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Came across this medical/clinical trial link. Studies are for atropic vaginitis BUT I have that too!! (Wondering if many of us do...).
I could not find Vit d suppositories online - just liquid for babies and softgels.
So what say you? Should we do a group trial and put our vitamin D softgels where the sun don’t shine? 🤣
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Geeze, I don't think I want to put another bloody product down there right now. I have a cornucopia of products I'm trying to feel comfortable with. I wish I could attach a picture of my cache. WOuld love to know what others think.
Tonight I’m repeating over and over this (fill in remedy) is working to heal me... in desperation and hope all at once. I pray a lot too.
But isn’t this interesting???
oh, I had this vibration feeling some months ago, I don't know what stopped it - but now that you mention it I'm wondering if that crawling sensation might have anything to do with the similar prinkly sensation of Vitamin B12 deficiency that sometimes happens to feet or hands?
what do you all think? is it worth a try? I've been taking a B-complex and a separate Vitamin B12 spray under th tongue for many months since I began the supplements study. Just a thought...
Pat that's so strange that you mention a vibration feeling. I also get that and I now know that it signifies a change/ big irritation about to start.
I am going tback to my GP tomorrow to ask to be referred to consultant again. I feel like I'm going round in circles -cocnut oil/olive oil/ nappy rash cream/ aloe vera. These things seem to work for days or weeks then randonmly stop working. I'm having a bad flare up just now so rally need to get some control back
I too get a sensation that there is some kind of movement down there and I freak out that it is eating up the other labia. Last night I mixed a tiny bit of Clobestol with Aloe and tumeric oil to stop any sensation. I think it worked. I'm trying to bring the color back to normal. I'm already fused on one side and the monster is working on the other side. I"m so tired of this daily obsession with my lower extremeties.
Two others saying they have that movement feeling!!! I feel better that it’s not just me (but sad any of us have it). Mine has been almost constant for weeks and weeks!!! I notice it more at night though.
Right now I’m not doing great. This has zapped me mentally and emotionally. Just too long... so much damage... so much discomfort pain and ... it’s been disabling.
So glad you’re all here. 💜
I can’t believe two other people have said they have it too!! Sometimes I think I’m ready for the psych ward with this affliction. I am a strong woman but this has taken me down!
So glad I mentioned it.
I feel the same, a long time without relief.
So glad you’re here and we all have each other. 💜
Beyond trying to understand
Looks like psoriasis suffers use a vitamin d cream, would make sense that it might help our condition as the two are similar. A quick look and I found this on Amazon. https://www.amazon.com/Advanced-Recommended-Absorption-Vita-Sciences/dp/B00N5I469U/ref=mp_s_a_1_1?ie=UTF8&qid=1532442660&sr=8-1-spons&pi=AC_SX236_SY340_FMwebp_QL65&keywords=vitamin+d+cream+for+psoriasis&psc=1
I will read your link and decide if I should try and then come back and let you know.
Hello, I'm up for an experiment if you are. I was thinking of making my own suppositories because I'm not sure you can buy such a thing here in the UK. Maybe mixing the vitamin with coconut oil perhaps? I'm not sure how strong the vitamin D dose should be though, any ideas??
Let us know if you have a successful recipe! 💜
I have used probiotics vaginally after a bad flare I had due to the flu. This was recommended by a functional medicine doc .
PAT! this is really fascinating research article - thanks. Did you notice that there is a statistical difference between only taking 1,000 IU a day versus 2,000 IU in this study? and the understanding that vitamin D is really a hormone. I had read months ago on another site that vitamin E softgels are also helpful for vaginal dryness. THis has great resaerch behind it. I'm gonna find them. I think I'd do for the 5,000 minimum that i've been reading about. I hope i'm right in assuming that Vit D delivered tothe skin which is absorbed it doesn't make any difernce if it's topical on the arms or vaginally.. smiles. the whole body should be gettgin the benefit at the same time. and reducing even that little cancer risk is really cool!
And I’m pretty cranky right now haha.
Yes I thought it was fascinating as well, and hopeful. I had also read about D having hormonal effects in a positive way.
I’m not sure I’m up for the challenge until I get just a little break in this nightmare. It’s been steadily worse since February but really revved up the past couple+ months.
The aloe/turmeric helps some, the emu oil has given me the most pain relief and I’m using the steroid cream once a day (down from twice). It seems to have caused a skin irritation (thinning?) on the back area so I’m only using small amount on fused areas along with the rest....
Hope is a good thing!
Your energy is refreshing!!!!
Oh Pat! you are so dear to say.. but guess what? I was really cranky with myself today! who knows.. not only do we have LS to contend with, we have the MOON that sometimes messes with us.
I think we women right here are going to eventually find the solutions for the many of us - WE don't have to prove causality - just a good list of anecdotal cases will help those who come after us.
I love everyone's suggestions for getting the word out to our doctors and pharacists, hey even news articles. This particular skin disease may only have a 5% occurance, but it sure affect whole lot of peoples lives.
I may create another separate post about why I refuse to let them biopsy on me. But while talking with a friend about that today, we both used the phrase “dark ages” regarding women’s healthcare at the same time!!!
Yes! This forum of amazing folks are certainly the true experts!
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