vitamin d deficiency

Posted , 38 users are following.

Hi I have been having pain in my ribs and arms and shoulders for 4 months I don't seem to be getting anywhere with doctors I do have vitamin d deficiency and was Just wondering if it's anything to do with that doctors won't give straight answer please help

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  • Posted

    Thanks for your help doctors never told be any of this or even how low it is but I'm back there next week so I will ask how low it is do u think I should get another blood test it was beginning of October 2013 when I was diagnosed and I never got any leaflet with my tablets it just says on box take 2 at beginning of every month I have been reading up online and nobody has mentioned talking it like that it's useley daily or weekly or fortnightly have u every heard of it being taken monthly
  • Posted

    Doctors dont have time these days in consultation to tell anyone enough. They only have a 10 minute window; perhaps 5 minutes to see a patient, 3 minutes for some admin and 2 minutes for a breather, its all touch-&-go these days with the huge number of population growth.

    Patients are presented with printouts from the internet, stuff we could find ourselves online, this is my experience on several occasions. So, basically its just a matter of poking around and doing our own research and finding stuff out for ourselves. Then armed with enough information and knowledge you can intelligently push the doc for another blood test because if you request it often directly ask for another blood test they would refuse it. They would only order another test when 'they' feel the need to regardless how the patient feels or even if you been paying all your taxes whether working or not. I think the current gap is every 6 months but it could be more or less depending on the patient, how low the vitamin D is, if thers other medical problems or any other medication if you're on it, there are several factors that count.

    • Posted

      This is very helpful to me, thank you!

      I was told to come back in 6 months. I think I'll go with my BMJ article and then also ask to get tested for low Vit B and Low Ferritin (Normal hemoglobin) as they were low before they discovered the D-Deficiency. It all points towards malabsoption, but then again, it could be anything and it would be nice if my GP could help me find out.

  • Posted

    U are right about them being to busy 3 weeks I had to wait for appointment I remember years ago U would get in same week oh and thanks for your help I will keep looking in to it also for this month I'm gonna try the tablets 1 a fortnight see how that goes
  • Posted

    ..but you should take the tablets how your doctor has asked you to or according to what is written in the patient information leaflet in the box because everyone is different but not only that mine was 20,000 units per liquid capsule and you're taking 40,000 units a ***month*** NOT like me taking 5 of those in a day ?
  • Posted

    yes definitely doctors don't have much time. the internet is ideal step for the solution. you can easily get results for the problems. one more thing you should try some of the exercise for arms. and also take some remedial action for the vitamin d deficiency.
  • Posted

    so sorry to hear that you have vitamin D deficiency - it is extremely painful. do you get spasm-type pains in your bones? i did, and it felt as though my muscles were being 'torn' sometimes.

    i assume that your doctor has prescribed vitamin D supplements? it took about 3 months after starting supplementation before my pains started to decrease, and that seems to agree with the research. but i suppose it might depend how low your vitamin D level is to start off with. i was classed as 'insufficient' rather than 'deficient'. and , to reassure you, now my level is within the normal range once again those pains have gone......

    another very improtant thing is to work out the reason WHY you have low vitamin D. another chat with your GP perhaps? good luck and hope you start to feel relief soon. 

     

    • Posted

      Hi Dambudzo, I see you had bone pain also, I have a level of 5 and am treating, but my pain is increased more than when untreated - did you have any of this increased pain?  Is there any way around it?

      Thank you

    • Posted

      Okay, three months, that is encouraging to hear though!
    • Posted

      Hi dambudzo,

      I just wanted to know how long did it take for your symptoms of vitamin d deficiency to resolved and what level were you at when symptoms were gone.

      Did you ever get random blood pressure spikes? Especially in the mornings and sometimes at night?

  • Posted

    Hi thank you for your reply on vitD deficiency. I'm so happy for you now you have got rid of some of the pain.My doctor said it was because I have'nt had much sunshine as that is where you get vit d from.I have been going to him for 6yrs

    with muscle pain and muscle spasm in my legs and fingers (horrendous) the he sent me for a blood test says the test shows i am at 12 and the worse case he has seen since working in the hospital I'm on my 2nd month of capsules so am hoping it will get better soon (you too) I have to have another blood test in august

  • Posted

    I've got Vitamin D deficiency as well and my level is 22.2 n/mol.   My doctor has given me 10,000 units daily of Colecalciferol for 14 days.  A month after finishing the tablets, I will need a blood test to check my calcium levels and then a further blood test two months after that to check my Vitamin D levels again.  After that, if necessary, I will need to go onto a maintenance dose.  There is a lot of information about Vitamin D deficiency and the treatment needed on the National Osteoporosis Society website and their free helpline is excellent.  There doesn't appear to be any one general method of treatment and hospitals seem to work from their own criteria.  I've had bone pain and fatigue for some time, but never realised it may have been due to anything like a deficiency.  It was only picked up when I saw a consultant for the first time, for another problem, and he did a lot of different blood tests.  I hope you're soon feeling much better.
    • Posted

      Hi Rosia, I am deficient with a level of 5 ng/ml. From reading your post, you had bone pain and fatigue prior.

      I am having a increased amount of bone pain taking Vit D to correct the issue, did you have any increased pain during therapy?  Did it go away?  Did you add anything else other than Vit D to decrease pain during treatment?

      Thank you!

    • Posted

      That's similar to mine, I got 14 days of 10,000 IU and then one of 10,000 IU once a month after that. It's been six weeks now.
    • Posted

      Hi Austin,

      It's unfortunate that you weren't able to get a reply as I have been experiencing the same as yourself. Since 9 months has passed, I was wondering if you could answer any questions?

      Firstly, could you confirm that your muscle/bone pain got worse AFTER your treatment? How long did it take before your symptoms got better? Also, how bad was the muscle pain? Since my treatment, the muscle pain has gone from being just in the morning to throughout the day.

      Thanks,

      James

    • Posted

      Hi Cheetah,

      I wanted to ask you how long before your fatigue resolved with vitamin d deficiency? I am going through the same thing as my doctor doesn't believe vitamin d deficiency could be causing all this pain and fatigue. So she is referring me to a rhuematologist.

    • Posted

       I believe it was a few months before I began to feel a lot better, Taro.  I hope your appointment with the rheumatologist goes well.  At least, he/she will be able to look into everything.  Take care.

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