Weight gain with steroid creams

Hi Tracey

I am on Dermovate and have been using for 5 weeks which isn't that long so haven't noticed any weight gain as yet but just relieved not to be itchy and sore like I have been for 12 years kept thinking it was my age wish I had listened to friends who kept saying I should get it checked out. Was worse at night used to keep a bottle of water by side of bed to put between my legs to cool me down and relieve the itching now that's a thing of the past thank god. Hope you get sorted soon .

Weight gain and puffiness of the face are listed as two possible side effects. Personally, I can put up with anything that will make the ITCHING go away!

Hi, I thought this side effect was from taking steroids orally. I have not noticed anything untoward (I am generally overweight, but have been since before using Dermovate). I have been using it for quite a few years now and it is the only effective treatment for this blasted nuisance as far as I can tell.

hi i use Dermovate and epaderm i found them to be a great help. i have been on them six months now. after being given wrong treatment from my doctors. i was in to much pain so i asked her to send a letter for me for test. thats when i found out i had LS this site i was told about from the hospital for support . i have not noticed weightgain.

I ONLY USE COCONUT OIL ONLY... IT HAS WORKED GREAT FOR ME.

They have said it can run in your family but i've talked about it with my sisters and mum there is not any others in the family apart from me. I have found some foods i cant eat they trigger of my LS to a point i have to get into a cool bath many times a day to ease it off again. i have not got a partner now due to him thinking i had met someone else. i am stress free that helps i have found. my joy now is my baby grand daughter.

i will try that nismo. i have been told bio oil is good to.

LS may or may not show in others in your family later. It is good that you have talked to your family jean as at least they will recognise the symptoms sooner hopefully. Sorry that your partner had those thoughts, his loss. Glad you have found such joy with your grand daughter, and yes reducing stress does help.

The things us women have to put up with........

Please don't suddenly stop using Dermovate as you will get terrible withdrawal symptoms!

Just taper off very, very slowly and never use more than a pea-sized amount. In between use Vaseline, emu oil, coconut or sesame oil. I have used "R & D Ointment", which I have to get from USA via Amazon. It's a diaper cream which makes a waterproof barrier. When things are bad , try using a "squirty" bottle of water to cleanse away any irritating urine.

I've managed to get down to using D once a week only now Using these methods and haven't noticed any weight gain over three years of using.

You all have my great sympathy - it's a horrible disease!

Take care.

Hi Tracey,

I am finding it very difficult to lose weight but hadn't connected it to dermovate. It is probably harder to lose weight when using a steroid ointment, but what can you do? Can't stop using it, that's for sure!

Hi Tracey,

Heavy use of steroids like Prednisone causes puffiness that looks a lot like weight gain – my mother has had that many times over her forty-odd years of treatment for Rheumatoid Arthritis.

The tiny dose of steroid cream we use for LS can't do that and we need to remember this drug is not just reducing itchiness, but minimizing scarring and atrophy and preventing the constant open lesions that increase our chance of getting squamous cell carcinoma. Oily creams and salves aid in this goal. I prepared to use Clobetasol at least twice a week for the rest of my life.

I've actually lost a bit of weight since my (extremely tardy) diagnosis. I'm dealing with the disease head-on rather than doing things like snacking to obscure vague feelings of missing something in life.

So far as I have found, Morrell has the right take on LS. I am doing as the gynecologist prescribed in December: Clobetasol twice a week ongoingly, three or more times a week in the event of a flare-up (this has happened once so far). Also I am finding much comfort in Coconut Oil (use a solidified form) daily and if this starts not to help so much, I switch to a different oil - argan, aloe, emu, etc. These are extremely helpful with the anal area fissures also caused by LS.

So long as I do this, I am now very much at ease. I have stopped worrying about 'fusion', about what I eat or drink, and happy getting on with my activities and interests. I do try to eat a little more sensibly than I did because I have found that larger bowel movements irritate the anal area more.

Have hope and keep with the routine. This forum has been just the greatest help!

Helen

Hi Tracey

I have noticed weight gain in the last few months - about 10 months ago my consultant advised using Dermovate as much as I wanted/needed in order to keep the LS under control. I have done this and now wondering if I've used too much. I haven't changed my diet and still complete the same exercise regime with my trainer as I have done for four years - I started training four years ago to lose the weight gained from my under active thyroid and managed to lose 24lbs but now gained almost 10lbs in the past few months - it could also be from a slight reduction in my levothyroxine but I have started reading about weight gain from topical steroid so I am really concerned now - don't want to go back to my doc as, although she has been wonderfully supportive, she must be sick of me - especially as I'm not huge - but definitely pretty overweight for my diminutive height!

I have recently started a dialogue with Dr Casabona in Genoa as I think I am going to go for the stem cell treatment later this year - I am quite scared but more scared about living with this pain, discomfort and resulting depression for the rest of my life.

Wishing you all well ladies and fellow sufferers - it's the most horrible condition.

D

Weight gain by Steroid cream is not at all healthy at some end this puffiness of skin may cause tumors or thickening of skin.

I'M TAKING CONTROL AND RESPONSIBILITY FOR MY ACTIONS. I am going to a slimming group and I am going to lose weight. I'm going to stop blaming everything on Ls and get on with my life the best way I can. Eating healthily and trying to exercise in some other way than walking, I have problems with my feet and am waiting for an op. If I have to use Clobetasol for the rest of my life....so be it. Long may I live. I have actually started thinking that this disease has made me start taking more care of myself. I'm rethinking everything and I actually like putting cream on my body. It feels like a treat. After all we would pay for a massage.....

Steroid cream has not put weight on me but I have increased my weight by eating unhealthily.