full time so I'm running out of time and options. Thanks so much for your kind words, I appreciate them, good luck to you!

l had severe symptoms of frequency, soreness and heat in lower stomach down into pubic area and felt it inside, also severe lower back and hip pain, which locked up if l stood for above l0min, mine immiediately following csection, also aggrevated by menustration and intercourse, l wasnt as fit as l used to be, just couldnt run and jump anymore, not as supple, generally unfit, so got referred back to gyny, d and c made it worse, the hormone pills had side affects, it went on over years, l,d bouts of aneamia and frequent thrush, affected my life quite  badly  l paid to see specialist, but thought it gyny, due to docs, so laprascope showed no probs, told officiously by surgeon, went home more ill than on going in, after years l had  become anxious down about it, gps no help, made me feel worse as by then put it down to a phycalogical, hypacondria etc, l,d had a kidney infection and really  ill with it, luckily new dr referred me to urologist, still had to wait between xray, scan,finallycystascope which did diagnose intersticial cystitus, the urologist was quite good put me on amtrip and cimetidine, slowly but surely it improved, also took supplements, low acid diet, Lwas never as fit as  before, but improved to more like normality, odd days of niggly pain soreness but ok to lead normalish life. Then my husband died suddenly next year, and l thought of the wasted years of pain ill health and affects on lifestyle family, l resented it, such  bad memories l tried to push them away and make life as posative as possible. The gp retired, resented him.  Been okish for years but slowly over last 2yrs, more so last 6month getting increasing fatigue, aches and pains, that restrict normal life again, more housebound, ordinary house jobs a struggle, and despite past negligence of surgery, still got the casual flip fob off in response to symptoms,  l read up on here and think it might be fibromyalgia, symptoms fit well, told gp, several,they again casual, dont even examine me, just standard blood tests, one scan of digestive tract due to nausea,  bit of gastriltus seen, again after months of horrible nausea the ologist puts me on omprazole that  reduced 90percent, and asking around find loads of people on omp, you can even buy it at chemist, ebay. l begin to wonder, how casually they can dismiss your suffering and restriction on lifestyle, relationships, even when youve kids to care for, and l know some drs are wonderful, quick with referrals and extensive testing, but some are not.  l did this time, unlike the years of ic symptoms when l accepted the gps info advice, go into conflict with them and practise manager. still didnt really change their attitude but did agree for me to see rheumatologist, still waited 3month due next week.

l had the ic symptoms in 30-40s, in some ways worse when your young in you should be active working socialising, but  bad also when  you get older as l am now, 60s, so whatever years you have are precious, age making  you more vunerable, l also take bendro for hbp, so time  not to be wasted, feeling ill with restrictions of lifestyle. Oh to be rich, my first priority wouldnt be luxury  items, but private health care, l,m grateful for the nhs, but if private you  can go see consultants and have extensive tests asap, and usually diagnoses treatment within a couple of weeks. So hope you and others get diagnoses soon. Brianna, l,m sure the cob group would find it bad for a nurse and urologist to casually dismiss what they themselves say could be ic, it is considered a serious condition, some of those who have it severely long term when meds dont work will opt for urostomy, though meds have improve and usually a good help.  Quite a few on mbs with severe bladder symtpoms seem to be finding gps more reluctant to refer for cystoscopy, begin to wonder if there,s a shortage of urologists. l accept that many symptoms can be caused by phycalogical reasons, and some time diet and supplaments help, But l think most people know their own body well enough, also know theyre missing out on good things theyre frustrated not to being  able to do, Due to my own experience of having symptoms of severe pain ill health for years and being misdiagnsed, undiagnosed, and fobbed off as phycalogical, when there was inflammation in the bladder , inflamation is  bad wherever it is, and its said the bladder is one of the most sensative organs, But whatever it is, whether people on mbs or in life l always give benafit of the  doubt and accept what they say  theyre suffering.  L,d advice anyone with suffering and restrictions long term to keep on at gps for referalls tests, or change docs if they wont. Good luck.

Well I have Fibromyalgia too, I have had for at least 15 years and we are the same age. There is No treatment for it apart from painkillers and taking it easy. My diagnose only came as a result of my daughter having it and her dr referred her, as apparently it can hereditary! My doctor said today, if camera comes back clear, it must be my heart pills! I told her that 5 months ago! I could cry with frustration. My husband is lovely, but he's 75 and I'm 68, as you say we should be enjoying life, it has a knock on effect on him! Thank you x

When l was first diagnosed with ic. l got mag from support group cob and read of people with it having fibromyalgia and sjorgens, hadnt heard of them then, but know they are linked to ic,all immune probs, as with lupus getting more common, l,m also an allergic person, so it clicked and on checking symptoms it fit. We never get just one thing do we, l think someone said to me joking `well your just greedy arent you` l try to have a joke at time, helps keep you going,  but it is unbelievably frustrating, just a bit of shopping or a few house jobs 5-l0min at a time, with rests, and like most with these conditions it seems most were very active, so big problem taking it easy, and when l see or hear of so many l know travelling all over the country world, and simular ages, l struggle to look a their pics, l,m that envious as my worlds got smaller, used to at least get into another town county, now an hour in small area of town is an event, endurance with it. Yes it does affect relationships, partners, family.  Well l hope you get a result that can improve your lifestyle, be it ic or pills that affect. We battle on, good luck. 

Thank you, I'll let you know once I find out and /or greatly improve. I have decided to follow a sugar free diet, which I've read reduces pain! We shall see, but I will miss my bit of chocolate.☹️ Be in touch, good luck to you too!