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What age were you diagnosed with Polymyalgia Rheu?

Posted , 20 users are following.

suzanne970
suzanne970

I'm barley able to lift my arms or get up of a morning now and its getting worse, I thought I had done the rota cuffs on both arms as i'm waiting impingement surgery.  My hips and knees are also painful and often very stiff.  I asked my gp for a blood test for this which will be done on the 11th but he was so dismissive as i'm only 45 - I've had a number of patients have this at an early age which is why i'm curious about what age you were diagnosed please

0 likes, 24 replies

24 Replies

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  • Daniel1143
    Daniel1143 suzanne970

    Posted

    In the US, the prevailing view is that it strikes over the age of 60. I was 60 + one week.
  • sharon21683
    sharon21683 suzanne970

    Posted

    I was 62 when diagnosed. Been Prednisone free for 7 months without pain. I used the DSNS method when tapering.
    • Michdonn
      Michdonn sharon21683

      Posted

      Hi sharon21683, glad to hear of your journey. At what level did you start DSNS method. Thanks for the info. 🙂

    • sharon21683
      sharon21683 Michdonn

      Posted

      I was down to 4mg a day which controlled my pain well. But it took a good 6 weeks to be completely

      Off Prednisone. I even

      took .5 mg every third day for a week! I had been on Prednisone for 18 months when I finally was completely off. Good luck!😊

    • Michdonn
      Michdonn sharon21683

      Posted

      sharon21683, congratulations

      I got down to 7, flared and had

      to go to 30 mg to get relief

      now DSNS working to 17.5

      Hope the rest of my journey

      is flare free. Thank you

      for your information.

      Smile on my face. 🙂

  • FlipDover_Aust
    FlipDover_Aust suzanne970

    Posted

    Just turned 51, same as Eileen. I felt waaaaay too young for it! I can't imagine how you must be feeling!

  • linda17563
    linda17563 suzanne970

    Posted

    I got it for my 60th birthday!.....but I know 2 ladies who are in their early 50`s with PMR.....
  • linlin
    linlin suzanne970

    Posted

    52 is my age of diagnosis, but the intense low back pain that has plagued me since I was 49 has all but disappeared after starting with Pred. The GP simply dismissed it with 'You are getting older' when I went in at 50 years of age with intense pain that severely curtailed my work. I only wish I'd known about PMR then, as it would have saved so much pain and allowed me to lead a much fuller life in work and recreation for these three years.

    • EileenH
      EileenH linlin

      Posted

      Snap - I lost most of my 50s to PMR - even after being put on pred I couldn't do things because I was so unfit after 5 years of pain and immobility.

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