Vaginal burning, tested for everything all negative! Help!
Posted , 20 users are following.
Hi ladies. I'm here to explain my story and maybe get some help and advice.
This started off like a regular UTI for me, I had sex multiple times one day with my boyfriend and of course the UTI came not long after. I took trimethoprim and drank water etc etc.
The UTI pain E.g that burning/glass feeling at the end of urinating etc had gone but I was left with a constant 24/7 burning around my urethra.
I went to the docs explained , he gave me more antibiotics and we waited 2 weeks for the urine sample to come back. The pain completely debilitated me, I couldn't leave the house I spend most of my time in baths crying not getting any relief no matter what I did. I cut out alcohol, coffee, smoking (one positive thing from all this?) fragrances, only cotton underwear, different toilet paper, no sex of course everything I could think of - no help.
Finally the urin came back NO INFECTION.
I was actually devasted.
The next few weeks we desperately tested for thrush, std's including herpes, trichinosis , urine PH, vagina PH. All negative, meanwhile the burning stayed and is always worse AFTER urination. No pain during wee-ing.
We had an MRI , it just shows multiple cysts on ovaries but I've been told that's normal.
My vagina is bright red, and constantly feels like it's been scorched. I'm 21, no medications and desperately out of money and will.
My doctor has said it could be vulvodynia which sadly is a different way of saying 'unexplained vulva pain' and often treated with strong meds, I just can't believe there is no reason for my pain?!
Has any one suffered with similar? Or have any advice? Thank you in advance!!
1 like, 24 replies
krystin90864 emily10660
Posted
this is exactly what im going through right now. The pain is unbearable at times and then out of the blue it stops hurting and burning for a little while and i get all excited thinking i can go do stuff, but then i put on pants and it starts hurting again. I feel like i cant leave the house or go very far in case it comes back. My doctor just prescribed me a steroid ointment to try on the outer part of my vagina for two weeks once daily. She suspects Lichen Planus. doesnt explain the internal bladder pain and inflamed feeling tho. i feel hopeful seeing im not alone in this.
gabrielle10631 krystin90864
Posted
any answers? dealing with the same. 😦
aleixs59034 emily10660
Posted
i hqve the tested for ureaplasma and m plasma ? i had that and tested negative for everything but doc tested for those and came back positive. he said most doctors dont even test or look for them.
Rainbow1106 aleixs59034
Posted
Hello Ladies. My name is Rainbow, and I'm dealing with the same thing. I got tested for Ureaplasma and m Plasma back in November 2020. I test positive for Ureaplasma in November. I took the antibiotics for 7 days. Took three more test for U. Plasma and they came back negative. In the mean time I'm still having this burning sensation in my Vag. All of my STDs and STIs test and yest test has come back negative. The he last couple of days I've cut all sugar out my diet and cut back on bread. Its helping a great amount. Last night I felt like my sugar was getting low, so I had a little orange juice. Today I'm on fire. I'm drinking a lot of water today so hopefully I get some relief soon.
bethanie12629 emily10660
Posted
i have been dealing with this since october 29,2020. it started to feel like a uti at work so i went to urgent care after work. urine looked fine so they sent culture but treated uti with antibiotics. after a week it did not get better and i was already going for my annual at gyno so i asked then and he changed antibiotic. did not get better then went to urologist was on 3 different antibiotics with them and nothing helped. they did ct, xrays, and a cytoscope and everything came back perfect. was referred back to my gyno and went to like 8 visits receiving different creams to use each time and boric acid to insert. nothing has helped. i can say that it has become better since october to not feel constant but the last 4 days has been constant! also, i have pcos and when i came off my birth control in september this started in october . he said it could be a hormone thing due to pcos and birth control not controling it anymore but i am hurting constantly now and just need answers!! my husband and i are trying to conceive and its been hurting the last few days for than ever due to us trying so much. i was not very sexually active from october to january due to wanting to cure this!
bethanie12629 emily10660
Posted
i have been dealing with this since october 29,2020. it started to feel like a uti at work so i went to urgent care after work. urine looked fine so they sent culture but treated uti with antibiotics. after a week it did not get better and i was already going for my annual at gyno so i asked then and he changed antibiotic. did not get better then went to urologist was on 3 different antibiotics with them and nothing helped. they did ct, xrays, and a cytoscope and everything came back perfect. was referred back to my gyno and went to like 8 visits receiving different creams to use each time and boric acid to insert. nothing has helped. i can say that it has become better since october to not feel constant but the last 4 days has been constant! also, i have pcos and when i came off my birth control in september this started in october . he said it could be a hormone thing due to pcos and birth control not controling it anymore but i am hurting constantly now and just need answers!! my husband and i are trying to conceive and its been hurting the last few days for than ever due to us trying so much. i was not very sexually active from october to january due to wanting to cure this!
bradlay89 emily10660
Posted
Rule out fungal infection.
Rainbow1106 emily10660
Posted
Hello Emily! My name is Rainbow. Ask your doctor to test you for STIs. In November 2020, I was test positive for Ureaplasma Urealyticum. Ureaplasma is a group of tiny bacteria that inhabit the respiratory and urogenital (urinary and reproductive) tract. They are some of the smallest free-living organisms in the world. They’re so tiny that they can’t be seen through a microscope. The symptoms are pain during urination, burning sensation and discharge. Your doctor can give you Doxycycline - 100 mg twice daily for 7 days to clear it up. Once I took the Doxycycline my pain during urination stopped, and my test results came back negative Urealyticum. Ureaplasma. I took my other test like STD's & yest infection and BV and they all came back negative. Now I am dealing with a burning sensation in my Vagina. The last 6 day I've cut back on all sweets and breads, and I take Probiotic two times a day and drink lots of water. It has helped a lot. Last night it felt like my sugar was getting low, so a drank some orange juice.... and today, my Vagina is on fire. I'm drinking a lot a water so hopefully, I get some relief soon.
leslie20051 emily10660
Posted
This has happened to me recently. Last week I starting burning really badly while urinating and even afterwards it would still burn. It was really hard to sleep the first night it started. I went to a extended care and they had me take a urine test to see if I had a uti and prescribed me some antibiotics. The burning has gone away a little bit from the pills that are meant to help you with relief from burning but not completely. I am still burning while taking them which doesn't seem quite normal to me. The urine test came back negative for uti so idk what the problem is. Did you ever find out what is was?