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Warfarin for life

Posted , 7 users are following.

ann55375
ann55375

i was rold this after a p.e. Fournyearsbago.

sincenthen i have been feeling unwell a lot of the time, ended up,gallbladder out but thatbdidnt help.

i am now seeing an alternative practitioner who says that he feels,the warfarin is not helping me due to the fact I have anxiety and depression. He feels i ought to try to stop anticoagulants to achieve haemostasis.   I see where he is coming from but wonder if anyone on here has just decided to stop warfarin.

0 likes, 20 replies

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  • cora06849
    cora06849 ann55375

    Posted

    I'm sorry, Ann, to hear of your anxiety and depression.  I'm also a warfarin lifetimer, I've had 3 DVTs and my mother died of a PE, so with my history I just don't want to risk stopping the warfarin.  

    I can understand how you feel - I'm in the midst of a great deal of anxiety and feel down a lot at present, but I know it's the breakup of my son's marriage, his three lovely grandsons, and his financial troubles that are causing me to feel this way.  With the stress of it all my eczema has gone into overdrive so badly that I now have a couple of small ulcers on my legs, and I feel trapped in a vicious circle.  Like you, I've tried alternative medicine which helped in the short term, but I've had to resort to the steroids which I am told are the only effective treatment for the eczema.

    I can only suggest that you discuss your situation with your doctor, pharmacist, any qualified medical expert you can find.  Hopefully they will get to the bottom of the cause of your problem.  Perhaps the symptoms you describe have some other cause.  If they feel you need to use anticoagulants, they may help you to find one that is more suitable for you.  With every good wish for a better outcome for you, Ann, and peace of mind.

    • ann55375
      ann55375 cora06849

      Posted

      Thank you Cora.  I think my depression came on initially when we found our sons new wife told him to leave as she had found someone new.  He was devastated. So was i, but i thought i was dealing with it then bam i went down with this depression anxiety then p.e.   I just wonder if the warfarin is holding me back getting better.  Dr just covers her back saying i ought to take it as theres a small chance of stroke in some patients.  I think i would take the risk.
  • Sway
    Sway ann55375

    Posted

    I had bilateral pes in November 2016. Come of blood thinners in may. I take asprin and fish oil and so far no problems.
    • ann55375
      ann55375 Sway

      Posted

      Did you find that you felt a bit depressed on them?
    • Sway
      Sway ann55375

      Posted

      I was on eliquis which is apixaban and i was always depressed.

    • ann55375
      ann55375 Sway

      Posted

      Thats very interesting.  I have asked if the warfarin is making me depressed and told it doesnt do that.

      i am looking for others experiences of any depression or anxiety on it.

  • david80454
    david80454 ann55375

    Posted

    Hi there Ann. It's really frustrating I was told 2.5 years ago that I would be on Warfrin for life and not needed to attend the cardiologist. Before I went on Warfrin I asked the doctor if this medication would stop me returning to work and said it wouldn't but according to occupational health using Warfrin would stop we from doing my job as a police PCSO. I asked if I could stop using the Warfrin and they said it was not advisable. I am now facing the real possibility of losing my employment or being medically retired due to the use of Warfrin and I now wish I never started using Warfrin.

    I wish you luck whatever decision you make.

    regards

    David

    • Sway
      Sway david80454

      Posted

      Why cant you stop it? Do you habe a blood clotting disorder?
    • david80454
      david80454 Sway

      Posted

      Too stop blood clots forming and Trans Ischemic Attack
  • david80454
    david80454 ann55375

    Posted

    To stop blood clots from forming and Trans Ischemic Attack
    • Sway
      Sway david80454

      Posted

      Whats trans ischemic? I had bilateral pes in November 2016 came off blood thinners in may and so far have been fine. Im on asprin and fish oil. Its proven that asprin has a 42 reduction risk of getting another pe or dvt and fish oil with the omega 3 is just a little more help as it is a natrual blood thinner.
    • david80454
      david80454 Sway

      Posted

      TIA or Trans Ischemic Attack is a form of stroke 
  • annatyne
    annatyne ann55375

    Posted

    Check with your GP before you do anything. Presumably this alternative practioner has no medical qualifications. 
    • ann55375
      ann55375 annatyne

      Posted

      Not a dr but comes well recommended.  He feels conventional medicine is not helping and should not be used unless absolutely essential.  Henthinks the use of warfarin as a prophylactic just in case another pe reared its head is wrong.  I dont know if hes right ormif conventional med is right.  Answer is to try without for a while and see what happens maybe
  • robin02292
    robin02292 ann55375

    Posted

    HELLO, I HAD BEEN USING WARFARIN FOR YEARS THEN I TOOK MYSELF OFF, NO PROBLEMS BUT HAD REOCCURRING BLOOD CLOT ISSUES, WENT BACK ON WARFARIN AND I WAS FEELING FLU LIKE SICK TO MY STOMACH FOG LIKE, HARD TO BREATH, SHOCKS FROMTHE TOP OF MY BRAIN ALL THE WAY DOWN TO MY TOES I HAD TO FORCE MYSELD TO MOVE FELT LIKE I WAS DYING MY DOC CON NOT FIG OUT SAID IT WAS ANIEXTY SO PUT ON ANIEXTY EDS FOR PANIC AND ANIEXTY, I HAD TO HAVE A HEART MONTER PLACE IN MY CHEST AND HAD TO GO OFF BLOOD THINNER AND GUESS WHAT I FELT LIKE I WAS NOT DYING ANY MORE, SO I DECIDED NOT TO GO BACK ON THINNERS, USING ASPRIN, HOWEVER THE YEARS OF BEING ON THE THINNERS HAVE CAUSED ME WITH PANIC ATTACKS AND ANIEXTY THAT I STILL NEED TO TAKE MEDS FOR, I BELIEVE THAT THE WARFARIN HAD CAUSED IRREVERSABLE DAMAGE TO MY BRAIN ON THAT PART, I AM STILL WORKING ON THAT\ THE NURSE SAID THAT SOME PHARMACTICAL COMPANIES HAVE CHANGED FILLERS IN THESE DRUGS WHICH COULD OF CAUSED THE SIDE EFFECTS, ALL I CAN SAY IS TRUST YOUR BODY AND WHAT IT IS TELLNG U, IF IT DOESN,T FEEL RIGHT THAN IT ISNT,
    • ann55375
      ann55375 robin02292

      Posted

      So hard to know whTs causing what.  The anxiety and depression gives me agitation which will not lift.  Dr says its not the warfarin causing it but i am not so sure

      i am scared if i go off them i will get some sort of clot as my body is now used to them, then the dr will say is my fault.

      original pe came six weeks after back  it was definitely provoked by that.

      i am sure the fillers in these are some of the problem, do you know the makes that have better fillers even?

      i think that these are causing brain damage, as why would i not respond to many anti depressants, something is wrong and i feel it as you say, we know our bodies.

      if i say im stopping them dr may put me off her list as they dont like it when you dont follow instructions.  Feel totally lost with all this.

    • Sway
      Sway robin02292

      Posted

      I was on blood thinners for 6 months after a bilateral pes in November 2016. Came off blood thinners in may and been on asprin and fish oil since. I use the fish oil because the omgea 3 is a natural blood thinner.
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