Vestibular

5 years???? Oh my god 😩😢how do you cope? And there is no hope for me then is there

You learn to live with it, some days is

t is worse than others. I find if the weather is hot, then I am more dizzy and my balance is all over the place

You poor thing

I know Chris it's soo difficult to stay positive tho and after reading that lady has been suffering for 5 years it's like wow ok there's no hope for me.

I have my baths with my oil & spray lavender every night & started to do the vestibular 5 times a day so I am trying to stay positive & stress free. Iv lost my job, my friends & no partner it's really difficult. & when you're mums not supportive eaither can be difficult. Imagine if we woke up one day feeling normal omg I'd scream and run around haha! And cherish life so much. I even fort God was punishing me or someone was as well. Your brain is in over load with this.

But we have to stay positive! Even tho it's hard we have to!

Michelle, if you believe in God, which I do, i don't believe  it's a punishment. God is kinder than we think.  This was brought home to me when i visited my GP recently,  who no doubt was trying to be sympathetic towards me,  but said to me 'you must feel like you're being punished'.  I hadn't thought that at all because this isn't personal, it just happens, as do other kinds of illness.  Please try not to think that way because it will only drain you of the energy you need to adapt to this condition and you need that energy to try to recover.  Keep doing what you're doing to try and help yourself, take no notice of those who don't understand, although it's difficult,  because there are plenty of others on here who do understand. Sometimes i wonder if there is a much simpler remedy to all this that hasn't yet been established.   Just do it one day at a time because piling on all the anxiety about having it 'forever' doesn't make it any easier.  Marion has learned to live with it despite it being 5 years, and she's right.  Last week i thought this is never going to go away, then i've had a good week this week, but it could be back again tomorrow,  so it's ups and downs but i hope the periods of respite become longer in duration once I learn to adapt.  When this first started i hoped it would be gone within a few weeks and then it got worse.  It has never been as bad as it was since then and the periods of imbalance have lessened so hopefully something is healing/ adapting to this condition, even if very slowly.  Hang in there  I'm off to bed, as i should have gone much sooner.

Hmmmmm

Just seeing what she wrote has made me very depressed & I dont want to get into a god battle but if there was a god he wouldn't allow us to have this I'm 23 I'm tiny too I can't cope & my body can't cope so Saddly I don't believe in him.

But that's just me.

The last 3-4 weeks Iv been the worst Iv been in long time soo dizzy & constantly felt like being pushed its got worse & these excersizes do not make things easier you feel sick & dizzy & get the shakes after. But he said that was all god. Will see Iv gotta keep doing something Spose or I will just lay in bed all day every day what Iv been doing since October. I bought a pony too week ago to get back into and tbh I'm struggling I'm at yard & I feel dizzy & have sit down every 5mins that's no life for anyone! But horses are so therapeutic I think she knows I'm not well as she's very patient.

All the best xx

Hi Michelle, good news about your pony - hoping it helps to take your mind off all this.  Are you OK riding? or does it cause you balance problems? 

I'm not overall sure about doing the exercises too much if they make you feel worse but lying in bed too long makes me feel worse when i eventually do get back up.   I think the more i try to do the more i challenge this dizziness perhaps has helped me most but its about getting the balance right.  I do my exercises but they are my own made up ones and i only do them once a day and then only briefly, cos i work and drive i can't do anything that makes me feel worse. 

I don't know how long you've had this dizzy problem but i know when i first got it it was much more severe than it is now.  Over the past 2 years i've had about a further 4 to 5 bouts of BPPV and although it still affects my vision and balance it was never as bad as when it started and i was crawling around on the floor.  So i only hope that you learn to compensate more and more and end up feeling a whole lot better as you learn to adapt. 

Take care.

Hello Anne

Why don't you do the excersizes? Sorry to sound rude? But if you're complaining why don't you do them? At least try anyways?

Yes they make you feel abit dizzy and feel sick BUT he told me that was a good sign that my body is working. His a specialist so why wouldn't I believe him?

You shouldn't rule it out! Also if you're making them up that's also not good! You should make sure they are the ones provided.

And I'm fine riding that God it's actually very good for balance. Iv not ridden in 2 years and Iv got back into it. It's more ground work I get more dizzy from.

All the best

Yes Iv tried accupunture as I had issues with my neck. And it really helped with the neck. Didn't help with the stress mind you but helped with the neck. I do rdccomend it to people to try.

Yeah that's true. The more we stress the worse it gets. But it's not purely depressions tho like Drs try say it is as they have to rush you out there. I didn't feel depressed until all this.

X

I'm in Essex Chris

And my pony peanut her name is lol she's fantastic she's so patient and I always give her a cuddle. Iv had horses since little Girl and I can honestly say animals sense things. I lost my horse 2 years ago in a accident and I always get upset about it. Iv had a terrible 1-2 years. Loosing my horse,dogs partner and then suffering with vertigo.

I honestly think it adds on stress ect. My therapist ( I did counselling ) agreed she said youv had such a terrible time BUT she didn't think it was all MH issue she did say you need to get this vertigo looked at. And Saddly I just can't afford to see her anymore ( ATM anyways ) I highly reccomend to people to go counselling its amazing just talking to someone who doesn't judge you and listens.

I'm sorry to hear you didn't sleep. BUT it was really hot last night! I was so hot! You need to buy sage oil & lavenda oil for the bath ( both good for stress ) and lavenda spray and I use head balm aswell it does help me to relax. But the heat doesn't help. My mum can't even sleep very well cause the heat lol so the heat doesn't help.

Xx

Michelle, perhaps you should use Peanut as your therapist. She will just listen and not judge you. Animals are so understanding. Taking a dog for a walk is very stabilising, having a lead to hold on to. I've had the tingling in my arms and neck, was very worried. Everything I experience is now put down to THE VERTIGO! 

I have tried Vitamin B tablets as suggested by others on here, but they didn't help me.

I've recently been diagnosed with underactive thyroid, so hope the treatment for that may help with these symptoms.I found this Forum really helpful and don't feel quite so alone with this. 

Good luck with your riding, persevere. I play bowls and that certainly helps. Getting up and down to play the bowl certainly challenges the balance and dizziness issues, however, I'm going to persevere, when I feel well enough. I feel mcuh better when I come home, but very tired. I guess that's the stress in making myself go!  I'm frightened I will pass out, but so far so good. So far have only been 3 times.