Vitamin D deficiency success stories

Hi gina , yes , along with dark spots on the skin and rashes , and i itch a lot , mostly on my back .

Hi Gina,

I did notice this but I think it is all a domino effect because I was not getting a lot of sleep from having so much pain and anxiety so that made it so that I would have dark circles under my eyes. The lack of sleep from all the worrying and symptoms that come with VDD. I don't know if VDD necessarily causes this but in my case the symptoms and lack of sleep cause the dark circles. Hope that helps.

That makes a lot of sense ya85411 ... How are you doing now ? HOw

Also a person can have thyroid function issues with a VDD

Yes i also started to get dark spots on the skin after having VDD and am also very itchy... so good to know that it is not just me and that it is from the VDD because since i have started the supplements i have started to notice the dark spots slightly fading but not the dark circles around my eyes (never had those before and i think i might get too much sleep from being so exhausted from this) the circles around my eyes are not that typical brown color though... it is more of a deep purple/blue color. hopefully it subsides..... thank you for taking the time to respond! appreciate it!

I am doing better than when I first started taking Vitamin D but not A LOT better. I think after starting VD I feel like I am improving .5% a day out of a scale of 1-100. Thats what it feels like at least. I am grateful for the improvements but I can't wait to just feel myself again. I have this terrible pain on my right scapula (right upper back) that i have had for a while now. It only hurts when i stretch. Also, my bones crach/crunch/grind like crazy still. Before I was diagnosed with VDD my doctor kept telling me it was all anxiety and that i needed to "relax" so because I had so much upper back pain I would seek out alternative help like going to a chiropractor, massage therapy, and things like that. I bought this electric massager online that you can change the heads on. I always would put the deep tissue head and massage my upper back/neck/shoulders. I think this was a huge mistake because I would use this massager many times a day and use a lot of force. Not knowing about my weakened muscles and bones, I think i caused more harm so i want to believe that is why my pain was so severe. But i guess i wont ever really know. I get my VDD checked again next week though so i will definitely let you know what its at!

Hope all is well with you. Was wondering if you had gotten your results back yet or not? I got mine.... my level was 9 and is now at 74 (but obviously am not feeling 100% better yet but am glad my levels are going up) my doctor then called me back and said to stop the VD supplements immediately.... she is referring to the 50,000 IU she prescribed that i was supposed to be taking once a week but i took a daily dose of 7,000-10,000 instead. And instead of stopping it completely i went down to 5,000 IU. Hope you are doing well and your levels have gone up.

Yes just got my results today. Unfortunately my level went down from 55 to 53 while taking 5k per day. I think I messed up when I didn't finish my 50k/week vitamin. My level went from 16 to 55 in 7 weeks so I got too excited and decided to drop to 5k per day thinking I would still increase. It didn't decrease that much and to be honest its only been 6 weeks since being on 5k per day. I'm a little discouraged by this. I've been having a bit more pain/burning lately in my upper back not sure if this is why. I am going to continue my 5k per day and just ordered Vitamin D drops sublinqual and retest at the end of December. I feel that we need to keep our levels up so that our bodies can repair itself which takes time. If we reduce our intake then our levels may just drop again because our body is still in the process of healing but thats just my thoughts. I just want to get over this already and feel like myself again. If i continue with just 5k per day, I am probably just prolonging the healing process. I should have switched to 8k-10k like you.

Dont get discouraged! Your level is still higher than most peoples... About it just takes time to feel better. There is not one person that I have spoken to that has said they felt better after just raising their levels alone... Time is the key to this healing process. The my level was at 74 and I still am not feeling the best. I hope my maintenance dose of 5k a day does not lower my levels much. Hopefully not but I guess I will not know until my next blood test in 3 months. Stay positive... You will feel better with time, we all will. I know how difficult it is to keep a positive mindset though, but that is why we are all here for each other.

Yes!! I am glad to have found this website and you and everyone else. Only WE know what WE'RE going through. Just a little update, Sunday I felt the worst I have felt since being diagnosed. My whole upper back back/neck and shoulders were burning/pins and needles. The regular pains that I have were so much worse. I went to parents house as they are really the only two that can kind of calm me as my anxiety was through the roof. While at their house, I also got a weird feeling in my head. I wouldn't say dizziness but it was a form of that. I did have to hold on to something because I thought I was going to fall but I was already up and standing. I used to feel this before I was diagnosed with VDD so now I'm scared. Last night I had a panic attack, which again, I have not had since June/2019. I do think the burning may be from hypocalcemia. I think it's no coincidence I feel this way and I have uped my VD and magnesium intake. I really do feel it's because of this and also because my level was slowly going back down. The VD council says that taking 5k per day while still having symptoms will only keep you at a level of 50 which means I did my calculations ALL WRONG. So now I have uped my magnesium intake through food and I am taking 9k per day and hopefully that will raise my level to 70-80 and I will keep it there for a while and once I am feeling better I will decrease slowly.

Im sorry to hear that you are not feeling well... this is such an awful thing that we have to go through. I too have not been feeling the best and i know exactly what you are talking about with that sort of dizzy feeling and that awful burning in the upper back. I used to get that dizzy sensation all the time and had another episode about a week ago for the first time since supplementing. for me its like everything goes white (Sort of like when you stand up too fast but it happens a lot when i am already standing) grabbing onto whatever is closest to you is your first instinct and then come the body waves as if you are on a boat. it is awfullll. I actually only took 9k a day for about 2 weeks and then went down to 7k for the rest of the 3mo. I was actually having even worse side effects on the 9k (unless it was just effects from the deficiency that i was not aware of at the time). I also found the vitamin d council early on in this journey too and followed what they said as best as i could. I know everyone is different, but for me.... the 7k is what raised my level to 74. When my level did get to 74 ng/ml my doctor panicked and told me to stop supplementing all together.. so instead i dropped from 7k to 5k. I may go back to the 7k, i have not yet decided as it is hard to figure out when she will only let me test every 3mo. I hope you find some comfort soon, you are often in my thoughts as i truly hope there is relief coming for you.

It's crazy how similar our symptoms are. Have you taken magnesium? I try to stay away from having to take more vitamins so I try hard to get it all through food but it can be difficult sometimes. I love that you understand that dizziness! It's such a weird feeling. It almost feels like a dizziness with some head pressure. Once I felt it I looked at my husband and immediately started crying because the pain is already so much to deal with so any added symptom and it's just too much to handle for me so I got emotional. I think if I would have stayed on 50k per week I definitely would have been higher. I feel like all our minerals are so out of balance right now and maybe that is whats causing all symptoms. I wish there was an easier, faster, and less painful solution. This morning I felt nauseas and have not felt that in a while. When will you be retesting? My local lab lets me order a VD test without a physicians order if I pay out of pocket. So my doctor will order one every 8-12 weeks but I can go in and get tested whenever I want for $35. Definitely worth it to me if your doctor won't order sooner.

That is awesome that your can get tested whenever you want to. I will have to ask my doctor about that. As of now, I do not get tested again until January. But yes i agree with you about the head pressure... that is the WORST. I would have head pressure all the time but when i would get that "dizzy" feeling, the head pressure was even worrse, and still is when i get those episodes. And on top of the nausea that kicks in with the head pressure.... s**t it is awful! When it happens to me i basically feel paralyzed and can not move or do anything until it passes. luckily they havent been anywhere near as often. I also have been very emotional through this entire thing..... and i am not an emotional person whatsoever. It truly is crazy how similar our situations are (as everyone is very different especially with their deficiency). It is so weird because i would often tell myself and others that it felt like one of my hormones was WAY off. It was not until almost three years later that my doctor finally tested me for VD. And sure enough..... i was right! (and i sat there for those few years and just assumed my doctor was testing for this as well as she said she was testing for EVERYTHING). Luckily my boyfriend has been very supportive throughout this entire thing... as i am sure he probably had his doubts at times but he has never stopped supporting me and being there for me. I know for myself looking from the outside... in a different persons perspective..... it would truly be hard to believe as i still find it crazy myself how one deficiency (even with it being a hormone) can have such an impact!