Vertigo. left with constant dizziness

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Hi everyone. I was stricken with really bad vertigo 3 weeks ago. I had to be hospitalized as well. since then, I've been left with the standard dizzines. constantly for three weeks now. Like i'm off balance. But not full vertigo. the room is no longer spinning, but the dizziness won't go away. 

epley manuvers are not wotking as well as others that i've tried. It seem that these maneuvers are for vertigo, and not the dizziness aftermath.

I have an appointment with an ENT soon. But I want to get some opinions. when with this go away? I can't drive and going on 3 weeks. 

I'd appreciate anyone's response. thanks!

-Pete

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  • Posted

    Hi Pete, it might not be what you want to hear but I'm 13 months in now. I've had every scan known to man and 6 or 7 different consultants who all diagnosed according to their specialism from vestibular neuritis to hypothyroid to possibe ms/transverse mylelitis to spinal stenosis.

    I've had no medication nor treatment and now no one really wants to see me. I have had private bloods done to monitor the thyroid and am considering medication from online pharmacies to see if they help with a possible lyme infection. The neuro says come back in 6 months if nothing improves or new symptoms appear as have the others.

    The key thing is not to get anxious or depressed. It's hard not to but if I had accepted that I'd be on the happy pills now and none the wiser about possibe causes.

    Saying all this most people with a dizzy problem do slowly improve over a few months. My case may not be typical at all but I had to go down the investigation route rather than ignore it as my GP wanted me too.

    It might be worth pushing for an mri of the head and cervical spine to eliminate the nasties but GPs are loathe to do this if they diagnose post viral or labrynthitis however it's your illness not theirs.

    Wishing you a quick recovery, Chris.

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    • Posted

      thanks Chris! I appriciate is so much. I DO hope your condtion improves. How do you get around? are we looking at disablility? that scares me. Because I cant work. Prayers for all of us with this horrible ordeal.

      thanks! best wishes

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    • Posted

      Hi Pete, don't think worst case! Although I am still dizzy all the time the body does adapt. I feel like I have a 24/7 hangover. So I take a couple of neurofen which is probably more placebo and I try to take my mind of it. I walk a lot initially to retrain my brain and I also cycle. It helps to clear my head. I think exercise is a definite must do.

      Some days are worse but on the good ones I do drive. Luckily I'm not working so I don't have to worry about that side but for the first 6 months I really wouldn't have been able too.

      Everyone is different though. Did you have a virus/flu before your vertigo? If so it is likely post viral and will clear as rapidly as it arrived. If it were out of the blue I'm surprised you didn't get scanned. If you have a history of anxiety you'll be aware how that illness can appear as physical symptoms. Your GP should be aware or made aware of the history before the vertigo. I found that mine weren't really interested. I really had to push for the ENT.

      Like I say, it's your body and you have to insist on a referral if your not getting help from your Dr..though you have had a ENT appointment so hopefully they will offer treatment or further investigation.

      I

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  • Posted

    This sounds awful. I had vertigo for 4 months. The final doc, ENT, diagnosed BPPV--benign paroxism vertigo (and one more word.) He tested me vigorously and also said I have the relapsing kind. I had it two times before this. All three times it came on at a time of grief and stress.

    He sent me for vestibular therapy. While having it, I was often dizzy but that was necessary. I was given additional exercises (involving turning head while walking, etc.) which I did religiously during that time and afterwards for about a month or less. I eventually got rid of it. But now, many months later, I sometimes get dizzy when making a quick movement to the side, down to the floor, or up at the ceiling.

    Because of the residual dizziness, I get out of bed, sitting up first and dangling my legs. Then I stand up after waiting a bit. Also I sleep on high pillows because laying down flat can bring it on again.

    I hope you will keep looking for a good ENT, someone who knows about these ear-involved problems. And maybe google vestibular therapy. I think diagnosis is key.

    I did do the Epley every day for weeks, and it helped a little. But the thing that got things back in place (in my ear) was the vestibular therapy.  Good luck. Keep on it.

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  • Posted

    Hi Pete.....I would right now make an appointment with an otologist/neuro ent....because you may need to wait 3 weeks to be seen....remember you can always cancel........i would go through all the testing..blood work, balance test gaze test...rotary chair....caloric...hearing  etc.....if all these tests are normal....see a nerologist.........a headache specialists....you dont need to have a headache...there is something know as migraines associated with vertigo....be prepared alot of trial and error with meds.......not going to lie  not pleasant...and its a long haul...hopefully you wont have it........Do  you live in the states
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    • Posted

      Great advise Rita. I have donr most of the tests already, exept for the ENT. I have an appointment with them n ext week. ya you're right, it takes weeks to be seen. My MRI and CT scan came out great. I have an untra sound tomorrow just to check my blood vesells in my kneck to checl for clots. I do live in the states. I'm sure the ENT will put me through most of what you have suggested. thanks again! god bless and best wishes
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    • Posted

      another suggestion if you don't mind  get an MRA done of the neck...its just like an MRI its suppose to show if theres enough blood flowing to the brain...If the ent wont do it see your GP ....I had at the begginning a horrible ent doctor...I had to insist almost beg for him to put in for a few tests  it was crazy...I live in New York.................
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  • Posted

    Hi Pete.        I was very surprised to see the words Transverse myelitis on your page. I also had a clinically isolated  Transverse myelitis that happened in the 1990's and I go to the UCLH in Queens square London. I have just been back to see if my unsteadiness and drunken swaying is connected to it, I have terrible balance and could not walk in a straight line if you payed me. I also have spinal problems. However like you they have not made an connection.  You don't have TN by any chance or a condition called SUNA do you.          I get bouts of being of balance and falling all over and it can last from 10 min to a couple of hours but once it goes then that's it I don't get anymore that day. Ive been like this on and of for about7years.  I am now being monitored, if that's the word for stress and anxiety.    

    I hope you get a MRI scan soon as it might not tell them what is going on but it should tell them things that can be aluminated.      Take care.

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    • Posted

      Hi Annie, I think that was me. I have loads of issues relating to dizziness and neuropathic symptoms. Brain is clear but neck showed severs stenosis so that's mechanical but also a high t2 signal in the cord which the neuro didn't think was ms as I passed the physical etc so he suggested b12 deficiency which was low bit not scary low. Also he thought maybe clinically isolated TM but I didn't have really bad symptoms thank God...so basically no idea and it's a wait and see if anything happens...I do have lhermitte's sign so there is a definite physical response to it but if it stops there I can cope with that! All good fun eh?! Hope you're not so bad. Chris
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    • Posted

      Hi Chris you are forgiven.   I find that i am also depressed at times as i cant do what i had planned for the day.     If it was'nt for my husband doing so much for me as i have other neurological problems i would be a real mess.

      I dont know from one morning to the next what i can do. I do try very hard to hang onto walls and other surfaces and work through sometimes i can. If i have to sit down then I close my eyes and breath and do a body scan, do you know what that is. I learnt how to do body scans in your mind when i went to mindfulness. Look it up. I thought it was a complete waste of time when i was first introduced to it but stick with it and it dose work.   Have you had your Thyroid checked and a brain scan for leisons.

      Eyes, what about your eyes do you have any stigma or eye disease.

      I started of the day as soon as my sister called and i was pleased to see her, maybe adrenalin rush. Who knows but trying to analise conditions all the time dose not do me any good. It lasted about 1hr today and was very mild.

      How are you today.

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