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what kind of specialist do you see for your OLP?

Posted , 8 users are following.

donna18720
donna18720

I have an appt Aug 8th to see a dermatotogist. But that seems weird for something in my mouth??

0 likes, 20 replies

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  • linda32054
    linda32054 donna18720

    Posted

    You definitely want to see a dermatologist! I had seen a primary care doc and an ENT specialist, dentist and oral pathologist until finally I figured out I should see a dermatologist and he is the one who was able to help me. After all it's a skin disease and none of the others knew enough about it to be helpful. 

  • nicola_66716
    nicola_66716 donna18720

    Posted

    I have Vulva Lichen planus erosive and also Oral lichen planus erossive . I was seen by dermatologist first but they had never seen anything like it so I was referred to Gynaecology Speaiclist it was them that also diagnosed that I had oral lichen planus to I was referred to a oral specialist and I also monitored at a dermatologist clinic x
    • linda32054
      linda32054 nicola_66716

      Posted

      Well hang in there. Hopefully someday they will find out what causes this awful disease. My niece who is a nurse practioner has suggested I see an immunologists. That might be my next step in finding out how to manage this disease....
    • donna18720
      donna18720 linda32054

      Posted

      that makes sense to see an immunologist. And I guess that it is still skin in your mouth too. I'm so confused and just want to stop suffering. I have been dxed with olp, multi nodular goiter, vaginal atrophy which I wonder if that is not really also lp. I can barely eat right now. The gel the oral surgeon gave me does nothing.

    • linda32054
      linda32054 donna18720

      Posted

      Nope, the oral surgeon did nothing for me either. It wasn't until I saw a dermatologist and he did a biopsy of my mouth that I got on the right medication. Yes, LP  is miserable - just keep searching. You are your own best advocate for your health. 

  • ckitefly
    ckitefly donna18720

    Posted

    I recently when to a Rheumatologist because it was suggested to me to see that type of doctor beause they can test for many if all Auto Immune disorders that can be the cause of my OLP.  i went on 7/18 and got the ball rolling by taking tons of blood and then started me on a medicatin called Hydroxychloroquine 200 mg ( twice a day) and I have to say, that although the sores in my mouth are still there in the far back ( molar area)  they are less inflammed and also the swelling in my inner cheek area and less.  I just ate  bbq chips and with no pain when normally, I would eat them but felt like my inner cheek area was being cut open with glass.  I know the mediation isn't for everyone but for those out there, think about seeing the Rhematologist too.  I asked her if she sees people with OLP and she said she has a lot.  That was a good sign.  Now to get bloods results back and see what that has instore for me in regards to more medicaton but this is a real good start and happy to pass on so others can try same treatment.

    • linda32054
      linda32054 ckitefly

      Posted

      I didn't see a Rhemy for OLP, but I did see one for Sjogrens which is just another type of auto immune disease. For OLP I had the best results from seeing a dermatologist.

      Good Luck. smile

    • donna18720
      donna18720 linda32054

      Posted

      thanks  I have waited so long for this appt. Have you ever taken herbal over the counter treatment? One person told me I should take  something called AHHC ?
  • linda32054
    linda32054 donna18720

    Posted

    It seemed strange to me too, but that is the specialist that treats OLP. I know because at first I saw an ENT, dentist, oral pathologist and rheumatologist. They knew nothing about what was wrong with my mouth. That is why I looked up on the internet which specialist to see about OLP and it said, dermatologist and mine has been my greatest asset so far. 

    Good luck! 

    • donna18720
      donna18720 linda32054

      Posted

      that makes me feel better thanks Linda. I am miserable right now. This 62 year old body is falling apart

       

    • linda32054
      linda32054 donna18720

      Posted

      62 year old body. Your a youngin' in my book. I'm 72 and still rolling along. By the way I forgot to say that the dermatologist might do a biopsy to make sure it's OLP. No worries - it's not that bad. smile

       

    • lynn_02499
      lynn_02499 donna18720

      Posted

      Rheumatologist for OLP, 200 mg Jydrocychloroquine 2x daily for 5 yrs now.

      Miracle!

    • lynn_02499
      lynn_02499

      Posted

      Oops, typo. Hydroxychloroquine
    • linda32054
      linda32054 donna18720

      Posted

      I just realized that Hydroxychloroquine is the generic for Plaquenil. I then remembered I had heard many people on this forum saying how successful they were with that drug. 

      I just thought that Hydroxychloroquine was something BRAND NEW. I'll contact my dermatologist and ask for a prescription for Hydroxychloroquine as the drug I'm using (Mycophenolate) has so many awful side effects.

      Thanks so much!confused

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