Vestibular Neuritis for 3 months. Does anyone share these residual symptoms?

Posted , 18 users are following.

Diagnosed with VN (42% hypofunction in my right ear on the caloric exam). Three months into the arduous process, I've started VRT with some nice results.

Symtoms wax and wane and many come and go throughout the day. Brain fatigue is still very common and I realize it can take time to really improve and get better.

Some of the symptoms include:

1: Feeling funny when a car stops. This can happen even when continually stopping in traffic. This is a big one for me. So weird.

2. Unsteadiness on anything that is not a solid surface.

3. Brain fatigue after reading for too long, watching a film, or having a long conversation while tilting my head.

4. A little woozy after exercise.

5. Random dizziness / brain fatigue at moments throughout the day.

Do any of you share these symptoms?

Also, how has VRT gone for all of you?

Thanks in advance!

0 likes, 103 replies

103 Replies

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  • Posted

    Hi .. hope u doing well now ...I'm having VN since 7 weeks .. now it's better than before ..but there are some days that I feel 90% good and some days just 50 % not as first time having it ... but still doesn't go away ... 

    I feel bad after driving ...while driving I'm OK ...but after I feel worse ... 

    And the thing is some days u feel you are going to feel 100% fully recovered but then days more u feel 50% only ( again not same as before but still  50 % 

    Is that a common for you ...

    • Posted

      Hi Moohoo, 

      Just noticed your post after 5 months. Wondering how you are doing now? I have had V N for 9 months. Still experiencing sygnificant residual dizziness and vertigo but managing it much better, especially after 5 months of vestibular Physiotheraphy as well as trying various alternative therapies.  Recovery is v slow for me which could be because of my age. It is a bit frustrating. 

      If you were ok some days and 50% other day I would say you are pulling out of it. My symptoms are constant. Only first thing in the mornings, do I feel least impacted by the dizziness. But that lasts only 5-10 minutes. Also after using a pad or phone device the dizzying impact is stronger. Overall I feel more confident than I did when I first contracted V N and I began working again 3 months ago. 

      But I think the symptoms can vary slightly with people depending on factors such as age, general health condition, impact of the onset of V N etc. Anyway I hope you are free of V N now. Best John

  • Posted

    Hi! I see this is an older post but I too was diagnosed with VN about 6 months ago. I'm just curious to see how you feel today? These symptoms are affecting my life so much. Thank you!

    Lana

    • Posted

      Hi Lana, apparently according to the Vestibular Physiotherapist there was sygnificant damage to the tissues around my left vestibular nerve and healing and repair takes time. It has been 9 months now and repair is slow. Getting through some of the mental barriers such as laziness, tiredness, fear of incompetence is a bit of a challenge at times. I find that a good nights sleep is very helpful. I try to get 7-8 hours. Well I try 😐😀. I’m driving for work but do reduced hours. So being socially engaged in some productive way, I find helps me forget about my symptoms; mainly that residual dizziness. 

      First thing each morning it is least impactful but comes back after 5 minutes or so. But you are correct, it impacts on ones life in many ways. What worries me the most is the tiredness which can impact on memory loss at times. Which in turn effects your confidence. One Professional told me, “well you are 69”. I was a little shocked because he seemed to have a certain mind set that I don’t share with him. Age is a number.

      I’ve tried a number of different approaches to therapy; Chiropractic. Acupuncture. Having my teeth checked for potential root infections. Completed successfully the Vestibular Physiotheraphy. Sound therapy. I’m currently contemplating using supplements such as strong Tumeric based complex. I’m wondering if it could help restore any damage caused to the vestibular nerve and tissues. Also contemplating a Cannabinoid product for the same reason but believe it could be hard to come buy. The laws here in Australia not quite as liberal as in California. Not yet, 

      But it also encourages me to know that others have the same struggles as I do with V N and that we can make progress by communicating with each other. We are not alone in this. I know nobody here with this condition. 

      All the best with it Lana. Please let me know how you progress xx John

  • Posted

    Does anyone feel shaky when they stand up after being seated?
    • Posted

      Hi Susan, this is common. I have had this condition for 9 months now. I am 69. For me anyway it doesn’t want to go away in a hurry and causes some degree of impairment to my daily activities. However I have overcome any fears and after 5-6 months of chronic tiredness and vertigo went back to work. I still drive for a living and am not effected by V N whilst driving. It is as you said; the residual dizziness is frustrating so patience and perseverance with whatever therapies you choose is maybe the best way forward. Recovery times seem to vary a lot perhaps depending on age, fitness etc . Best. Don’t let it get you down
  • Posted

    Thank you, every bit of info I get helps!

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