Posted , 11 users are following.
Dear everyone out there with OA. Blooming awful isn't?!
I've been sitting with my laptop for an hour or so (naughty me, must get moving!) and have been looking through a number of articles and am in danger of becoming quite gloomy.
How about we have a discussion about what helps us? Food, supplements, alternative medicine etc etc etc etc?
Are you up for this?! Positive stuff only for 2019.......
3 likes, 36 replies
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Guest JayJayCanSing
Posted
Like the idea JayJay. I've started blending my own aromatherapy oils, they seem to be better for me than anything else at the moment. 😀
JayJayCanSing Guest
Posted
Oh that sounds interesting. What have you tried? Do you use them as massage oils?
There seem to be a few good oils out there. Have you got OA?
Guest JayJayCanSing
Posted
I have OA, possibly Sarcoidosis and Fibromyalgia. I'm an aromathetapist so I blend my own. I use them as massage oils, put them in a diffuser and make rollerballs, handy for fibro for brain fog and fatigue.
JayJayCanSing Guest
Posted
thats really interesting. Which ones have you found to be most effective?
louisa24 JayJayCanSing
Posted
I take turmeric rosehip and ginger along with my meds. Also smiles from my new granddaughter lightens my day.
JayJayCanSing louisa24
Posted
Do you take them as supplements or in your food? I used to make some turmeric paste to eat every day. The taste was ok....need to dig out the recipe again. Is rosehip an anti inflammatory?
Guest louisa24
Posted
I tried Turmeric capsules but they made my eyelids yellow! 🙀
JayJayCanSing Guest
Posted
haha! I read that you can use it in the bath...and guess what, my bath is now stained yellow!
I think I need to make my potion of turmeric, coconut oil etc. It seems to be effective with lots of people
Thanks for the reply
Lala5555 JayJayCanSing
Posted
Hi JayJay
I'm sitting with heating pads on my neck & low back. Almost in tears when I clicked on your post!
I'm in Missouri & it's been in the high 60s the last few days. I overdid it -- even got a sunburn on my 58yo face! 😊
I'm rarely using hydro anymore. Use heating pads for OA Every time I'm sitting.
A friend who has had more back pain than I could endure has researched
JayJayCanSing Lala5555
Posted
Well it's blooming freezing in the UK! Oh for some warmth like Missouri!!
I agree, heat pads are great. My hot water bottle can get great heat.....naughty (nice red skin) but effective!
Keep in touch. Hope the sunburn is better today
Lala5555 JayJayCanSing
Posted
Oops I posted too early!
Anyway she has extensively researched & now used a plant powder called Kratom. It's from the leaves of the trees growing in Indonesia & other countries in that area.
Ive started using it 2-3 times a day & had some good progress with it. She says it helps when it is built up in your system. Depending on the type of tree it is derived from, it can help with pain, energy, nerves & sleeplessness. I've only used it for pain.
Kratom powder has been controversial & has been outlawed in some countries & in a few states here in America. So, you all need to investigate for yourselves as much as you can if you are interested in it.
Unfortunately I myself am relying on my dear friend's expertise, so I can't give you any advise at all.
Best of luck to ALL of us in 2019!!
deb46751 JayJayCanSing
Posted
I try to keep moving. I ride my recumbent bike most days for 30 min or more. Then I also walk for an hour most days. I have always exercised. When my joints started failing me, I had them replaced. I have met many people who stop moving because of the pain. I chose otherwise. I have had knees replaced, hips replaced, one shoulder and just recently a back fusion. If I hadn't done all of that, I would be in a wheel chair. I was bone on bone with all of them. I am very happy with my results.
louisa24 deb46751
Posted
Do you still get pain from your replacements deb?
JayJayCanSing deb46751
Posted
I dont seem to be able to exercise as much as I'd like (lower back a big problem), so I envy you. I keep trying. I'm going back to finding a baseline with everything and see how to improve it. Where was the problem in your back (if you dont mind me asking)?
deb46751 louisa24
Posted
My right knee was the worst one before the replacements. The doctor told me that it had almost been too late to do the surgery. I get around fine, etc. But it has always swelled a little, but no pain. My advice, is to just keep moving. When I couldn't walk very long because of my back, I bought a recumbent bike. It doesn't hurt my back or any joints. Doctor told me riding was the best thing to do.
deb46751 JayJayCanSing
Posted
With my back, it is L 3, 4, 5. I had a Laminectomy in 2003. After that a herniated disc in 2005 in that same area. For me I believe that weakened the area. I ended up with what I call a stair step, where vertabrae don't meet up correctly, Spondylolisthesis. Doctor fused all three. The reason I finally decided to do the surgery, was the stair step was worse, cutting off spinal fluid and nerves. All of that caused spasms in my legs, mostly the right leg. I had gone to the Pain doctor to see about getting an injection to see if that would help. I had had them before for the herniated disc, which worked.
Over the years the spasms just kept getting worse. Many Doctors and meds later.... Doctors were treating them like Restless leg syndrome, which it wasn't. It was from the pinched nerves.
I am 3 months post op from back fusion. Spasms have improved about 80%. 10% for nights I don't have any spasms and 10% on nights spasms are bad like they used to be. So I call the surgery a success. I went into it thinking that if the spasms stayed the same but didn't get worse, that would be a success too. Time is the factor. I have to wait and see if I can get off my meds that were treating the spasms. I take gabapentin, 300 mg TID and methadone, 2.5 mg Q 6 hrs. Very small amounts. I am waiting for several nights back to back with no spasms. Weaning off the meds isn't easy, but I have done it before when they would try other meds. I've tried probably 20 other meds.
Good luck to you.
JayJayCanSing deb46751
Posted
WOW, sounds like you've had a difficult time. Reading about some of the ops you have had, do you live in the UK?
deb46751 JayJayCanSing
Posted
I live in United States.
TKM deb46751
Posted
Deb,
I like the idea of the recumbent bike, or any bike as long as you have a safe place to ride.
Thomas