UTI symptoms for 3 months, but NO UTI! HELP :(

Good to know you are better. Sometimes to,i think the body gradually heals itself.Xx

Thank you for that! I really feel ill never be normal again, I can hardly remember what normal is now. I'm having a rotten year, cancelled so many things. I'm going away on Sunday, we can only stay in the UK so we can drive home if needs be. We used to go abroad twice a year, now I don't even want to go to Cornwall! I have to think I will get better, but I'm the older generation and I feel my life is slipping by. Thank you for the hope! X

 

I'm so pleased for you that you're getting better! ??

I hope you have a good time and feel ok on your trip. This is the first summer i havnt dared plan one. Xx

Most with ic use a non acid diet, some it helps a lot some not so much, l seem to have a natural aversion to acid foods, particularly fruit, only melon pears banana,s acid free. since being diagnoses with gastritus had cut out processed ready meals, sos, burgers pies unless home made so we can see what goes in them as with canned foods, so lve a very plain basic diet, bit boring at times, but not bad, pots rice pasta basics, most veg, chicken fish, l can cope with fries hash brown but baked, and smaller meals, it helps.  Also use supplaments, vits mins, l,arginine for years as reseach shows it helps,probiotics, not tried fish oil yet, but was thinking of trying it, my mum always used it and rarely had general pain. l do use some  bread, a bit, granary type and oat  biscuits, but it is individual, l find l can tolerate the odd cherry toms be they acid. lots of spring water. Even the researchers of ic dont know or agree on cause, some think auto immune, some think allergic response to something in urine, as with many inflammatory conditions theyre not always sure of the causes, it might be envoiramental to people who are vunerable, prone  to allergic reactions or immune system not as good as others. But there are  some meds that help, and some might aggrevate, we have to judge for ourselves what helps and what aggrevates. Glad your choices have helped you, l think in time most get improvements with varying choices.  Good luck to all, its an endurance till you find what helps. 

l was the same for a long time, travel another bit problem, we got a camper van so we could go away for odd days when my symptoms were at their best, reasonable, then often went away with a wish and a prayer, and sometimes it turned out a good break away, sometimes bit stressed when syptoms got aggrevated. We then bought a static, old one, on really nice relaxing site, again so we could go off on spec, always based around my symptoms and weather. At that time l never gave a thought to my age, only 30s-40s, but you  become more aware as you get older that time is precious, and naturally you want to  feel well asap, be it drs diagnoses and treatment, or using diet supplaments 

but doesnt seem to be a quick fix, we all hope for, maybe expect with wonders of modern meds. but somethings take time, but with it most do get improvements. l remember and even now have to cancel, you feel so unreliable and its easy to lose contacts and drift into a different lifestyle, but its good youve a supportive husband, that helps a lot, with practicals and emotional. l hope your able to get to Cornwall, once over the journey, the r  and r along with fresher air might help, hope it does, and you get improvement soon.  Good luck

Thank you Lee and Polly for your good wishes.    My heart goes out to both of you and everyone who is suffering.   I am not cured by any means but I think I had  lesser symptoms than most of  you.  I've been shocked by the stories on here of  hospital wait times and doctors who don't believe you.   I'm incredibly grateful that I live in a part of the country where you are referred to hospital quickly and you don't need to worry about paying for prescriptions.    This takes a massive amount of stress away and it should be like that for everyone.   It is not right peoples' health depends on where you live.

I still feel restricted to where there is a toilet.   But at least now I can, most times, wait an hour or even one and a half hours.   I dreaded going to the toilet because of pain and only a small amount would come out. Then five minutes later you feel you need again.    This too has got much better.  I am embarrassed to admit when using a public toilet I was listening to other women "going" to see how their flow compared to my stop/start.  

Lynne, a lot of what I have done is similar to you and as you quite rightly say there is no quick fix.  But guess who had chocolate for the first time in 3 months . ME ME ME. I can also now  eat a little lasagne and a little pizza.  Yes I know it's acidic so I have  plenty of salad with it.    I know this sounds odd but previously if I ate stuff like that I thought I felt achy pain at top of vagina. Sometimes it's hard to know where the pains are coming from.   The only thing I refused to give up were lovely thick oven chips. Fortunately I had no reaction to them.

I hope so much everyone improves and Polly enjoy your holiday in Cornwall.   

I've just been to vote and couldn't get home fast enough! It's no life! Still going away though, I need to relax,but I won't be able to do much though! I won't be booking anything this year until I find the answer! 

Thank you 

Thank you Vicky, I've decided I must give up chocolate too! I follow a diabetic diet, i am a vegetarian and allergic to shellfish, I follow a very restricted diet already, oh, and also an arthritic diet ?? Not much left for me to eat now! Do you think diet has made a large difference to the problem? X

Thank you. thank you so much, I've found this site is so good. Although it's not a very nice subject to discuss, at least I know there's hope from reading all the posts. We need our holiday, my lovely husband does too! It's our 48th Wedding Anniversary while we are away, I just hope I can eat a 'special' meal as its so important to him! ??

 

Congratulations on your 48th, wow coming up to 50th. l envy you and anyone who has a loving supportive husband, it means a lot.  Hope all goes well and you have a good holiday. Good luck to all overcome their health probs, enjoy your holiday.

ps Well done going to vote, waiting for my chauffer to arrive to take me later, son. 

l love chocolate, near addicted to toblerone, l can also eat a bit of cheese and tomato pizza, but l also went off milk and eggs naturally, so use lactose free milk cheese, l can also go for an hour a lot of time, but some days, maybe if cold or wet out it can drop to half hourly, but the pain has reduced main thing for me, as it used to be horrendous at the worst times. l think the pain can spread to all areas waist down including around and in vagina, sensative areas makes it worse horrible, lve done all sorts of odd things to try stop it, used bio yogurt once, omg, fanned msyelf, and yes heard people having a good rush in adjoining toilets and felt envy. The diet  isnt that bad, diabetics one hard going, anyway hope you and others find what helps them, good luck to all

I've gone over everything about myself to try and work out what was happening to me.    I think I got an infection and I was eating a very acidic diet which perhaps burned, eroded or whatever my bladder causing pain when I went to toilet.    What it doesn't explain is why I felt pressure on my bladder and the feeling of needing to go all the time.    I then ate lots of fruit BIG MISTAKE OUCH and I now know that was wrong.   I looked at interstitial cystitis and thought if my bladder looks sore like that, then maybe I can heal it.   I'm not saying I had interstital cystitis, I haven't had a cystoscopy but I worked on the same basis.

Changing  was horrendously difficult and in fact impossible for me to do 100%.  With the IC diet different foods affect people in different ways  and it's trial and error.   I made up my own diet .   I tried to eat  "cleanly" no sauces.  I ate brown rice/veg/sweet potatoes/potatoes/salad.     I  couldn't do that for more than a week so I started to add in fish and chicken.   I ate like that for about 2 months and I found though I still had pressure on bladder I wasn't in pain when I went.   It has now been 3 months and I think my bladder had been sore and is now getting better.    I'm not cured, sometimes I feel normal then next time I go I have to lean forward to help the flow come out.   But the important thing is I am improving and I am having more good times.   I also have hope.   In my case changing my rubbish acidic diet has helped and i'm going to continue but it is a slow process.   

Lynne

I have always found your advice very interesting and sensible.   I too found it hard one cold  rainy day as I felt I had pains shooting up inside me.   I also had a pain in my hip which didn't make sense as I don't even have organs there!   But from what you say it does seem to spread all over.   I was worried sick about a pain in right ovary but the consultant gave me a withering look and said "your ovaries are fine we checked on the ultrasound".    The pain does travel and some days I don't have any.

This is horrible but it is good to know you are not alone.

Thanks, just going by my own experiences, and yes lve had pain spreading, at very worst time as far as the kidney,s, l think gp once referred to it as referred pain, doesnt tell much. l can get nagging lower hip pain around into lower butt and leg tops at back, jumpy legs at times. l recall afte laprascope the consultant striding into the wars, l feeling like hell and he saying to me, all is fine including your appendix, the swishing around to leave, l,m laid there mouth open, did manage to shout after him, what about my pain, and he did actually say, we think it might  be your bladder, and away he went, charming, no referral on to urologist, nor from gp, till months later when l asked a new gp. Interestingly lve just been reading a post from Richard in response to ally about endometriosis are she,s speculating if that causing her lowe back hip pain, he talking about pudendal nerve, you read and learn on here, lve learnt more than l did from gps. It does help knowing others also struggling for answers, when mine first started l didnt have any net, wish l had, these sites are so good for info advice support. Mine def worse with cold and wet, dread winter, not that uk summer is much different, bit warmer, but flooding in some areas at present, glad your is improving, mine def not as bad as it was. l also recall the shooting up pains like a knife, other times felt like sticking a knife in my back to release it, urologist called it pressure pain, thank God its improved,  Best wishes to them still struggling, memories of it, bad ones,  try to push them away,