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Weird stuffs happening. Help!

Posted , 9 users are following.

chris48721
chris48721

Hey folks

Looking some help for an issue that is plaguing me. Generally over the past few months I've had a lot of weird issues going on with me. I look healthy but I feel like crap.

The issues are that I keep getting these hard to describe feelings in my brain, kinda like a brain twinge is the best way to describe it. Very disorienting. Very intermittent. Can go days without any or have 20-30 episodes a day. Can also have the weird episodes of being off balance when walking, very tired most of the time, and the weird episodes of extreme sensitivity to motion not caused by me.

So for example if I am lying in bed and my girlfriend moves then it will feel like I am on a boat in rough seas. Sitting on the sofa and somebody moves can make me feel like an earth quake is happening. In the lift and it stops at the bottom with a slight jerk makes me feel like I am falling through the floor. Lying in bed it can feel sometimes like I am sinking into the bed. And if I am watching tv, if the camera was to move rapidly like in an action film, my brain goes with it, so even though I am sitting still, my brain will make me feel like I am moving rapidly with the camera. Again all very intermittent.

Some days I'm fine, some days I am bad some days I am very bad.

I've saw my GP. My ears are fine apparently, no inflammation. I've saw a neurologist who thinks I am having partial seizures which I am now on anti seizure meds. It's not stopping it though so I am having my doubts. Heart has been checked and that's fine to. Anybody else experience this as I was told that it could be vertigo? If it does kick off I can kinda take the edge of by taking 2.5mg diazepam and an anti emetic.

Thanks for reading and any help welcome cuz this is soul destroying

Chris

0 likes, 23 replies

23 Replies

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  • eli75162
    eli75162 chris48721

    Posted

    You should visit an audiology Centre for test on bppv. My first experiences with vertigo were so scaring because I used to tell people I was feeling like am about to fall. I also used to sleep on one side only and my neck could really pain. It's two years now and am trying to cope with it as it comes and goes. Normally it is due to some stones they call otoconia and when they get off balance in their canals you experience the balance issue. However they do melt away and it goes until others are dislodged and the vertigo comes back.

    Soldiers on and belief in God all will be OK. Was prescribed betaserc, cinnarizine, now am on gravinate for vertigo but they hardly much help

  • DizzyLizzy68
    DizzyLizzy68 chris48721

    Posted

    Your neuro thinks seizures. Is this based in an EEG? To my knowledge, seizures are diagnosed by EEG. If that is the case, perhaps the seizure med needs increase or change. I do know that migraine can cause similar symptoms, and topomax is an anti seizure med used also for migraine prevention. Migraine can and does exist without headache, and dizziness / neuro issues only.
  • Waffalobill
    Waffalobill chris48721

    Posted

    VNG will show if it's a vestibular problem. But in order for it to done, you have to be off the diazepam for atleast 3 days as it's a vestibular suppressant. ENT should have ordered one.

  • eleftherio33095
    eleftherio33095 chris48721

    Posted

    You are describing symptoms of visual vertigo.  However, vertigo is not a diagnosis but a symptom, and you need to determine what is causing this.  All things being equal, you need an ENT consult.

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • eli75162
      eli75162 eleftherio33095

      Posted

      What are causes of vertigo and what treatment are available. Am in third world country when technology is not advanced. I was diagnosed with bppv for more than a year now but nothing has really resolved the issue.

      Thanks in advanvey

    • eleftherio33095
      eleftherio33095 eli75162

      Posted

      Causes                           Therapy

      BPPV                               Repositioning Maneuver

      Meniere's Disease           Intratympanic Corticosteroids

      Vestibular Migraine          Migraine drugs (triptans, topiramate)

      Central System causes (brain/brainstem)       Depending on condition.

      The first three do not need technology, but a good clinical examination for the diagnosis.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • nanci28940
      nanci28940 eleftherio33095

      Posted

      Hello eleftherio,

      ?I want to thank you for mentioning visual vertigo.  I just had another appt. with a Neuro-otologist last week, and although he didn't use that terminology, he did mention that my eyes didn't "work well" when moving my head and looking at an eye chart.  I have experienced dizziness while watching traffic pass by in front of me, and also when being on a fast-moving carnival ride.  I read a lot on the subject after your post, and see where there is sometimes a cervicogenic-related issue - as in neck/shoulder pain/dizziness.  Many people on here have discussed that along with feeling dizzy. 

      ?Again, thank you for taking the time to reply to those of us on here who have seen many physicians, yet haven't as yet been diagnosed.

      ?Nanci

    • chris48721
      chris48721 eleftherio33095

      Posted

      Thank you all for your replies. I did have a look on google and visual vertigo is a very good fit. Especially as I have been having episodes of tinnitus and it would all mainly kick off when I am sitting on the computer in work or when I am watching tv.

      As for the seizure question, yeah I had an EEG done but according to my neurologist that it's like a lucky dip. You would have to be having some form of a seizure during the 20 minute test. Very rarely is it confirmed from an EEG. I was talking to the epilepsy nurse and she said epilepsy is diagnosed if, they give you anti seizure meds and it takes the symptoms away then it's epilepsy. If not then it's something else.

      I am on a waiting list to see an ENT so guess I'll just have to keep doing what I am doing and taking the diazepam and cyclizine combination when it's bad.

      Thanks again

      Chris

    • laura48798
      laura48798 eleftherio33095

      Posted

      I too suffer from dizziness even when I'm laying in bed I feel an odd sensation of being dizzy, what do you suggest?

    • eleftherio33095
      eleftherio33095 laura48798

      Posted

      Can you remind me of your history?

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • laura48798
      laura48798 eleftherio33095

      Posted

      Ok so I have had anxiety and panic attacks for a long time but always managed them without medication

      Recently I had acute sinusitis which I was given antibiotics for which seemed to work but more recent I've been suffering with dizziness to the point last night I had to hold onto the door frame as I felt really woozy.

      When I got into bed I still felt quite dizzy for a while and then it settled down but I've not felt like that before. I have this weird tingling sensation on the left side of my face and head which comes and goes and it was worrying me that it might be a brain tumour or MS???

      Any ideas?

    • eleftherio33095
      eleftherio33095 laura48798

      Posted

      If I understand correctly, are these dizzy spells very close to the time you took the antibiotics?

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • laura48798
      laura48798 eleftherio33095

      Posted

      No, I stopped taking the antibiotics a couple of weeks ago as I had finished the course
    • eleftherio33095
      eleftherio33095 laura48798

      Posted

      Dizziness together with numbness over the left side of your face and head.  It sounds like something related to the internal acoustic meatus, a tunnel where the nerves of the face and ear pass together before going to the brain.  I would not be surprised if this is an extension of the sinus problem as it is in the same neighborhood.  All things being equal, a visit to ENT will clarify this.

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

    • laura48798
      laura48798 eleftherio33095

      Posted

      Thankyou so much

      I'm seeing my doctor next Friday so I am going to push for an MRI or CAT scan to see if my sinuses are blocked etc

    • laura48798
      laura48798 eleftherio33095

      Posted

      Do you definitely don't think it's a tumour or MS or signs of any brain related illnesses?

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