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Vitamin D deficiency success stories

I am in the midst of this deficiency trying to recover from the horrible symptoms that it can cause. I want to hear from people who have overcome this deficiency and how they did it. If there was adverse affects of long term use of vitamin d supplements.

How long did it take to make a full recovery and any hurdles you ran into along the way.

I am just in need of encouragement right now from this deficiency. It has stopped me in my tracks and life just stopped for me. Being frozen in time while everyone continues on with their life while I suffer and wrestle with the symptoms.

Dealing with doctors who are not knowledgeable with this deficiency can be very frustrating.

Please share your story so I know after the storm comes a rainbow. Your stories will bring encouragement and hope not only to me but for everyone out there searching for answers on vitamin d deficiency.

Thank you and God bless!

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  • clivealive taro93814

    I hope you get to feel better soon. It can take many months to recover from a Vitamin D Deficiency but if you are taking a supplement it will happen,

    I'm now permanently on 1 – Colecalciferol 800 Unit 20mcg vitamin D capsule every day for the rest of my life because at my age I cannot "manufacture" it myself at the age of 75 by sitting out in the sunshine which of course nowadays is a no-no.

    I wish you well.

    • jane75220 clivealive

      Hi

      ​Mind my asking you a few questions?

      what was your last Vitamin D level?

      What were your signs and symptoms? that made u suspect a vitamin D deficiency and what if any medication(s) were/are youtaking? Many thanks in advance.

       

    • taro93814 jane75220

      Hi Jane,

      My last vitamin d level was 20 in February. I was at 13 in November.

      In December I was on 50,000iu d2 for 4 weeks, the first three weeks I felt better then it went down hill from there. The fourth week taking d2 I felt extreme dizzy, fatigue, weakness, and thirst. I did a little research and realized I needed to take cofactors with vitamin d supplements because it uses up magnesium, potassium, vitamin A, and k.

      I reduced my intake to otc d3 5,000iu, with 400mg magnesium, 80mg k2 (mk7), a good whole foods multivitamin. I did this for the next 4 weeks but symptoms didn't improve, felt even worse. I was getting more fatigue and weak. So I decided to stop supplementing d3.

      Because of what I read on magnesuim advocacy group, your magnesium levels have to be optimal in order to safely supplement with d3 or it will cause havoc in your body. Lesson well learned for me. Now I supplement with only 400mg magnesium, multivitamin and v-8 for the potassium and go out in the sun for 45minutes when possible. Until everything balances out.

      My symptoms are: head pressure, headaches, extreme fatigue, weakness, body aches, sores especially the neck and shoulders, brain fog, muscle weakness, numbness in fingers at night, heavy leg feeling, irregular heartbeat, palpitations and irregular highblood pressure.

      I've never been this sick in my life. I'm only 36years old. Never experienced these symptoms before. The symptoms came on like flu symptoms than gradually got worser esp the fatigue, weakness and brain fog. It's been a roller coaster ride. When I think I'm getting better, I get hit with more fatigue. Alot of ups and downs.

      I never heard of vitamin d deficiency so I never suspect it. I asked my doctor to give me a vitamin deficiency test to rule out anything. Vitamin d was on the test and the only thing that came back low.

      I was never on any medication nor am I taking any medication right now.

      I hope this helps.

    • clivealive jane75220

      When first tested in March 2016 my Vit D level was 59.6 nmol/L <80 - 150>

      I was prescribed 1 – Colecalciferol 800 Unit 20mcg daily for 3 months

      Re-tested in October 2016 the level still low at 74.9 nmol/L so my doctor decided to prescribe the same capsules permanently.

      As to symptoms I wasn't really aware because they were probably "masked" by the symptoms I have from the Pernicious Anaemia (a form of Vitamin B12 deficiency) I've had for 45 years and the Type 2 Diabetes I've had since 2015.

      Some of the symptoms of B12 and D deficiencies are similar e.g. difficulty thinking clearly,muscle weakness, unexplained fatigue.

    • PBHealth taro93814

      Hi Taro - were you ever able to resolve this. I have the exact same situation, everything you've written.

      IT started Nov 2016, it started off like a flu, and I havent been the same since. Exact same symptoms as you, head pressure, leg heaviness, braing fog, weakness, depression, sometimes I get anxiety attacks, palpitations, soreness through neck and shoulders, vertigo, sometimes my muscles and bones ache, I also have constant tinnitus (24/7). I too am 36.

      I havent been able to work, or do much of anything since this started. I saw docs, specialists, and they were really of no help. Like you I sometimes begin to feel bettter, and then I get hit by a wave of fatigue. I feel helpless and embarrassed, as no one around me gets it, and think I'm faking or crazy.

      It was such a  relief to see that there are other people experiencing this. IF you have any insight, please, I'm all ears!

    • taro93814 PBHealth

      Hi pbhealth,

      It's been a year trying to figure this all out as everything has still come back normal. Doctors has just put it down to chronic fatigue and some fibromyalgia.

      I have been reading and researching alot because I know there is more to this vitamin deficiency. I came to learn that vitamin d depletes magnesium, potassium, retinol vitamin A, and raises calcium making us low on a cellular level. When we are low its so hard to replete these minerals. Hence all the symptoms are connected to the minerals that are being depleted.

      I talked to a few people who are going through the same thing and it all started out with taking vitamin d supplements and it goes down hill from there. Doctors are ignorant about this and do not want to hear it. Some have gone and did the hair mineral analysis to prove to their doctors that vitamin d is the culprit for the cascade of symptoms.

      Now its just putting back those vitamin and minerals to rebalance the body. I've been on a protocol for 3 months, it's still too early to see improvements because it takes at least 18 months or more depending on how depleted you are. I wish I started the protocol in the beginning and not wait on doctors. So much time wasted.

      You should check out Morley Robbins on magnesium advocacy group or gotmag dot org. He explains it in laymans term backed up with research. It's a wealth of information.

      I wish you well, I know it's hard I struggle everyday. Hang in there. The body can heal and repair itself in time. So there is hope.

    • taro93814 susan02225

      Did your doctor tell you why you were deficient besides the usual not getting enough sun. Did he test your red blood cell magnesium? I'm still trying to raise my levels up. There is no point in taking vitamin d if your magnesium is low, it will drive it even lower.

      Magnesium takes a while to replete in the cells. Oral magnesuim can take up to five years depending on the type. Transdermal bypasses the gut and goes straight to the cells.

      How long it takes you depends on your mineral status that is needed to convert vitamin d and all the co factors.

    • susan02225 taro93814

      No he just said everything else had come back normal thyroid kidneys b12 etc vit d had come back low which he said he'd expected. Will see how I get on take second lot of high dose on Wednesday so I suppose it's still a bit to soon to expect a difference

    • andreaalvarez taro93814

      Hi Taro93814, I've made an account here because i came up with your story and it's just right like mine. I started with the symptoms in 2013 and my first diagnosis was vitamin D deficiency,after all the test you can imagine. I was supplementing during one year and got worse and worse ,but the first months i felt better so i thought it was vitamin D deficiency.Long story short,ended bedridden and had i suspected by researching my symptoms it was Lyme disease.Sent my bloods to Germany (one of the few labs with accurate lyme test) and i confirmed what i was suspecting: Lyme disease. 

      Please,send your bloods tp Arminlabs in Germany and don't accept a negative Elisa test because there are lots of false negatives.

      Hope it helps and nobody else having to go trough the hell i was.

    • kristine98132 andreaalvarez

      Vitamin d deficiency is gaining a lot of momentum in the last few years. I also was diagnosed with Vitamin d deficiency and took supplements according to the doctor. At first I felt better but then I started to get sick, very sick. I found a website that explained everything to me after lots and lots of searching. If you Google cforyourself vitamin d toxicity, it has answered all of my questions that all the doctor's couldn't. The blog writer is a scientist and it's very interesting to read. There are also other websites with similar truths. Hopefully, we all heal soon as this is awful.

    • elisa1982 kristine98132

      Hello Kristine98132,

      Did you have vitamin D toxicity? How do you treat that? So what do you do to treat vitamin D deficiency then? If taking too much vitamin D is bad for you? I've been on 10,000IU of vitamin D since March, & I started to feel better for a little while but am starting to feel awful again. Not as bad as I was before but I'm so afraid to get there.

      Any advice is greatly appreciated.

    • elisa1982 taro93814

      Can you please tell me what protocol you're on? Explain exactly what you do daily. Amount & times. Everything. I've been on 10,000IU vitamin D for 4 months. It worked at first but recently I've started feeling bad again. I hate it. I just went back to my doctor again & hes doing more blood work but still says I shouldn't feel all these symptoms from low vitamin D so obviously he doesn't know what he's talking about. He's checking my hormones, cortisol, thymine, vitamin B, & full panel thyroid. I did try adding Magnesium glycine 400mg, along with 10,000IU of vitamin D & my anxiety got worse so I stopped. Why do you think this happened? What else should I do? I don't want to get as bad as I was before. Also, my doctor said taking 10,000IU of vitamin D could be toxic. I'm feeling overwhelmed. Help! Thank you!

    • karen24446 elisa1982

      Hi Elisa

      I am now only on 25000 of vitamin d every month I used to take it every 3 weeks I also take a multivitamin every day also only other change I have made is I no longer eat meat or chicken.

      Hope you can get some answers and feel better soon it is very debilitating

    • elisa1982 PBHealth

      Hi PBHealth,

      I have the same exact symptoms as you. So you are not alone. I wish we could figure out how to get better. It seems so unfair. I really hope we can feel better one day. I'm trying my hardest to stay positive. But I guess it causes depression & anxiety so no matter how hard I try, it's a daily struggle. Keep in touch. Its helps.

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