UTI WON'T GO AWAY

I totally thought I was the only one... I've been getting on and off yeast infections, and It's for two years. I've had more than 7 doses of antibiotics, and have taken many vitamins and cranberry pills, nothing works. my blood tests, thyroid tests, pap smears, came back fine... but my UTI tests always come back with e coli or positive. I'm SO tired. I feel so sick. My side hurts, my bladder has spasms, and now I'm constipated. I hope this doesn't turn into bladder cancer. I finally got referred to a urologist, but I'm afraid it will be bad news, or the run around like I've been getting.

me too- im so depressed - after my appendectomy the doctor did something wrong to my lower left abdomen so im left with permanent tear under the left inserted troca , got a MRSA infection from the hospital and then my UTI started - 7 so far, it's been over  1.5 year. im so depressed- and been to the ER more than 4 times and none of their stupid and generic medications work. tried keflex gave me legs cramps and could not walk, tried nitrofurantoin and did not work, tried doxycycline  worked a bit and my uti came back, tried bactrim and stopped quickly because it gave me tendon problems and tear in my finger and so levaquin- . to be honest with you , europe medications are the best because they are brand names , unlike generic drugs have 20-25 % of the brand names main ingredients only with lower concentration and with serious side effects - and do not tell me no because i know.  many people told me about fosfomycin which is used in europe and it is very good and unfortunately is not used here. I'm so sad because while I'm speaking i have a uti and im on antibiotics  with burning sensation and pain on my lower left abdomen and groin and acidic ph 6.0 which doctors never like to talk about acidic ph.  i feel that  may be fungus infection or metabolic acidosis- i have no clue and im a male kind of hahaha. please help . and now anything i eat my stomach hurts and cannot pee comfortably and pain before and after urination and my tooth hurts too when i have the uti infection . it is so strange what is happening to me- please god help me

Hi Jen, you seem to have been on everything and suffered everything.  I'm sure I've posted about Cipro and the fluoroquinolones on here before.  Have you had Cipro in the past?  Levaquin is in the same class which means it has the same horrible side effects and will add to any damage you already have from Cipro (if you've taken it).  Take a look at the fluoroquinolone discussions on this forum to see what I mean. 

How long were you on the D mannose for?  It can take weeks or months for it to deal with E.coli as the bug colonies form a protective film over themselves (the bio-film) which most antibiotics can't penetrate.  Not even Cipro or Levaquin. 

Or you may be right and it is fungal - any of the antibiotics could have opened up the door for a fungal infection to get started.  You sound like you need a full set of cultures taken so they can actually pinpoint what is causing your problem instead of throwing packet after packet of 'lets try this' antibiotics.

I'm in Europe and I can tell you that we have generic labels too.  I think your problem is not so much what is in the verious things they give you but that they don't know exactly what to give you.  Don't let them mess you about any more.  Get one doctor to take you seriously and order a complete range of tests so you both know what you're dealing with here. 

Hey there Jen, 

I hope you are doing well.

Can you describe your pain in your urethra? I think I am experiencing something similar but I don't know - I had a bladder infection a week ago and recieved nitrofuratin for 7 days. But I still have a very small stinging/discomfort pain in my urethra which is worse 1 - 2 minutes after I urinate. 

Is this what you started with before you were diagnosed? 

Abby 

Hello All

So Back in 2015 I became unbelievably I'll. No one diagnosed me with anything and several providers began to ask me if I was depressed which is the most offensive thing ever when a person is truly suffering with something. I had one provider look at me with so much sympathy and say, "There is obviously something systemic going on here, but I can only do what I can do, you probably need to see an Endo" Anyhow that was one of the most difficult times in my life health wise. I was put on several antibiotics of which Levaquin and Bactrim was among them. They affected me in such a negative way that I didn't recover for about 5 months only by God's mercy and grace. So fast forward to one year later-2016. I began to have a foul smell to my urine. No burning. No pain. I'd remember smelling that same smell when I was taking care of my grandmother and she was later diagnosed with a UTI. So I go to the gyno and I have a UTI.  They prescribe me Macrobid only to turn around two days later and says culture calls for a drug that I am allergic to. So they come up with a round about idea to give me shots of Rocephin once a week for three weeks. While being treated smell went away. I was happy. One week later- smell is back now with a little bit more frequency but nothing major. They tell me to come back to do another dipstick. No infection.  Still inhale the smell but what am I supposed to do? Frequency/urgency goes away but smell and minor discomfort remain. I see another doc in 2017 and mention it briefly along with an array of other issues. She wants urgine sample. They tell me it's clean but will still send it away for culture. Comes back clean however they noticed trace blood in urine. They tell me that if my next culture is like that they will send me to urologist. Still I have this smell since 2016. About 6 mos later they find blood again. Sends me to urologist. He looks under a microscope and says that he couldn't find a single molecule of blood and there must be at least 3 molecules before he begins to look for answers. I tell him about the smell and occasional discomfort. He's not fazed. Tells me to see him 6 mos. two weeks later I'm burning, in pain and in the bathroom repeatedly. Go back to my gyno. Culture comes back positive. I am out on Augmentin for seven days. I feel really good while on it. And the smell is gone however on day 4 discomfort returns and I don't feel as good as I did the first 3 days. I message the nurse. She says finish meds and drink 12 glasses of water to flush system and return. I then miss my period in this process . (I'm 43). So now I'm concerned. I message nurse and tell her I am going to make an appointment to see my gyno. Not just a urine test. She said I would have to see a NP because books are full. Now I'm ticked. I decide to message my urologist who tells me to come in. I do and leave a sample. It's infected and they have to culture it. I won't get results for 48 hours. This was yesterday. I've been praying for the Lord to deliver me from whatever this is! I pray ok not pregnant. I don't see how I could be but then again my mom thinks I'm going through menopause. Oh and yes I did get yeast and vulvodynia I've had for years (undiagnosed ). What is going on? Has anyone thought about kidneys in all of this? I've been very prayerful and hoping that whatever it is will be revealed and resolved. We pay so much money to be bounced around or even shrugged off. My urine should not stink! I drink plenty of water. 

I recently sufferer lower belly pain to point i couldnt walk. Doc said it was my bladder and i had white cells in urine which also looked cloudy. I was given Microbid. 3 days later pain spread to my kidneys (didnt know where they even were). I was given Co amoxiclav and co codamols. 5 days after i finished the course started getting back pain again which very quickly got worse along with burning down there. Tried cystitis sachets to get me through weekend. Now i am taking pivmecillinam. Am worried about taking so many antibiotics. But kidneys feel like they on fire no other symptoms but bladder or kidney pain. Dont know if i ever get better

If your UTI is post sex, it could be that you got a false negative by taking a chlamydia too soon after sex and what you actually have is Chlamydia.

bacteria goes to stationary phase after lack of food, so try to do intermittent fasting, have food only by noon and night. you can take half the dose of antibiotics after food, your uti symptoms should go off in few days, mornings have lemon juice or just water till your energy level drops 

Hi Jen. I hope you are better?

So, i am from Zagreb, Croatia. I am here because i went across all possible croatian, english, american sites and forums trying to find a soultion.

I have 5 year history of UTI’s with horrible pain, burning etc. Only once they found e.coli in urine culture and thats it. But urine sediment is always filled with blood cells and bacteria. But they can never seem to isolate any.

I am currently in Hamburg, Germany trying to find treatment here.

I have been taking profilactic therapy with Ninur 50mg for 6 months and it was better, got no infections at that time.

Currently, i have burning urethra and feeling like i am going to pee myself. But i never do, just feels like that. Its been lasting for one month. I am going crazy. I am so desperate and so anxious. I cant believe this is happening to me at age 25. I am currently taking cefixime cln 400mg once per day for 10 days, and some vaginal pills Medazol 100mg (which i found out can make thrust really badly). I dont know what to do anymore? Ive been on and off antibiotics for 5 years. Last year i had inflammations in jan,feb,mar,april,may. I took 6 antibiotics in 5 months. My insides were completly messed up. I havent gotten my period since that time. I have ovaries filled with cysts. 

I am thinking its better to not live than to live in constant fear. I am scared of having sex, going out, i have all my friends and bf to come to my home because i have a toilet there. I cant take it anymore..