What do you wish you had known before your TKR?

Posted , 24 users are following.

Most of us found that we didn't know enough about recovery from a TKR before we had it  done.  What do you wish you had've known?  What would have armed you better?

2 likes, 78 replies

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  • Posted

    1. My doctor's home phone number so I could have harassed him 24 x 7.

    2. Armed?  Beretta 92FS with an SGS Compensator.  One round to his kneecap.

  • Posted

    Great question, i think knowing that there would be a bit of a low period around six to eight weeks, and to fix my mind and expectations more on the three to four month mark in terms of feeling able to move forwards more rapidly!
    • Posted

      I wish I would have been informed about the good possibility of MUA... I am facing that prospect now -and am very frustrated with 

      Lack of my range of motion.

      everyone on this site has been informative and a big help. I appreciate all the people who consistently help us newbies with all our concerns!

    • Posted

      Hi Carol, I hope the MUA is easy on you.  This forum also helped me enormously.  We know what your concerns are because we've been there too.  It's a good feeling to respond to a kneebie and we're all happy to do it.  Pleae let us know how your MUA goes / went

  • Posted

    What happens if you don't get a TKR?  I really don't want to go through it - have been losing weight (wasn't heavy) and now I'm going to get a referral to a knee specialist to see about shots.

    My mother's friend had the TKR and was in agony for months.  That was a total 'scare-off' for me.  We had no arthritis in the family and when my mother was my age (63) she was playing tennis, walking, etc.  Life, of course, isn't fair.

    • Posted

      You need a TKR when the orthopedic surgeon has scoped/repaired the knee, removed any arthritis he could and used meds like SynVisc and cortisone for the pain, and then says to you: "There's nothing else I can do."  Then it's TKR time.

    • Posted

      Louise, as Chico said, you need it when there's nothing else the doc can do. Always remember, everyone is different & those that had a relatively easy time have no need for this forum. So you're hearing mostly from people who are having difficulty. All the people I know personally, & there are many, are happy that they did it, whether it took 1 month or 6 months to feel that way.

      My advice to you is research surgeons, meet with them & choose one you're comfortable with. Also, get off this forum until after the surgery & you need advice or just someone to talk to that's experienced it.

      Don't know where you live but Hospital for Special Surgery in NY is incredible, as are the doctors, nurses & everyone associated with it. People come from all over the USA and world, although I would think it would be difficult as far as follow ups if you're far away. Good luck to you.

    • Posted

      I was in extreme pain for 14 years.  That wasn't worth it. I lost so much of my life to pain.

  • Posted

    I had LOTS of swelling with my first TKR...I mean LOTS and LOTS of swelling! 😲That plus the feeling that my entire leg FELT as though it was A TREE TRUNK FILLED WITH CEMENT really unnerved me those first three months! 🌴

    I didn't have nearly as much pain as I thought I might have with this surgery.😄 This made me realize the TORTURE I had been enduring with my pain PRIOR TO SURGERY! 😖😨😵

    On the second morning following my first TKR I was sitting in a chair. Sitting in that chair was EXHAUSTING compared to laying in bed. That surprised me. Then when the hospital physical therapist came and wanted me to "march my feet up and down" as I was sitting in the chair, I realized that the most I could lift my THOUSAND POUND LEG was to lift MY TOES!😖 For a second there I panicked, wondering if he was KIDDING or if he really DID mean that I was actually EXPECTED to do this! My silliness kicked in, though, and I began to giggle!😁 I "marched" my TOES. (Never saw THIS GUY again. I think he though I was a lunatic!)

    I was surprised how ineffective Oxycodone and Hydrocodone were for pain management. I was also surprised at HOW LOOPY they made me feel. I had Oxycodone with my first TKR and Hydrocodone with my second TKR three and a half months later. In two weeks I quit each after my blood thinner shots were completed. I went back to my tried and true Ibuprofen which did a MUCH, MUCH better job of pain management for me.

    My biggest overall surprise was that my second TKR, which was on my worst knee of the two, was EASY compared to my first TKR! I was moving my leg all around IN THE RECOVERY ROOM and discharged a day earlier than with my first TKR. From the get-go it seemed like I was almost even in recovery with my first knee which had been done three and a half months earlier. A HUGE and WONDERFUL surprise!😊👍👍

    In reading all the responses in this forum over the last two years I have come to realize that there's NO PREDICTING exactly how a TKR is going to go. Maybe that's why doctors don't TELL US much! There are SO MANY variables, so many different body systems involved. Even my surgeon who has done thousands of knee replacement surgeries in his thirty-year career has said that a surgeon can look at X-rays, CT scans, MRIs etc., but he WILL NOT KNOW exactly what needs to be done UNTIL HE GETS IN THERE and looks for himself. Then there is the recovery. Each recovery is different. I have NO IDEA why my worst knee with the longer surgery of three and a half hours had such a short recovery time compared to my first knee. I guess we just deal with each situation as it comes and accept it for what it is!

    I WILL say, though that ALL OF IT was worth it for me! Keeping a positive outlook and PRAYER, constant PRAYER were my ARMOR!🙏😄 I looked for small improvements, tried to distract myself by walking around the inside of the house, venturing outside to enjoy my garden, working hard to become stronger with better balance and kept a journal so I could keep a permanent record of my progress. All of these things helped to get my life back again.

    There's no silver bullet to make everything perfect, but there's TIME and PATIENCE and HOPE.

    Here's wishing these things for ALL OF US!??

    • Posted

      Yes, I think what you say about surgeons not knowing is true,..because variation is so great! Until they get into the joint it's not possible to see exactly how things are! As someone with a faith I also found prayer essential. Mindfulness and a lot of casting my cares on my creator!

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