What has been your hardest/strangest symptoms
Posted , 16 users are following.
Hi!
So so far I have to say the sore scalp and itchy/sensitive skin has been the worst. I’m ready for this stage to be over 😞. What has been your weirdest and hardest symptom?
1 like, 26 replies
Eliaimee1970 amy05647
Posted
I do get the itchy and sore scalp and at one point I had shots on my head and went away And now is back...
evi75119 amy05647
Posted
Second on my list joint and bone pains and then the flu like fatigue..
This is my top 3 of my bodily symptoms
caseynjason amy05647
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klm1213 caseynjason
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Couldn't have said it better myself
robin86 amy05647
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trinity03 amy05647
Posted
All of it sucks, from the crippling anxiety to the internal vibrations and shakiness.
But, I'd say the most annoying and non-treatable so far has been the "burning mouth syndrome."
audra86673 amy05647
Posted
Strangest symptoms has been the sore scalp. Like areas of my scalp are bruised! It usually lasts only a couple minutes to a couple hours each time. Freaked me out the first couple times but now I just try to ignore it until it passes.
My most annoying symptom has been burning mouth syndrome. It comes and goes. I have it right now. Makes me think I have some type of oral cancer ( even though I've been to several ENT's , scoped and prodded and nothing found).
I think overall, the hardest thing for me is wondering if I will ever be "me" again. I can handle pretty much anything, but it gets hard fighting these physical/emotional issues when I have a deep nagging fear that this is the "new me" and certainly not how I want to be the next half of my life. Sometimes I will have a good day or two and be the old me and it actually makes me sad! I'm like " ahhh, there you are!!" I'll be thrilled and excited that the old me is still inside and able to pop in from time to time but then I will feel the symptoms slowly start creeping back. It usually starts with severe fatigue and I know my true spirit is fading into the shadows again and then other symptoms follow. That just makes me so sad and scared. I decided if I do come out the other side of this and get back to being me, I plan on coming back here and posting a good long post about it to let others here know it does get better and we do find out old selves again!
maria76995 amy05647
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hyacinth08689 amy05647
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CarolKelso amy05647
Posted
My hardest has been my stomach neasua and awful wind... The peeing through the night drives me insane with the dry mouth /thirst.. I could go on but I'd be here for ever... Lol 😂
tessa07451 amy05647
Posted