Weight loss after surgery

Hi I think the others have said it all really.One thing sometimes the tumour does not show up on an MRI in which case you may need a Petrosal Sinus Sampling, not the nicest thing but at least then they will be sure.  As to the weight, it will come off, I had a 45inch waist when I was diagnosed and having been a size 12 model this was very hard.  I lost a stone fairly quickly after the op and am now 4 years on even thinner than I was before!  Good luck and please keep in touch,

I am going to be realyy honest here because I wish I had known things before.  Your surgeon will tell you that 2 days after yopur op you will feel awful more awful than you can imagine and in my cse this was true.  You are after doing cold turkey from the excess Cortisol.  I had the added complication after in that although my GP realised that my continued headaches were due to a sinus infection that had spread to my  brain the consultant took a year to agree.  In the end I had another op and then another to clear my sinuses.  After things began to improve.  I amy have been one of the unlucky ones but I think we are all told to expect to feel poorly 2 days after the op.  It is all worth it in the end, the day when you discover you have a rib cage!  Take care.

 

I was firstly diagnosed when I was 14, after my surgery I couldn't eat for days the weight literally dropped off me like someone cut it all off... I had the really bad moon face and the buffalo hump and when I came out of hospital 1-2weeks later it had gone I literally looked like a different person.

I'm starting to experience all my symptoms again at 19 years old.

If you ever need to talk or any help with anything you can always give me a message.. it can be hard trying to keep strong for everyone when your not feeling so strong on the inside.

Just in case anyone was checking this forum, I wanted to let you know my surgery to remove the tumor is scheduled for July 12th!

How was your surgery? How are you?

My surgery went well! They think they got all of the tumor but I go in next month for another MRI to make sure. I've been feeling a little better however the steroids I'm on have been irritating my stomach. I'm actually down 16 pounds so far and my blood pressure is starting to regulate. However I also discovered a large cyst on my spleen that I have to have removed so even though I managed to have my surgery and recover fairly quickly I still will miss out on my final college volleyball season... Thank you all so much for your thoughts and prayers, I hope everything goes well for you (:

So glad that have had your surgery and have come out well.  Brilliant.  I did say that the weight would come off and I'm glad that it has.  Bad news about your spleen.  I found that often whilst being examined for one thing another would crop up.  I do hope that things will carry on improving and thanks for letting us know.

I just diagnosed myself with Cushings and after multiple test it's finally confirmed. I have an appt with neurosurgeon in a week and am very excited. I'm really concerned about the trunkal obesity it is starting to hurt when I eat because my body frame is not able to hold weight. I look like I'm about 6mon pregnant. How long is it gonna take to lose stomach fat? 

Hi

It really depends on how long it took you to get diagnosed, and after your pituitary surgery if you need steroid replacements or other hormone supplements. Some people lose the weight pretty fast and others not so fast or not at all. Everyone of us Cushings patients are totally different..we all have different symptoms, different test results, and as the first cyclic cushings patient ever diagnosed nothing fits into a set pattern with Cushings. Im glad you got diagnosed and are getting in to a neurosurgeon to get the tumor out. One bit of advice..always..have a MRI with dye every year and never fail to have it done.