Vestibular

So 4 months and its worse than ever. No idea what to do except wait for my appt in a week or so. Anyone also get tingling legs and mild headaches? Not sure what is to do with this or what is just in my head now.

Hope you had fun with Peanut michelle! 

12JUN15 @ 6:30pm GMT 

Thank you for getting back to me about the exercises, and thank you to all of you for your great input.

I would like to express my opinion about the relativity of these things that we read about on this forum, including depression, satisfaction and even God.

I am not a doctor.  >BUT<  it has been my discovery, through hours and hours of reading and studying and asking hundreds of questions to everyone i meet with this hideous disease as well as the professionals that i have seen, that depression can certainly come from a balance disorder.  

depression is one emotion that we derive from the whole balance system.  it is a complex system, involving the equilibrium function of the vestubular system, the feedback we get from our eyes, legs, feet and gluteus (bum) maximus. 

our whole attitude and understanding about how we feel is influenced by this complex.  our very feeling of well-being (our pereception of how we are doing) comes from our ability to understand what is happening to us, and that involves our brains using the balance complex.  things like depression, anxiety, stress,etc originate not entirely, but certainly, from the balance system affecting our brains.   i won't explain it in detail here, but it really has been my finding.  

the emotional state of mind, as we have all heard, is soo important to someone with an illness, especially to someone with a terminal illness.  we have learned that if we are happy and something terrible happens we deal with it much better than if we are already down in spirit. studies have shown that if we are successful or triumphant our brains release hormones and secretions that make us feel good and create a calmness for us. we all know that mood therapy is not complete without mental prepardness.  so it just makes good sense to keep a positive outlook going.

on the subject of faith and religion, prepardness applies again.  practicing a religion, any religion, aids in making one more able to accept both negative and positive experiences.  it is a matter of conditioning.  just like an athlete who is proficient at some sport due to conditioning, the human mind can be conditioned to accept things as life progresses.

the belief in "god" for example is a conditioning process that one goes through in order to explain things of a higher level of understanding than they themselves can explain.  in christianity the trials and tribulations are  a process meant to strengthen and prepare us for things that would be overwhelming to us if there were no conditioning.  

then there are statements like; "power corrupts and absolute power corrupts absolutely."  these are conditioning the mind to handle success and be humble about it.  since ultimate understanding or knowledge will be overwhelming, it's sort of a governor or throttle to keep success from corrupting our belief in ourselves. 

one idiom i try to live by is "all things in moderation".  i don't know that i do it all that well, but as i age i see how it makes good sense, so i keep trying.  i don't "blame" god, as in punishing me or abandoning me, but i certainly do keep a sharp eye out for the reason why i have it.  i look at heredity and viruses and damage caused by a bump on the head, or a vertebrae issue. then i tell my self that it is far better than cancer or a stroke.  

i try to learn all i can about this lousey vn and in so doing i am preparing myself for the future.  i know that depression is a strong possibility due to the lack of good signals from my damaged nerve, so i keep it in total check by changing up my routines and trying not to dwell on it too long.  

one of the ent's that i was seen by told me not to go on these web based forums because she felt they were not good for me.  eventhough i disagree with her, i do understand what she means, it goes back to that moderation thing.  if all i do is read about this monster, and everyone else's problems with it, i certainly could be influenced in a negative way by it.  so i change it up a bit by going in different directions with it.  like making a joke out it (the monster).  

as an example: when i meet people that don't understand what i dealing with, sometimes i tell them i feel like i just drank 3 or 4 glasses of wine.  then i say it feels like "happy hour" , or, "it must be happy hour somewhere because i'm sure feeling happy."  they usually laugh and say "well is that so bad?" to myself i say it is, but to them i say " no it saves me a lot of money".  my joy is derived by knowing that they couldn't possibly know what i am enduring and that they would hate it if they were actually "drunk" all the time.  it makes me laugh on the inside!  

of course there is this :       when all else fails,  eat cake.  (moderately)

i hope this helps.  good day !

ben

   [/b]it="" has="" been="" my="" discovery,="" through="" hours="" and="" hours="" of="" reading="" and="" studying="" and="" asking="" hundreds="" of="" questions="" to="" everyone="" i="" meet="" with="" this="" hideous="" disease="" as="" well="" as="" the="" professionals="" that="" i="" have="" seen,="" that="" depression="" can="" certainly="" come="" from="" a="" balance="" disorder.=""  ="" depression="" is="" one="" emotion="" that="" we="" derive="" from="" the="" whole="" balance="" system.=""  it="" is="" a="" complex="" system,="" involving="" the="" equilibrium="" function="" of="" the="" vestubular="" system,="" the="" feedback="" we="" get="" from="" our="" eyes,="" legs,="" feet="" and="" gluteus="" (bum)="" maximus. ="" our="" whole="" attitude="" and="" understanding="" about="" how="" we="" feel="" is="" influenced="" by="" this="" complex.=""  our="" very="" feeling="" of="" well-being="" (our="" pereception="" of="" how="" we="" are="" doing)="" comes="" from="" our="" ability="" to="" understand="" what="" is="" happening="" to="" us,="" and="" that="" involves="" our="" brains="" using="" the="" balance="" complex.=""  things="" like="" depression,="" anxiety,="" stress,etc="" originate="" not="" entirely,="" but="" certainly,="" from="" the="" balance="" system="" affecting="" our="" brains.=""  ="" i="" won't="" explain="" it="" in="" detail="" here,="" but="" it="" really="" has="" been="" my="" finding.=""  ="" the="" emotional="" state="" of="" mind,="" as we="" have="" all="" heard,="" is="" soo="" important="" to="" someone="" with="" an="" illness,="" especially="" to="" someone="" with="" a="" terminal="" illness.=""  we="" have="" learned="" that="" if="" we="" are="" happy="" and="" something="" terrible="" happens="" we="" deal="" with="" it="" much="" better="" than="" if="" we="" are="" already="" down="" in="" spirit.="" studies="" have="" shown="" that="" if="" we="" are="" successful="" or="" triumphant="" our="" brains="" release="" hormones="" and="" secretions="" that="" make="" us="" feel="" good="" and="" create="" a="" calmness="" for="" us.="" we="" all="" know="" that="" mood="" therapy="" is="" not="" complete="" without="" mental="" prepardness.=""  so="" it="" just="" makes="" good="" sense="" to="" keep="" a="" positive="" outlook="" going.="" on="" the="" subject="" of="" faith="" and="" religion,="" prepardness="" applies="" again.=""  practicing="" a="" religion,="" any="" religion,="" aids="" in="" making="" one="" more="" able="" to="" accept="" both="" negative="" and="" positive="" experiences.=""  it="" is="" a="" matter="" of="" conditioning.=""  just="" like="" an="" athlete="" who="" is="" proficient="" at="" some="" sport="" due="" to="" conditioning,="" the="" human="" mind="" can="" be="" conditioned="" to="" accept="" things="" as="" life="" progresses.="" the="" belief="" in="" "god"="" for="" example="" is="" a="" conditioning="" process="" that="" one="" goes="" through="" in="" order="" to="" explain="" things="" of="" a="" higher="" level="" of="" understanding="" than="" they="" themselves="" can="" explain.=""  in="" christianity="" the="" trials="" and="" tribulations="" are=""  a="" process="" meant="" to="" strengthen="" and="" prepare="" us="" for="" things="" that="" would="" be="" overwhelming="" to="" us="" if="" there="" were="" no="" conditioning.=""  ="" then="" there="" are="" statements="" like;="" "power="" corrupts="" and="" absolute="" power="" corrupts="" absolutely."=""  these="" are="" conditioning="" the="" mind="" to="" handle="" success="" and="" be="" humble="" about="" it.=""  since="" ultimate="" understanding="" or="" knowledge="" will="" be="" overwhelming,="" it's="" sort="" of="" a="" governor="" or="" throttle="" to="" keep="" success="" from="" corrupting="" our="" belief="" in="" ourselves. ="" one="" idiom="" i="" try="" to="" live="" by="" is="" "all="" things="" in="" moderation".=""  i="" don't="" know="" that="" i="" do="" it="" all="" that="" well,="" but="" as="" i="" age="" i="" see="" how="" it="" makes="" good="" sense,="" so="" i="" keep="" trying.=""  i="" don't="" "blame"="" god,="" as="" in="" punishing="" me="" or="" abandoning="" me,="" but="" i="" certainly="" do="" keep="" a="" sharp="" eye="" out="" for="" the="" reason="" why="" i="" have="" it.=""  i="" look="" at="" heredity="" and="" viruses="" and="" damage="" caused="" by="" a="" bump="" on="" the="" head,="" or="" a="" vertebrae="" issue.="" then="" i="" tell="" my="" self="" that="" it="" is="" far="" better="" than="" cancer="" or="" a="" stroke.=""  ="" i="" try="" to="" learn="" all="" i="" can="" about="" this="" lousey="" vn="" and="" in="" so="" doing="" i="" am="" preparing="" myself="" for="" the="" future.=""  i="" know="" that="" depression="" is="" a="" strong="" possibility="" due="" to="" the="" lack="" of="" good="" signals="" from="" my="" damaged="" nerve,="" so="" i="" keep="" it="" in="" total="" check="" by="" changing="" up="" my="" routines="" and="" trying="" not="" to="" dwell="" on="" it="" too="" long.=""  =""  ="" one="" of="" the="" ent's="" that="" i="" was="" seen="" by="" told="" me="" not="" to="" go="" on="" these="" web="" based="" forums="" because="" she="" felt="" they="" were="" not="" good="" for="" me.=""  eventhough="" i="" disagree="" with="" her,="" i="" do="" understand="" what="" she="" means,="" it="" goes="" back="" to="" that="" moderation="" thing.=""  if="" all="" i="" do="" is="" read="" about="" this="" monster,="" and="" everyone="" else's="" problems="" with="" it,="" i="" certainly="" could="" be="" influenced="" in="" a="" negative="" way="" by="" it.=""  so="" i="" change="" it="" up="" a="" bit="" by="" going="" in="" different="" directions="" with="" it.=""  like="" making="" a="" joke="" out="" it="" (the="" monster).=""  ="" as="" an="" example: when="" i="" meet="" people="" that="" don't="" understand="" what="" i="" dealing="" with,="" sometimes="" i="" tell="" them="" i="" feel="" like="" i="" just="" drank="" 3="" or="" 4="" glasses="" of="" wine.=""  then="" i="" say="" it="" feels="" like="" "happy="" hour"="" ,="" or,="" "it="" must="" be="" happy="" hour="" somewhere="" because="" i'm="" sure="" feeling="" happy."=""  they="" usually="" laugh="" and="" say="" "well="" is="" that="" so="" bad?"="" to="" myself="" i="" say="" it="" is,="" but="" to="" them="" i="" say="" "="" no="" it="" saves="" me="" a="" lot="" of="" money".=""  my="" joy="" is="" derived="" by="" knowing="" that="" they="" couldn't="" possibly="" know="" what="" i="" am="" enduring="" and="" that="" they="" would="" hate="" it="" if="" they="" were="" actually="" "drunk"="" all="" the="" time.=""  it="" makes="" me="" laugh="" on="" the="" inside!=""  ="" of="" course="" there="" is="" this :=""  =""  =""   when="" all="" else="" fails,=""  eat="" cake.=""  (moderately)=""  =""  ="" i="" hope="" this="" helps.=""  good="" day="" !="" ben="">

depression is one emotion that we derive from the whole balance system.  it is a complex system, involving the equilibrium function of the vestubular system, the feedback we get from our eyes, legs, feet and gluteus (bum) maximus. 

our whole attitude and understanding about how we feel is influenced by this complex.  our very feeling of well-being (our pereception of how we are doing) comes from our ability to understand what is happening to us, and that involves our brains using the balance complex.  things like depression, anxiety, stress,etc originate not entirely, but certainly, from the balance system affecting our brains.   i won't explain it in detail here, but it really has been my finding.  

the emotional state of mind, as we have all heard, is soo important to someone with an illness, especially to someone with a terminal illness.  we have learned that if we are happy and something terrible happens we deal with it much better than if we are already down in spirit. studies have shown that if we are successful or triumphant our brains release hormones and secretions that make us feel good and create a calmness for us. we all know that mood therapy is not complete without mental prepardness.  so it just makes good sense to keep a positive outlook going.

on the subject of faith and religion, prepardness applies again.  practicing a religion, any religion, aids in making one more able to accept both negative and positive experiences.  it is a matter of conditioning.  just like an athlete who is proficient at some sport due to conditioning, the human mind can be conditioned to accept things as life progresses.

the belief in "god" for example is a conditioning process that one goes through in order to explain things of a higher level of understanding than they themselves can explain.  in christianity the trials and tribulations are  a process meant to strengthen and prepare us for things that would be overwhelming to us if there were no conditioning.  

then there are statements like; "power corrupts and absolute power corrupts absolutely."  these are conditioning the mind to handle success and be humble about it.  since ultimate understanding or knowledge will be overwhelming, it's sort of a governor or throttle to keep success from corrupting our belief in ourselves. 

one idiom i try to live by is "all things in moderation".  i don't know that i do it all that well, but as i age i see how it makes good sense, so i keep trying.  i don't "blame" god, as in punishing me or abandoning me, but i certainly do keep a sharp eye out for the reason why i have it.  i look at heredity and viruses and damage caused by a bump on the head, or a vertebrae issue. then i tell my self that it is far better than cancer or a stroke.  

i try to learn all i can about this lousey vn and in so doing i am preparing myself for the future.  i know that depression is a strong possibility due to the lack of good signals from my damaged nerve, so i keep it in total check by changing up my routines and trying not to dwell on it too long.  

one of the ent's that i was seen by told me not to go on these web based forums because she felt they were not good for me.  eventhough i disagree with her, i do understand what she means, it goes back to that moderation thing.  if all i do is read about this monster, and everyone else's problems with it, i certainly could be influenced in a negative way by it.  so i change it up a bit by going in different directions with it.  like making a joke out it (the monster).  

as an example: when i meet people that don't understand what i dealing with, sometimes i tell them i feel like i just drank 3 or 4 glasses of wine.  then i say it feels like "happy hour" , or, "it must be happy hour somewhere because i'm sure feeling happy."  they usually laugh and say "well is that so bad?" to myself i say it is, but to them i say " no it saves me a lot of money".  my joy is derived by knowing that they couldn't possibly know what i am enduring and that they would hate it if they were actually "drunk" all the time.  it makes me laugh on the inside!  

of course there is this :       when all else fails,  eat cake.  (moderately)

i hope this helps.  good day !

ben

 >

I suppose we all know that dizziness/anxiety/dizziness is a viscious circle so since I can't do anything about the dizziness, trying to curb the anxiety seems a sensible approach.  (I still don't believe I have any but there you go!) 

Today I have tried to focus on everything but the dizziness and try and stay relaxed, bloody hard but with the tabs taking the edge off I seem to feel a bit better.

Could just be a good day though and back to normal crap tomorrow! 

Just sharing though, if something does help a little it can't be bad....happy weekend all x

13JUN15@9:00pm GMT

I meant to portray the issue of depression is a part of the Vestibular disorder.  Not meaning it's a mental health issue.  Rather it is physical damage causing false signals that are interpreted as negative feedback , making confusion.  As an example, if you know that the room in not moving all around, but it looks like it is, or it feels like it is, that is contrary to your own knowledge and that triggers a physical change in the amount of Dopamine, Serotonin, Oxytocin, Endorphins and allows more cortisol be secreted creating the anxiety and hence the panic feeling.  

I don't believe one can "think" their way out of it, because it is physical damage. Tying to keep a positive attitude will always help in your ability to tolerate it.  Just like mood therapy may work to bring on more of the chemicals that wart off cortisol,and bring on calm.  You have to remember the whole thing starts with false signals triggering confusion and your body's way of dealing with it is to make you panic to keep you safe.  The fight or flight syndrome kicks in so you can save yourself from the precieved danger at hand. About as mental as it gets is in our ability to learn and know so are not surprised in a negative way when it happens.  Hence "tolerate".

I hope this helps.

Ben