What have you found to keep the inflammation down.
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What have you found to keep the inflammation down
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Notes on What have you found to keep the inflammation down.
SnappyCat sharon84943
Posted
Well, to keep the inflammation down, you have to keep the LS under control, any yeast under control, urine off of it, it must be well moisturized, and avoid UTIs...not so simple, huh? Here's what I know:
When I was first diagnosed, I tried all sorts of oils - got reactions to some and some make you more prone to yeast. My go-to's are coconut oil, vaseline and aloe vera gel. But, I had ruled out vitamin e oil, because the one I had was smelly...just couldn't deal with that. Then, my husband brought home a bottle from Sam's club. Those vit e's are REALLY sticky...I mean like cold molasses...and they don't smell...I pop 2 every morning and slather it on. It moisurizes, feels good, and acts as a barrier for most of the day...I do this now EVERY DAY. Coconut or aloe only occasionally. Because it keeps the barrier for so long, I'm not messing around down there so much...I think this helps.
I keep a tube of nystatin (prescription) in the event that I feel itchy and think it might be external yeast. Knocks it down after 2 applications.
I got some D-Mannose capsules. Take 1500 mg every morning. If I feel even a HINT of UTI, take more. Seems to be working. (obtw, did you know that the active ingredient in cranberries that helps with uti is d-mannose, not ph??)
I use both steroid and protopic (tacrolimus) and find that I am much much better with both.
NO SUGAR...DON'T DO IT..
caroline96176 sharon84943
Posted
Hi Sharon, since my diagnosis 2 years ago, I have only used prescription medication, moisturiser, and soap alternative. At first, it was the unbearable itch that the the doctor treated with clobetasol propionate for 3 months, hydromol moisturiser after every toilet visit and DERMOL500 in the bath.
I was also told not to have the water too hot, no bubble bath, not to wash my hair while in the shower or bath to avoid shampoo affecting my private parts.
I dont wear tights or tight trousers and I avoid sugar. I can't think of anything else that I routinely do, but I do hope this is helpful.
Nancy_K_B sharon84943
Posted
HI Sharon - sorry for the delay in responding. When I discovered I had LS 2 years ago I searched online to discover that LS IS an autoimmune disease. I think we all know by know that the 100 plus autoimmune diseases ALL are evidence of inflammation!
I created myself a whole slew of nutritional supplements that I found on line from MD's and ND's that reduce the inflammation etc. Sharon my experience is a bit different from the women who have goen the steroid route. I've never used any of them. Besides reducing sugar to almost nil, I take about 25 vtitamins a minerals each day. I am comfortable now. I got out of the worst of the day within days from having read on here from someone writing 6 years ago about VITAMIN D. My doctor even knew about it and told me that D and magnesium are both at epidemic deficiency status worldwide.If you'd like you can read the collection of data I made for folks here.
https://patient.info/forums/discuss/nutritional-support-for-autoimmune-diseases-updated-for-several-skin-disorders-641279
and the rationale how we need to build back up our immune systems;
https://patient.info/forums/discuss/pathway-into-and-out-of-autoimmune-diseases--661033
hopwyou feel much better soon!