Vitamin D deficiency success stories

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I am in the midst of this deficiency trying to recover from the horrible symptoms that it can cause. I want to hear from people who have overcome this deficiency and how they did it. If there was adverse affects of long term use of vitamin d supplements.

How long did it take to make a full recovery and any hurdles you ran into along the way.

I am just in need of encouragement right now from this deficiency. It has stopped me in my tracks and life just stopped for me. Being frozen in time while everyone continues on with their life while I suffer and wrestle with the symptoms.

Dealing with doctors who are not knowledgeable with this deficiency can be very frustrating.

Please share your story so I know after the storm comes a rainbow. Your stories will bring encouragement and hope not only to me but for everyone out there searching for answers on vitamin d deficiency.

Thank you and God bless!

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  • Posted

    hi

    the research suggests that it can take 3 months for supplementation to sufficiently replenish vitamin D stores. it all depends on how low you got etc. not heard of any information on long term negative effects of taking vitamin D supplementation. just make sure that you are taking whatever you have been prescribed and don't be tempted to speed things up by taking a hgher dose.

    i was in a LOT of pain - muscle/nerve/joint/bone - you name it it hurt. now I am pain free (touch wood). so you will get there. and as we are now entering summer then you can top up the supplementation with exposing your skin to the sun -but do it carefully. 20-30 mins a day is enough. the rest of the time use sunscreen / wear long clothing / sit in the shade etc.

    you may also find that your mood and outlook improve since deficiency / insufficiency can affect those as well.

    good luck and keep taking the tablets. they do work.

     

    • Posted

      Thank you so much for the information. It looks like it's going to be a long recovery for me but summer is around the corner, which I am very much looking forward to. Hopefully with the sun it will help me feel much better.

      I hope vitamin d deficiency is the culprit for all my symptoms and not something else on top of this deficiency. My doctor's aren't certain that it's just the vitamin d. Which is scaring me. That's why I've been seeing specialist after specialist right now to rule out any medical condition or illness.

      I am praying that it's just vitamin d deficiency.

      Take care

    • Posted

      For anyone who has vitamin d deficiency please have your vitamin b6 levels checked also. It could be the cause of your symptoms. After 8 months of suffering with endless test. I had vitamin b6 toxicity from only taking a multivitamin with 25mg.

      After stopping my multivitamin my symptoms are improving. I am now healing and recovering.

    • Posted

      Vit too much B6 can cause spasms .

      These supplements have to be treated with care.

      ​Tarro have sent a PM with a link to hypertyhroidism and hypothyroidism and myopathy.

       

    • Posted

      TYPOS> Too much Vit B6 can cause spasms.

       

    • Posted

      Hi Jane,

      Thank you for the link. I went to a follow up with my neurologist and I asked him about my raised level of vitamin b6, he said it couldn't have caused my symptoms plus it wasn't is criteria to deal with and He left it as that.

      But my primary doctor said that the cause of my symptoms could be from vitamin d deficiency and vitamin b6 toxicity. That's why she is sending me to see a rhuematologist to rule out other things.

      I won't be able to see a rhuematologist until two more months. My symptoms seem to improve then goes back to worse. So frustrating.

      Can vitamin d deficiency or vitamin b6 toxicity cause random spikes of high blood pressure and random irregular heartbeat? I've been seen by the cardiologist and everything was normal.

    • Posted

      Hi dambudzo,

      Can I ask what level were you at when symptoms started to resolve?

    • Posted

      we didn't bother monitoring too frequently  because at the end of the day it was the pain and not the number which was important.

      i took the supplements as prescribed by the doctor and i made sure the sun reached my skin for at least half an hour a day during summer.

      the pain went.

      some months later i had my vitamin D level tested and it was up to a satisfactory level.

       

    • Posted

      Hi again  I have just sent a PM with a link to Hypervitaminosis and B6 toxicity.  Take care  Jane xx
    • Posted

      Hi. I'm having all the pain you described. I've been on the protocol of K, magnesium, D for about 6 weeks now. My d level, per blood labs, rose from 16 to 42, but I still have excruciating bone, muscle and nerve pain, particularly at night. Last night, it was just unbearable. Not that I want you to have been in pain, but it is good to know that I may need to be patient. It's just hard sticking this all out because everyone thinks you are crazy and a hypochrondriac and making this stuff up and it's hard to make any plans because you never which nights you are going to be able to sleep, and therefore, be able to function the next day. Most days, I can't function because of severe pain the night before, but of course, I need to work, and try to see friends. Don't feel I can tell friends much about this. They look at me like I'm crazy, plus I've already been through this long crazy journey, so they are so done with me and my health issues https://ourheartspeaks.org/gail-snow/

    • Posted

      I feel the same way as you do. I worry that something else is going on.

       

    • Posted

      Hello , how are you feeling. I was just diagnosed with d deficiency. I have severe neuropathy below the knees and also in the arms. Bone pain as well. Did you experience these symptoms as well?
    • Posted

      Hi just wondering how you are feeling. I have the same symptoms you described. Can I ask where you had the nerve pain?
    • Posted

      Hlo..

      I dont know if u will come back see this or not

      Did u take other supplements along with d3?

      How long did it take for u to recover?

    • Posted

      Yes... I have some tingling nerves feeling... My legs specially left has numbness even when I m walking...

      I went for D test and it is less than 10... My b12 is 219... Now my dr prescribed for D weekly supplements for 12 weeks.. multivitamins.. calcium.. and advise me to do yoga and 1/2 hr sun exposure ...

      Dr says wait for 1 month to see any improvements....

      But really ... I am having heart palpitations... BP fluctuations.. nerve tingling.. numbness on face.. legs arms.. fatigue... Knee pain... depression

      I hope supplements will work

    • Posted

      Hi diana,

      I am so sorry you're feeling unwell. Hope you get better really soon.

      You have two very clear indications of B12 deficiency; (1) your b12 blood level is 219 pg/ml (normal 560pg/ml) (2) you are experiencing tingling and numbness and these are classic b12 deficiency symptoms, according to Sally Pacholok (B12 expert) anything neurological or psychiatric, there's a high chance it's due to B12 deficiency. I'm not surprised your physician didn't tell you about this, as I also have experienced similar situation, most physicians are very ill educated about this

      NEUROLOGICAL SIGNS AND SYMPTOMS OF B12 DEFICIENCY

       • abnormal sensations (pain, tingling and/or numbness of legs, arms, trunk, or other area) 

      • diminished sense of touch, pain, and/or temperature 

      • loss of position sense (awareness of body position

      • weakness (legs, arms, trunk, or other area)

       • clumsiness (stiff or awkward movements) 

      • tremor 

      • symptoms mimicking Parkinson’s disease or multiple sclerosis 

      • spasticity of muscles 

      • incontinence (urine and/or stool) 

      • paralysis 

      • vision changes (decreased vision or loss of vision) 

      • damage to the optic nerve (optic neuritis, inflammation, or atrophy of the optic nerve) 

      MENTAL CHANGES  

      • irritability 

      apathy

       • sleepiness 

      • suspiciousness (paranoia) 

      • personality changes 

      • depression (including postpartum depression)

       • memory loss 

      • dementia, intellectual deterioration 

      • hallucinations 

      • violent behavior 

      • in children, developmental delay and/or autistic behaviour 

      Source: Could It Be B12

      Author commented about aduqate B12 levels saying and I quote: ''At this time, we believe normal serum B12 levels should be greater than 550pg/ml. For brain and nervous system health and prevention of disease in older adults, serum B12 levels should be maintained near or above 1,000 pg/ml.'' 

      So please convince your physician to give you B12 injections or find another physician who will because there are very clear signs as B12 deficiency is systematic as wages war against your whole nervous system.

       

    • Posted

      Diana,

      my comment is getting moderated which could take a lot of time. Please check your private messages. 

    • Posted

      Hi June,

      How you doing now....

      My symptoms are same as your... Also my blood pressure shoot up some days in month...

      Dr says it will take 4-5 weeks for some improvement after giving 60000 iu d3 oral solution (weekly), vitamin b12, b6, K2,k7, magnesium , and also calcium supplements daily..

      My pain is bearable but due to fatigue , dizziness,lack of interest m not able to do daily chores properly...

      So trying to do 15 min yoga atleast, good diet and taking supplements , I hope a few days and I will be fit again.. hope and pray same for you too.

    • Posted

      I know im a little late but my level is 18 and I've been dealing with these exact symptoms , the same numbing and tingling feelings on the same body parts. All my other vitamin levels are completely fine and my B12.

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