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Weight loss

Posted , 16 users are following.

phyllis10549
phyllis10549

I may have ask before but has anybody lost weight  while on preds. I have lost muscle mass. Guess that would make you lose numbers on scale. I know I sound dumb to this but i am. I have so many questions that my doctor just seems to vaguely answer so i come here for answers. Thanks to all for any help.

2 likes, 55 replies

55 Replies

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  • LisaCACO
    LisaCACO phyllis10549

    Posted

    initially I had massive muscle wasting and lost weight. it wasn't good weight loss, but muscle, 30 + pounds. I had to use a wheel chair for a short period of time and see a physical therapist to regain some muscle. I'm not where I was but I can get around on my own and only need a cane on occasion. prednisone sucks.
  • Juno-Irl-Dub
    Juno-Irl-Dub phyllis10549

    Posted

    HI Phyllis, I certinly LOST weight, almost 1stone, in the first 18months of taking Pred. When I mentioned this to the doc. she insisted on a full CAT scan "just in case something is going on". Freaked me out while waiting a week for the results, but all was normal. So I guess, though it's not common, it does happen, I didn't get the 'moon face' either - so hope this also applies to yourself! Weight now stabilised and I'm now down to 4.5mg. Pred. and holding . . . . Good luck to you, and keep in touch. J
    • lodgerUK_NE
      lodgerUK_NE Juno-Irl-Dub

      Posted

      You were one person medics dread, losing weight before diagnosis and once on pred, still losing weight.   They don't worry about the weight gain as much, but losing weight - they worry.

      Glad to see you are doing OK>

  • audrey80537
    audrey80537 phyllis10549

    Posted

    Hi Phillis,

    Before diagnoses I lost quite a bit of weight.  After Pred I continued to lose and went fr 155 to 129.  I have stayed at this weight for the last month.

    i don't know if it was muscle or fat because I was never muscular. 

    as for hair loss or dry hair I use argan oil on my hair before washing let it sit

    there for about half hour and then wash with an Argan shampoo.  Hair

    shines and is very manageable and I don't notice much loss.  I also have

    very fine hair.

    Bowen Technique--very interesting and I will try it.  I found a licensed therapist who comes to the house and it's $90.00.  How often would she have to come for me to get results?

    • constance.de
      constance.de audrey80537

      Posted

      Eileen said somewhere that if Bowen doesn't work after 3 treatments there probably isn't any point in continuing.
    • lodgerUK_NE
      lodgerUK_NE audrey80537

      Posted

      My Therapist Joanna, told me if there was no improvement after  a one hour session for three consective weeks, then it would not work for me.

      This I liked, it was then obvious they were sincere about there work and not out to diddle you out of your money. 

      It worked for me and I just wished I had listened to EileenH a couple of years earlier.  I call it white witchcraft. Goolge Tom Bowen inventor of Bowen, the story is fascinating.

  • pat38625
    pat38625 phyllis10549

    Posted

    Hi Phyllis, this forum is brilliant.  I have got 99% of information on this site and the good people who use it are all welcoming.  Hang in there and no question is ever too silly.  I have put weight on, maybe over a stone.  I have reduced pred 20mg November past and am now on 10mg since 1st June.  Good luck on your PMR journey.  Regards Pat
  • audrey80537
    audrey80537 phyllis10549

    Posted

    I also have OA so maybe Bowen will work for that.  Hope so!

    Found someone else from UK whe is from Manchester and trained over there.  Maybe you know her😀😀😀😀. She must be busy because she still hasn't called back.

    Be great if it worked for my lower back pain

    • lodgerUK_NE
      lodgerUK_NE audrey80537

      Posted

      Where is your OA, I have if in the left knee.  ARC UK Research produced, with a German Pharmaceutical co a bio-mechcanical cream, it works like WD40, (oh you probably don't have that in the states, it is like oiling a lock or hinge that won't work or creaks).

      I tried it and it is fantastic and a load of others with OA have also found the benfit of it.  It is called Flexiseq.

      The beauty of it is, it disappears and does not linger in your joints and, of course, it has not effect on you or side effects as it is not a conventional drug.

  • audrey80537
    audrey80537 phyllis10549

    Posted

    Wow Lodger that cream sounds awesome.  I'm going to order it if I can.

    like you my OA is in the left knee and between the lumbar 4 and 5 vertabrae

    WD40 is very popular in the states (have two cans in the garage) as is Duct Tape which fixes any household problem. We even have Independence Day-coming up😀

    The only thing we don't have are great doctors and if we do I can't find

    them.  Also, we don't have a great group like this one.

    My husband and I have a little wager going as to whether Lodger is a male or female name.  I say male, do I win?

    i called led the lady from Manchester again but no call back.  

  • erika59785
    erika59785 phyllis10549

    Posted

    Hi Phyllis, I lost weight, and I lost muscle mass because of fairly high intake of prednisone a few months ago. My figure has changed, and I don't like it.  Unfortunately doctors don't know much about it and don't have any answers.  We are fellow sufferers and understand each other --- thanks to this great forum.
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