What age were you diagnosed with Polymyalgia Rheu?
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I'm barley able to lift my arms or get up of a morning now and its getting worse, I thought I had done the rota cuffs on both arms as i'm waiting impingement surgery. My hips and knees are also painful and often very stiff. I asked my gp for a blood test for this which will be done on the 11th but he was so dismissive as i'm only 45 - I've had a number of patients have this at an early age which is why i'm curious about what age you were diagnosed please
0 likes, 24 replies
karen81902 suzanne970
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daniel08939 suzanne970
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you probably have PMR. I am amazed that the medical profession has such a difficult time diagnosing PMR.
EileenH daniel08939
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Michdonn suzanne970
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You are in the age range. Good luck on your journey!
jean39702 suzanne970
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I was 65 when diagnosed, but probably had it in a more moderate form for the previous 5 or 6 years. So, it may have started in my late 50's. At the time of diagnosis, one of the symptoms was overnight onset of painful shoulders, which were incorrectly diagnosed as rotator cuff issues. Strong prescription pain meds and muscle relaxants didn't touch the pain. It took a few weeks and a total melt down of a lot of other muscle groups before the diagnosis of PMR was made. I also had ESR and CRP through the roof. (These are blood tests for inflammation, which some have and some do not.)
Diana112 suzanne970
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donna25417 suzanne970
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clare84716 suzanne970
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TheRaven suzanne970
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I just celebrated my 1st anniversary with PMR but it took the doctors until November of last year before they figured out what it was. I was 61 and had some real rough stretches until my rheumy agreed with splitting my dose morning/evening and taking the reduction of Pred slower (just dropped to 17.5 mg). Now I'm feeling and working at about 90% of what I was pre-PMR. I don't dare complain.
peggy_56092 suzanne970
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gillian_25383 suzanne970
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EileenH suzanne970
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I was barely 51 when the recognisable symptoms appeared - but it had been lurking for some time. The guidelines say over 50 - but the medical literature does say that it is wrong to rule it out in younger patients if the criteria otherwise fit.
The trouble is the papers always say "average age at diagnosis is 72" - possibly, but if there are large numbers in their late 70s and 80s (and there are) there needs to be quite a few who are much younger to pull that average down. PMR is not the disease though - it is the name given to the symptoms caused by an underlying disorder and there are several. It is compounded by the fact that young patients tend also to be atypical in other ways - like being more likely to have normal levels of ESR and CRP. That happens in about 1 in 5 patients anyway - though try telling THAT to many doctors!
I am convinced that there are many young patients out there - labelled by their GPs (and rheumies too) as having fibromyalgia, depression, somatism and hypochondria. Fibro is easy to differentiate - it doesn't have raised markers (ever) and doesn't respond to pred. The others? Not so much. But if a trial of pred results in pain relief and they can't find any other reason for the symptoms - I don't see a problem. Lots of doctors who don't have PMR do unfortunately.
BettyE suzanne970
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suziqcanada suzanne970
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52, but was diagnosed with " normal aging" bursitis and Fibromyalgia all first and I refused to accept any of these until a Nurse Practioner in 5 minutes said PMR and tried the 5 day Pred burst....
Anhaga suzanne970
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