What could be causing my dizzy spells

Posted , 33 users are following.

I am messaging because I need help!

For the past few years I have been suffering with dizzy spells, but It only happens when I am in a car, driving in a straight line, it feels like everything is moving a lot faster that it is and I can't focus on anything!

My blood pressure if fine!

I have been to a neurologist and had a MRI scan, conclusion was, everything was fine.

I was then sent to audiology that ran every test in the book, they told me my ears are ok

I went to my opticians who ran a peripheral vision test about 5 time and said everything was fine!

My GP said there is nothing else that can be done!

If I am not able to get in a car soon I am going to lose my job!

Can you please help?

Have you ever heard of anything even similar to this or have any advise of what I can do?

Thanks

Jennifer Rogers

0 likes, 61 replies

61 Replies

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  • Posted

    Hi Jennifer

    I am so sorry that you are going through this, it must be awful.

    Do you think that it could be in some way anticipatory now as it has happened so often? I am not in any way minimising what you are going through but it could be that you are getting anxious each time you get in a car because you know what will happen. Something like the chicken and egg problem.

    I hope that you feel better soon.

    Elena

  • Posted

    Hi

    Thanks for replying :0)

    I did think of that but I am a very relaxed driver. I don't have road rage (my friends say I am that laid back I will fall over) I have never been in an accident or even a "near miss"!

    With me havering dizzy spells I am not allowed in a car, so I can't keep an eye on any patterns of when it happens! I believe they may have stopped about two months ago so I got back behind the wheel and they were just as bad!

    They don't always happen on the same roads!

    I will be allowed back in a car when a medical specialist can explain what it was and can say it won't happen again! If that doesn't happen I will have to send my licence back to the DVLA! :0(

    So at the min, I am asking anyone and everyone, hoping a fresh pair of eyes might be able to see something I haven't!

  • Posted

    Hi Jennifer , I have dizzy spells from October 2013 but GP said he is not going to do any test just send me to ENT specialist . ENT performed Eplyes maneuver , after which I felt even more horrible. Who sent you to MRI scan ? I really feel hopeless . I only know that I started to have this dizziness after stress .
  • Posted

    Hi

    Sorry to hear you are havering problems, it is very frustrating!

    It was my GP that sent me to a neurologist and he sent me for a MRI.

    Good luck x

  • Posted

    Hi Jennifer, thank you for reply. I suggest you to read today's Daily Mail (Tuesday 21.01/2014) The article called ' ''When dizzy spells mean your heart has stopped''

    It is shame we have to look for help in news papers and discussions when GP like mine doesn't want to hear about patient's problems.

  • Posted

    It is really interesting!!!

    Thank you :0) xx

    I am going to go and have another word with my GP!

  • Posted

    Hi Jennifer,

    I'm sorry to hear about this - it sounds terrible.

    I know the audiologist said your ears are fine, but since your spells only happen when you're moving, I'm wondering if it couldn't still be some kind of positional vertigo. Obviously I'm no expert, but maybe they could run some ear tests while simulating movement? This might be a stupid suggestion but I just wanted to chime in since I know how frustrating it is to go undiagnosed.

    Best of luck!

  • Posted

    Hi Hun

    It's not a stupid suggestion at all!!!

    I will mention it to my doctor and see what they can do!

    Thank You

    Xx

    • Posted

      I also feel like this. I don't wanna leave the house. I fair u will also lose my job. I cant function. Help someone😔

  • Posted

    Hi Jennifer,

    I have been suffering the very same symptoms as you for 15 months now. Had all the same tests as you. Really getting me down that I can't drive and like you, will lose my job soon if I cannot resolve this.

    I wonder how you are getting on?

    Would be great to hear from you.

    Best regards

    Jenny

    • Posted

      J, u ever figure this out, what happened 15 months ago to start it ?

      I can drive back roads but not Highways.....was fine years ago....now not fine. John

  • Posted

    Oddly enough I am another Jennifer/Jenny to have this issue. I've wondered what has come about this? I've dealt with it for a few years and it gets stronger now when I go through it. I am driving and I get the feeling I can't stop my head from spinning then I think i will pass out. One time I pulled to the side of the road just crying so badly cuz I was so scared. How can people deal with this? One had a doctor tell me....I won't take care of this until you stop drinking caffine. Haven't been to that doc since.
  • Posted

    Guys, ME too - 55 years old have had it for several years, dont want to repeat but agree with all comments - has anyone figured it out yet !! we all did not have this 10 years ago, but do Now. Must be more of us out there and someone with an answer.
  • Posted

    Hi Jennifer,

    I'm having a similar problem, not at night necessarily. I keep getting dizzy when driving at highway speed (USer here). Then I get so anxious I feel like I might have a stroke if I keep going.

    I came across something called BENIGN PAROXYSMAL POSITIONAL VERTIGO (BPPV) that I wanted to share with everyone here. It is dizziness caused by movement of calcium crystals inside the inner ear. There is a simple manipulation called the Epley Maneuver that clears up the problem in most cases.

    Not that it is necessarily the problem any of us have, I just wanted to post this here in case it helps you or anyone else who sees this thread.

    Cheers,

    Dawn

    • Posted

      Thank you for sharing. Had loads of tests and appears nothing physically wrong so having anxiety therapy. This is based on a terrifying first episode on a motorway. Will definitely explore the Epley manoeuvre. Thank you so much xxx
    • Posted

      Hello Dawn,  I assume u go to a ENT doctor to get the BPPV treated ?

      I did go to a chiroprator with no positive results. So I will make an appointment with an ENT Doc, I hope this is it!!! thx, John

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