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What caused your fibro?

Posted , 13 users are following.

ChronicGirl
ChronicGirl

Hey everyone

I hope you have managed to have an easy weekend.

As the title suggests I was just curious to see what reasons people have been given for the appearance of their fibromyalgia.

Mine started about 2.5 years ago. I had nasty accident which involved me having a fall. I ruptured two ligaments in my ankle, injured my shoulder and neck.

3-4 months later I developed more widespread pain and severe stabbing pains in my shoulders, hips and knees. I also had restless legs and random twitching over my body. Then came the migraines, insomnia and exhaustion.

I was told recently by my rheumatologist that my fall caused my fibromyalgia. I can't believe I have this horrendous illness for life because of a fall!

xx

1 like, 42 replies

42 Replies

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  • sadie1980
    sadie1980 ChronicGirl

    Posted

    Hi Hun

    I think mine stems from the trauma of 7 miscarriages then finally I gave birth to my son coast in 2014 and so the pain began !

    Xxxx

    • hope4cure
      hope4cure sadie1980

      Posted

      So sorry Sadie. You have been thru so much. Congrats on your baby boy. So precious and gives so much happiness. He's just 2 what a cute age .

      FM can be managed. Have you seen someone in a pain clinc. They're experts at helping with many chronic diseases as well as helping with many techniques that can help you feel better, eat better & sleep better.

      good Luck.

    • sadie1980
      sadie1980 hope4cure

      Posted

      Thanks Hun xx I do have 3 boys 16,12 and 1 they are a handful lol I am currently on lots of meds to help with pain etc hoping to try hydrotherapy xx
    • hope4cure
      hope4cure sadie1980

      Posted

      Good to hear you are managing your pain issues. The kids will keep you busy.

      hydrotherapy is great,mwith a family remember to take time for breaks and rest. 

      Stay happy and well it will bring you heeling.

       

    • kaz_40
      kaz_40 sadie1980

      Posted

      So sorry to hear about your 7 miscarriages, I too have also suffered 2 miscarriages before going on to have 2 boys, who are now aged 19 and 33.so pleased for you that you finally had a son hope he brings you much joy and happiness bless you x
    • sadie1980
      sadie1980 kaz_40

      Posted

      Thanks kaz he does it's just sad that I have fibro and I can't do as much as I would like to xx
  • smc187
    smc187 ChronicGirl

    Posted

    Hi I find it to deal with this as mines was caused by a side effect of acne medication called roaccuante. It's been a horrible 3 years between fighting to get the dermatologists to admit(which is still on going). Dealing with depression from that and the onset of fibro.

    Xxxx😘

    • ChronicGirl
      ChronicGirl smc187

      Posted

      So worrying to hear that medication can cause fibromyalgia too.

      I really can't believe there isn't more research out there into what causes fibro or even an effective treatment!

      I hope you get somewhere with your specialist.

      xxx

    • smc187
      smc187 ChronicGirl

      Posted

      Here hoping I hate it more when people say "your on 24 u shouldn't be that sick". Ik just dreading the day I find out I have to carry a baby. Me and my otter both want a child but the thought of this pain and trying do carry a baby scares me.

      Thanks for u kind words. Xxxx

    • hope4cure
      hope4cure smc187

      Posted

      I know exactly what you mean. Age has nothing to do with it.

      I had the same pressures from friends who continued to be skeptical . 

      Now that they have some type of unseen illness they get it. 

      Just because the pain doesn't show doesn't mean your body isn't racked with pain and mind fog. 

    • ChronicGirl
      ChronicGirl smc187

      Posted

      I feel the same too. I'm 31 but feel 80.

      I feel so embarrassed still, I can't do half of what I used to.

      I was due to get married last year but we have postponed it for a few years in the hope I would get better. Now I know I have fibro and won't get better I don't know when or if we can get married.

      We would love to have children too but how can I now? I can barely hold down my part time job now which would be impossible with a baby!

      This illness really does ruin lives.

      xxx

    • sadie1980
      sadie1980 ChronicGirl

      Posted

      Hi Hun I no how u feel I'm 35 with 3 children ages 16,12 and 1 !!! I work full time and I feel 100 !! My 16 year old is like my career he has to do everything for me and my youngest I feel so useless it's unreal! I work in a care home I'm the administrator and some are residents are faster on there feet than me it's a horrible condition and it's even worse when u feel so poorly and no one can see or feel the pain u are going threw xx

      Big hugs

  • hope4cure
    hope4cure ChronicGirl

    Posted

    Actually to be truthful I had FM before it had a name. I hurt all over in my joints and muscles. As reciently as 2002 after being diagnosed with FM there was still very little medical help available. 

    Now there are many ways to treat FM. A good rheumy is a good start as they now have a better understanding of the many causes for FM. 

    After  many years I learned the catch phrase for all the symptoms for the pain finally had a name ,FM. 

    Everyone responds differently to different types of treatments. A good rheumy has a better understanding of FM. There  are some good meds to help with treatment now than ever before. DEMARDS & bio drugs

    Also chronic illness can take a toll on our spirits.  Also anti depressants helped a great deal. I found to maintain a good attitude also helped me feel better. 

    I have done well with OTC meds after trying several prescription drugs for fibro that made me sick. I am very sensitive to meds.

    I do phisio exercises, for strenghing core and body muscles. Eat fresh foods no sugars, fried or refined foods and massage treatments really helps me the most. Drink lots of water.

    I hope you find the treatment to help you the most. It takes time and patience to stick with a good program.

     

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