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What do you know about cannabis oil?

Posted , 12 users are following.

elizabeth40672
elizabeth40672

I have been made aware that cannabis oil can help pain. Unfortunately 15mg of steroid is still not shifting it so giving it another couple of days and considering 20mg. Have recently been given some cannabis oil by a friend called Green Edition CBD oil and wondered what you thought about it. Can I try it with my other medication? Steriods, Alendronic Acid and Adcal and Simponi? Is it worth a try?

0 likes, 21 replies

21 Replies

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  • EileenH
    EileenH elizabeth40672

    Posted

    There hasn't been a lot of discussion about it here, partly because of past policy on the part of the site. However, it has been discussed a lot on the HealthUnlocked PMRGCAuk forum.

    Generally, I would say the opinions are very mixed, very few people have found it helps much with the PMR itself but does help with some of the problems accompanying both PMR and pred. There is no consensus on dose or type - but most are agreed it isn't a cheap option!!

  • missmagwumps
    missmagwumps elizabeth40672

    Posted

    I asked my rheumy about CBD oil a while and he said if could possibly help with the pain but NOT the inflammation but it would take far longer than Pred to get any benefit ....

    I am seeing a new consultant soon - so may beg the question again....will let you know if their advice is any different....

  • alebeau
    alebeau elizabeth40672

    Posted

    I agree with you EileenH

    I tried it for a short while but did not really know how much to take and due to the cost I was reluctant to take too much at a time. It did nothing for me of course but I have the feeling that with the right increased dosage it might. The problem is the cost. I am now taking anti-inflammatory spices daily instead like turmeric and ginger. I mix it with Almond milk and add cinnamon to make it palatable. Not a bad combo actually.

    • EileenH
      EileenH alebeau

      Posted

      I have friends who put turmeric and ginger in any form of cooking that is reasonable!! Not just curry! Swear by it ...

    • Michdonn
      Michdonn EileenH

      Posted

      Eileenh, I take turmeric, cinnamon and nutmeg very day. I am never sure how much or even if it helps, but I pain free, so I continue taking it. 🙂

  • linda82701_USA
    linda82701_USA elizabeth40672

    Posted

    I have tried it and it didnt help at all. Tried the kind you inhale, oil you put under your tongue, and salve you rub on. none of it helped at all. Expensive. Be careful.

  • Flutterbie57
    Flutterbie57 elizabeth40672

    Posted

    Do be careful ! It is receiving so much attention in our country at the moment, but I am not sure it is as good as the media are making us believe it is . Not long after I was diagnosed, a friend of a friend got hold of some illegally in our country, she tried it and it had a very negative effect on her. A few years down the track they are now trying to legalise it , but I will not be trying it. Will be interesting to hear others views tho.

  • elizabeth40672
    elizabeth40672

    Posted

    As much as I would love a quick fix I have not yet done anything about this. It is good to hear everyone's thoughts so thanks!

  • rocketman42
    rocketman42 elizabeth40672

    Posted

    Seems like everybody's jumping on the bandwagon of this multi-billion dollar industry to make a quick buck. There is no governing body that oversees the quality control so nobody really knows what they are getting when they buy it. No double blind controlled studies to prove it is effective. Simply anectodal reports.

    I tried several strengths and delivery systems ( sublingual tinctures, capsules, vapes ) from "reputable" companies and found no appreciable help.

    Hemp derived CDB oil = snake oil.

    Save your money.

  • roslyn42871
    roslyn42871 elizabeth40672

    Posted

    rocketman. Did you use THC or CBD?

    • rocketman42
      rocketman42 roslyn42871

      Posted

      Hi roslyn -

      I have another medical issue that qualifies me to be in the Medical Marijuana program here in the states. My pain management specialist prescribed it for me and I have used THC /CBD in different dosages/ratios and in different types of delivery systems.

      It is worth mentioning that I obtain it from government licensed dispensaries so it is a "dependable" high quality product that I use that is tested and well screened.

      Unfortunately, the bottom line is I have not found it to be much help with my PMR symptoms so I continue to take prednisone and continue to attempt to taper my dose using the methods discussed on this forum.

      If you choose to try CDB from companies on the internet or from local bodegas beware that there is a big difference in the quality you might get from one company to another. The companies also can't/won't prescribe how much you should take so it is a game of trial and error.

      Hope this helps and good luck !

    • roslyn42871
      roslyn42871 rocketman42

      Posted

      Thanks so much for your thorough explanation. Will you ever get off Prednisone or do you just taper to a very small amount but stay on it for life?

      I'm also interested if you've tried an anti inflammatory no grain diet or acupuncture. Thanks.

    • rocketman42
      rocketman42 roslyn42871

      Posted

      If you are asking me personally if I will ever get off prednisone my answer is, "I certainly hope so but who really knows?" At this point I will be happy to be able to taper to a relatively small amount.

      I have tried acupuncture and did not find it helpful.

    • Michdonn
      Michdonn roslyn42871

      Posted

      Roslyn, I have tried acupuncture, no help. I have eating an anti-inflammatory diet since April of 1917, if I drift too far off it I flare, which I have done from time to time. To me staying on the diet is not an option. Stay active, positive and try to smile. Good luck on the rest of your PMR journey. 🙂

    • roslyn42871
      roslyn42871 Michdonn

      Posted

      Thanks Michdonn I have been conscientious about diet and exercise all my life and am having trouble coming to terms with why I have contracted PMR. Your advice is well received, I'll try.

    • ptolemy
      ptolemy roslyn42871

      Posted

      There are a lot of things much worse than PMR we could have contracted, irrespective how fit we were before. At least PMR goes into remission and does not kill us.

    • roslyn42871
      roslyn42871 ptolemy

      Posted

      You are right. I'm still waiting for a diagnosis but my symptoms are textbook. I am hoping it's not one of the other auto immune diseases, which are even worse.

    • ptolemy
      ptolemy roslyn42871

      Posted

      I do hope you get a diagnosis, could you try pred for a week as a test? If it does not work it probably is not PMR. I was in such pain I could not have waited in the end, as my GP failed to diagnose PMR, I saw a rheumie privately.

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