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WEEK 4 OF THE DREADED STATINS my diary

Posted , 10 users are following.

graham_j
graham_j

 FEELING alot better NO bad dreams NO aches in neck  and shoulders NO arm ache in rights side elbow and NO hip pain which is the side effects i was having with these statins  this has  stopped, only a little chest pain in evening but that might be stresscheesygrin... told MY cardilogist at hospital but NO response from them....BUT still getting pins and needles in hands and feet and a painfull left foot.

WENT to  Doctors regarding painfull left foot and tingling feelings still in hands and feet and  also told l him i had been AE for 3hours a couple of days before hand and just given iburfren gel put that on 3 times a day and foot exercises with NO effect, Pain still there told him my drugs i was on and he went  NUTS  you WILL die if you do not take the statins so i said WHY DONT  you take them he barked back he was not the one with a heart problem and new far better than me he didnt even know what drugs i was on   ..But these are the devils drugs and are killers i told him and i have never been a regular vistor  to this practise since starting these drugs basically that was the end of conversation he gave me my prescription  which ended on a blank paper which i never relized and when given to pharmacy was refused due no  drugs given on prescribiton form  had to go back again and see this miserable little doctor to get my proper prescription which  included statin,,,,  NOOoooo    .

Funny thing is I.Should also have had a liver blood test done in in the first 3 weeks which i never had promised rehab classes in the first 4 weeks after 2  stents that has never happened rang them up and was told to bizzy and it might be in March thats 5 months after op surprised...TO ME this is disaster   by medical people who should be looking after your care and interests but maybe this is due to me NOT  wanting to take there dreaded statins  and this is pay back TO ME....twisted 

sorry for spelling but Cannot find glass s .... more next week  

0 likes, 32 replies

32 Replies

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  • sonya10
    sonya10 graham_j

    Posted

    Hi Graham

    your side effects are identical to mine. I to stopped my statins and will never take it again. Most of the side effects eased almost immediately after stopping part from hand and feet tingling, it took almost 6 months for my feet to stop and now I've been Statin free for almost 2 years I'm 80% better. The hand tingling is still there but only slightly and some days not at all. 

    Im sure statins have given me some permanent nerve damage which prevents hands from completely healing but I'm more than happy to be left with that side effect rather than take them and suffer such extreme and debilitating effects.

    good luck with your recovery, I'm sure the longer you are statin free the healthier you'll become, although it does take time.

  • lisa11194
    lisa11194 graham_j

    Posted

    Graham..can you describe how painful your left foot is...when I was on statins one day without any warning my right foot got so painful...from my heel right to the start of my toes...I couldn't walk the pain was so bad ...worse first thing in the morning ..getting out of bed....I went to my gp...he told me it was PLANTER FASCIATIS...might not be the right spelling....inflamation in the tendon which runs from the heel along the foot...he gave me antibiotics which took about 3 weeks to work...I've never felt pain like it ...the thing is when I googled statins and side effects....this came up...I've been off statins for 2 or 3 years now... as has my husband....and I've never had this pain since...my husband still has some of the side effects of statins....memory not good...his fingers ache....life has just not been the same after taking statins...we'll never take them again..
    • derek76
      derek76 lisa11194

      Posted

      A friend had Plantar fasciitis soon after starting a different statin. He did not believe it when I told him the statin had caused it. He had weeks of physio and but the plantar did not go until he stopped the statin.
    • graham_j
      graham_j lisa11194

      Posted

       lisa that is what DOCTOR  GRUMP  told me the fancy name  but told me it was something different from stastins AND JUST KEEP ON YOUR EXERCISES sad booo hoo 
    • lisa11194
      lisa11194 graham_j

      Posted

      Graham...I used to sit at nigh  twith a bag of frozen veg wrapped in a tea towel and my foot resting on it ...seemed to help a bit...
  • andy69280
    andy69280 graham_j

    Posted

    Hi graham well done on stopping statiins I also suffered with this drug I was on simvastatin for seven years, no side effects at the start I suffered from fatigue, muscle pain, mad pain in my shoulders  and also the foot pain that really got me looking into the side effects of this drug I have now been of them for four months I have no foot pain the fatigue has gone have a lot more energy the back and shoulder pain is still there but getting better, some days better than others I have added coq10 that seems to help  how long was you on statins for graham 
  • RosemaryW
    RosemaryW graham_j

    Posted

    Hi Graham

    have you thought about changing your GP? Seems like your relationship doesn't have any sense of respect. And have they tried you on a number of different statins or looked at any alternatives?

    I know it is scary to think of taking any kind of statin when you've had such bad side effects as that's how I feel and I've only been on simvasatin-the first one they gave everyone years back. What I want to know is-are their any statins that work in different pathways to the ones that have these terrible side effects for some people?

    Are you still under the hospital? Could you talk to a specialist re colesterol? And who gets these liver tests? Nobody I've ever spoken to.

    My feeling is that maybe these are useful drugs for some people-they lower their colesterol with no side effects, but when people like us present with side effects that are not acceptable, we get ignored. I'm not even convinced that my GP at the time reported back to their body that monitors all drug so it's possible that these side effects are actually under-reported.

    Recently even the British Medical Association spoke out against GPs getting paid to prescribe statins to those people with no risk factors. These financial inducements are part of the effort to blanket the whole population as the level goes down at which they want us to take this drug. Who is making a profit in all this? Good luck with your diary Cheers Rosemary

  • alzheimer
    alzheimer graham_j

    Posted

    Did anybody see last weekend's Sunday Express?

    It was very revealing a  FrontPage expose by the chap who initiated the use of statins who now has done a complete U-turn and agrees that more research is needed before STATINS are prescribed ..............I rest my case!

    • lisa11194
      lisa11194 alzheimer

      Posted

      I didn't see it....wish I had ...can you elaborate ....it sounds very interesting
    • alzheimer
      alzheimer lisa11194

      Posted

      HI lisa...just Google either SUDAY EXPRESS or DAILY MAIL and I believe now the TELEGRAPH...and you will see it... 
    • lisa11194
      lisa11194 alzheimer

      Posted

      Hi.....I just did.....it's disgusting how anyone can get away with that....we're only guinea pigs....I.m so glad both my husband and I stopped them a few years ago....and although my husband didn't take them for as long as I did....he has worse side effects...memory is bad.....lots of muscle aches....and I don't know if this has anything to do with statins....but when he.s asleep...his whole body jerks and twitches...all nigh long......they have a lot to answer for...
    • derek76
      derek76 alzheimer

      Posted

      I use Google Alerts for "Statins" and it sends me every new link it has on a weekly basis. You can choose the frequency you want.

      Visit Google Alerts.

      In the "Create an alert about" box, enter in the words you want to get email notifications for.

      Click Show options to customize things like how often you get alerts, types of websites you want to search, and the email address for your alerts.

      Click Create Alert.

      You can also create an alert by clicking the + next to any of the suggested topics that you see on the Google Alerts page.

      Once your alert is set up, you’ll start getting emails anytime we find new search results for your keywords. 

  • mrbob84
    mrbob84 graham_j

    Posted

    Graham -

    I sense that what you meant to say in your title of this thread was "Week 4 OFF the dreaded statins..."

    If you can, I think it would be helpful for us if you were to change your title to what you actually meant to say, for those of us surfing this site for info about statins.  Assuming I am right in the first place...

    • alzheimer
      alzheimer mrbob84

      Posted

      Whether Graham did mean "off" or whether he did mean "of"......it hasn't stopped a lot of is following his post for the past two months.
  • mrbob84
    mrbob84 graham_j

    Posted

    Thankfully.  Either way, I am sure, this thread will draw onlookers.  Even those who will onlook because it presently looks like he just started taking them and is only 4 weeks in...
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