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What can I try

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chris11339
chris11339

After being off work for 2wks I returned 2day and I just couldn't manage I had 2 leave half way through due 2 pain this is really gettin me down now I was nearly crying in the managers office because of the frustration of not managing my job which is embarrassing.

I know it's been hightened with stress but also know this stress is going 2 be around untill the start of june.

I am going back 2 gp in the morning but what can I do I won't take medication because of side effects today I have taken strong pain relief but it's not touching the pain

They say fibro does not get worse with time I will argue that as over the past 2yr mines has definitely got a lot worse and I feel like given up now I can't take anymore

I listen 2 my body and rest when needed but it does no good I still have these awful flares and it's them I can't take anymore

0 likes, 36 replies

36 Replies

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  • leona18728
    leona18728 chris11339

    Posted

    So sorry to hear you had to go home from work, yes it is frustrating and embarrassing, it happened to me last year after being off for three and a half months, being home I thought I could cope with going back I lasted one and a half days and had to go off again I was off nearly six months altogether, I don't know how I went back and Iv struggled ever since if I'm honest with myself,

    I don't really have any advice for you sorry it just needs time, when our bodies take such a bashing our minds turn off to survive I think it's a way of healing, until the next time :-(

    It's just nice to know we're not alone and your not imagining it,

    Good luck with GP tomorrow,

    Gentle hug leona

  • christine26761
    christine26761 chris11339

    Posted

    It does seem like it gets worse but research shows it doesn't, which is really good to know, we just get symptoms that are bad that we may not have had before and that makes us feel that it's getting worse.....it's very frustrating..I only get flare ups now..which I can handle..except when stressed-very bad for Fibro too....but I've been diagnosed for 22 yrs and probably had it for years before that...most of us have...I only take Amithriptilyne 25mg at 7pm..great nights sleep numbs the pain at the nerve end hence stopping it from going to other nerves and running rampant throughout your body..I've been on it 16yrs now..never had it increased..only side effects I ever got/get are dry mouth in the night, remedied by water on my night stand and feeling a tad tired when first get up..otherwise it's my wonder med and most of us with Fibro are on it, but many suffer differing side effects..we are all soo different anyway..especially if we have other health issues...sort of expect that....hope you get sorted soon Chris..gave a lovely day....God bless..:-) xxxx
  • Becka35
    Becka35 chris11339

    Posted

    I so sorry to here that it's just such a terrible things we have to suffer through. Does anyone get random aches in there stomach. I get random daily aches on the left then right of my belly button and upper left sometimes upper rights area right under my sternum. It's not painful it's just noticeable and I get these aches a couple times a day. I also get aches in both my rib cages upper and lower. And constant middle and upper back aches. There is much more to many to mention:-(
    • chris11339
      chris11339 Becka35

      Posted

      Becka before I was diagnosed I was in hospital with what they suspected was appendicitis twice and gall stone once so yes I know the feeling it was always put down to IBS flare now I know it was this all along

    • christine26761
      christine26761 chris11339

      Posted

      Same here Chris and Becka, ..only mine was a suspected heart attack..that was the week I was finally diagnosed with Fibro, after soo many years of just treating each symptom..they finally called in the Rhumotologist..it can be sooo frustrating indeed..:-) xx
  • tiswas24537
    tiswas24537 chris11339

    Posted

    some people iv recommended magneisum sea flakes to for soaking in bath helps with pain .have had very good results also i reccomended collidaul gold to someone and they definatly felt much better and ordered another bottle .
    • chris11339
      chris11339 tiswas24537

      Posted

      Tiswas I tried the flakes for the bath but it doesn't seem 2 help but 2bh I can lie in a bath for 20mins soaking yet as I haven't had a good few weeks and get uncomfortable. .

      Right now it's 1am I although I am tired I am 2 sore 2 get comfortable I have came down stair as don't want to keep hubby awake tossing and turning all night

      I think this is the worst I have ever felt I can honestly say every inch of my body is sore I knew I was heading for a flare but this is by far the worst

      I can't even explain the pain but maybe people will understand when I say it's like all my muscles are pumping like a heart beat and with each pump it's sore and moving my head 2 look forward is causing terrible pain shootin down my shoulders and back

    • tiswas24537
      tiswas24537 chris11339

      Posted

      you certainly dont have to explain the pain iv just com eout of it after about 6 weeks 

      now iv got sore stiffness .and itching .whoooooopie 

      the flakes need time to work so that sproerly why they have not helped you need a good 20 mins. 

      i find the pain which i call tenderness pain responds to cold better theres a cold gel i use from on line that cools and soothes ill PM YOU WITH THE SELLER ,

    • leona18728
      leona18728 tiswas24537

      Posted

      Hi I find the soak very good and would recommend it, but like you say you need to soak 20/30 minutes plus you have that time to relax a little,

      I also find the magnesium spray very good it works wonders on my neck and shoulder/arm area, although the smell is not great at first it does die down after s minute or two,

      I've read a lot on here about the colloidal gold so checked it out on line and have just ordered my first bottle, so fingers crossed, my flare up seems to be going on and on this time, but we keep going somehow 😄

      I feel very sluggish and I've been thinking about a detox although I eat healthily, Anyone out there tried a detox and how did you feel after ?

      Hugs to all.

    • Bee70
      Bee70 leona18728

      Posted

      Hi Leona

      I do believe our diets play a part for our fibro.  I have tried many diets not due to weight loss but for health reasons.  For me I know fried food and hot chiilies in food is not good for my pains.  These aggrevate my pains. Everything is trial and error but seeing my specialist at Ayuspa he tells me all our bodies contain five elements ether, air, fire water and earth. Our bodies contain two of these more than the others. It's an imbalance of these that can affect our diets.  It's all complicated but worth looking into.

      In my opinion anything is worth a go.

      Hope you find something right for you. 

      Take care x wink

    • leona18728
      leona18728 Bee70

      Posted

      Hi Bee, Yes I think your right, I to don't diet for my weight it's purly health, I also find some foods don't lay good with myself,

      I am a believer you are what you eat,

      Well I've just bought a super health detox book from a pound shop so that will keep me busy tonight reading to see if it might benefit me,

      Take care of yourself.

    • tiswas24537
      tiswas24537 Bee70

      Posted

      i have accupunture and have a very damp core 

      chillies, ginger, onion family, beetroot, cucumber, raddish, hot milk , grains ,and wholemeal ,products .eggs and nuts all kill me 

      yet for me a small amount of fried food in lard /or coconut oil  is fine so is meat ,and chicken,cheese and butter  ,white bread .brocli.cauliflower,carrots,green beans white cabbage are fine

      the body is a very  complex machine ,ibelieve in eating what suits you and leaving what dosent alone

      . just because its supposed to be healthy dosent make it suitable for everyone 

    • tiswas24537
      tiswas24537 leona18728

      Posted

      dont think you will need it if you take gold every day ,

      it can cause more problems than it saves ,

      if you want to do something do the diet i did to get my candia under control, no proccesed no sugar ,including fruit and root veg , no yeasst products ,no cheese  no flour products .

       

    • tiswas24537
      tiswas24537

      Posted

      just for 3 months .no longer ,i felt wonderful after it is a bit of a stuggle but iv been candia free for six  yrs no thrush at all and i was plagued by it before 

      you can go back to eating normaly with treats  but your find you loose any cravings for sugar or other foods

    • christine26761
      christine26761 leona18728

      Posted

      Hiya Leona and Bee....Why not give  Paleo a go,,, there is also an Autoimmune Protocol....amazing how  good it works..not really a diet..more a lifestyle, we have been on it now over two years now...had full blood tests...perfect....couldn't believe it..too good to be true...lots of food you can eat...it's all in moderation if course....no sugar or processed food at all.etc...and of course lots more info...it sort of goes against what we have always been taught 'not to eat coz it's bad for you ' not true..our bodies end up missing out on what they need to function properly..worth a google...it seems to permeating all over the worl now..many researchers and specialists worldwide admitting that : 'we got it all so wrong'. Pity we people were the Ginea pigs and we do sometimes wonder why we have all these illness...I know a lady who suffered terrible with Fibro and other issues,  she went  Paleo Autoimmune Protocol and has not had symptoms for years..I am on just the Paleo...soooo good.I'm on it for health too but if you are overweight it will drop off you..my husband was a bit under and he put

       a bit  on--it seems to correct your weight, as it's just what our body needs....worth a try...be blessed..:-) xxrazz

    • leona18728
      leona18728 christine26761

      Posted

      Hi Christine I googled it last night and it sounds good enough to try,

      I'm going to clear my cupboards of the family's Easter junk and start it next week,

      Thanks for the tip, will let you know how I get on,

      Enjoy your day leona

    • christine26761
      christine26761 leona18728

      Posted

      Wow!!! Go girl...what a favour your yourself.,.cant wait to hear the good reports from you here..well done you...-smile xxxrazz
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