vulvodynia
Posted , 9 users are following.
Hiya im just wondering has anyone suffered with this? Ive tried lots of prescriprion tablets and im still as sore as ever with a constant burning.
0 likes, 25 replies
Posted , 9 users are following.
Hiya im just wondering has anyone suffered with this? Ive tried lots of prescriprion tablets and im still as sore as ever with a constant burning.
0 likes, 25 replies
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lee12629 catts123
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peg30465 lee12629
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samantha1970 catts123
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i also have vulvodynia and LS. The doctor prescribed me lidocaine to use 3/4x a day to numb the pain and hopefully get the nerve to switch off by itself over about 6 month period. The idea is you reduce the dose after a couple of months. It did help a bit. I also reduced by dairy intake which also helped.
now I have it on and off, so use the lidocaine maybe only 3/4x a week.
i think mine may be in th region of the bartholian gland.
im having laser surgery for the LS next week and also PRP spray. Hope this also helps the vulvodynia.
I haven't tried HRT yet, I had a hysterectomy 3 years ago but kept my ovaries. I think this triggered the LS and vulvodynia.
Samantha
catts123 samantha1970
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samantha1970 catts123
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im in a bit of a unique situation. I'm British but live in the Middle East. I had a hysterectomy 3 years ago (today!) and after it I started with this pain/ itch. I complained to that doc who di the hysterectomy for a year or two on deaf ears. I also have a doc in the government system here and they said they couldn't see anything. I went to UK and met with a gone who was unpleasant to say the least about my issues and told me it was all on my head, Eventually last Christmas I told the private guy in ME to do a colposcopy on my vulva and made him leave the iodine in for 5 minutes. Three spots came up with a mix of results but one said LS others chronic inflammation. When you out the results with the atrophy it all adds up.
interesting that in the site where the pain was it did not show on colposcopy. So I followed up in ME and then again in UK with a vulva dermatologist.
my tactic is to see the dermatologist/gyne in UK/ME every 3 months to keep an eye, as far as they are concerned they see me each every 6 months.
ive found relief for the first time in 10 months this last week with Emuaid. When I say relief I mean for LS. The White patches have gone, the itch (irritation) all I have is the vulvodynia pain.
im booked in for the Mona Lisa Touch next week plus PRP so if this doesn't help the vulvodynia then I'll look for a new solution.
catts123 samantha1970
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i really hope u find some relief in all this.u are in a unique situation and it must be hard goin between the 2 countries.i have heard and read a little myself about the mona lisa touch.i had prp done earlier this yr but i dont know if it helped cause im still burning and i dont know if its from the vulvodynia or ls.my doc has me back on lyrica and amitriptyline and has referred me to a pain specialist.im hoping to maybe get to london to see a vulva specialist who can 100percent confirm both conditions.i wish u all the best and if possible i would love to know how u get on after havin the mona lisa touch.xx
samantha1970 catts123
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I'll keep you updated thanks! Interestingly enough for me when I had the colposcopy check on the vulva the area which the pain came from did not turn white, it was other areas which showed up white and then confirmed by biopsy as LS.
Im wondering for me if the site of the pain is from the batholin gland on one side as its close and I feel a small pea sized lump when I have the pain.
Im in with the gyne on Sunday and will ask her. I'll also ask the dermatologist his opinion on Tuesday.
is it a vulva dermatologist your looking to see in London?
xx
catts123 samantha1970
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that would be great thanks so much.thats interesting alright i hope the gynea can tell u why that happened when u had the colposcopy. i find all this so confusing myself and sometimes think that even the specialists done know for sure cause ive been told by the gynea i didnt have vulvodynia but the dermotologist said i do.id love to have one specialist who can give me a proper diagnosis thats why im hoping to maybe find one in london.xx
Zuzeth samantha1970
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Hi Samantha before you consider having a surgery please check dr. Fowler' s website. He is the best dr. in Phoenix Arizona. I suffered from vulvodynia for about 10 years. He is an angel sent from heaven. I no longer suffer from the painful burning and irritation. You have to follow his protocol. I had doubts before making my appointment but now I live a happy life.
samantha1970 Zuzeth
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Hi Zuzeth,
Thanks, I'm in the UK so no chance to see someone in Arizona. Would you be able to share his treatment protocol? For me I haven't had a fare for a month or so, it seems to come and go.
cheers, Samantha
peg30465 catts123
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